Slow degradation of my vision. Seeing a retina specialist

Posted by Bonita @bonitav, May 19, 2015

After a slow degradation of my vision, especially close as in computer usage, saw optician and after eye exam, received new lenses. Not much improvement, so I scheduled appointment with an ophthalmologist, who diagnosed very dry eyes, but with bleeding behind the retina in my left eye. Referred me to a retina specialist whom I see tomorrow. Any ideas what could be causing this other than retina detachment? About two years ago, had laser treatment for floaters. Wonder if this is related to that procedure. Can this also be related to a vascular problem? Thanks!

@peach414144

how nice of you to think of me. I am going blind from gloucoma and a surgeons actions. I have severe stage gloucoma. Monday 7/9/18 I am going to Baskin Palmer with my fingers crossed. Some one is driving me . Bless all. peach

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Any threat to the eyes is probably the most scary thing that can happen.

@lisalucier

Hi @kaoru1106 — since macular degeneration is a retinal issue, I've merged your post with this one in which members talk about a number of retinal issues. I thought that here you would meet the most members who might have some input on your macular degeneration, first in your left and then your right eye, with ranibizumab (Lucentis) injections each time. Please meet @peach414144 @hopeful33250 @rosemarya @bonitav @joan1234 and others. Hoping they will have some thoughts to share.

Your determination to be very on top of this is admirable.

If you are interested in reading some Mayo Clinic information on wet macular degeneration, here it is: https://mayocl.in/2lZeL7J.

@kaoru1106 — are you looking for published clinical research on wet macular degeneration to read, or an open clinical trial to participate in?

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Hi .. I have early stage Macular Degeneration but the only treatment so far was injections for 'floaters' and one injection for the MD. I take Preservison 2 vitamins upon my retina specialist's recommendation. Recently I had cataract surgery in both eyes. Have a followup appointment with the retina specialist tomrrow. Hoping there's no bad news.

Wishing you the best in your search for a clinical research opening. Take care. Bonnie.

@kaoru1106

Last September I was diagnosed with Macular Degeneration on my left eye. I was going to school when I work full time as a medical coder, I spend long hours in front of computer. First, I thought I was having eye strain because of watching a computer monitor for a long time every day, but one day I noticed I saw a black circle in the middle with my left eye. I have had a cornea abrasion previously and had a similar vision change so I made an appointment with eye doctor. It tuned out I had Macular Degeneration. He said mine was a wet type which progresses rapidly. I am 54 years old, and he said 54 years old is young to have AMD but I got it because I am very near sighted. I got Lucentis injection and it helped to get some vision back. However, he told me there is no cure for Macular degeneration. My fear is whether my right eye would get it or not. He said there is possibility have both eyes…Last month I noticed my right eye vision started being very distorted. I called him right away. He said I got it on my right eye as well…I got Lucentisis injection on my right eye and doing ok for now. I have a great doctor and I am determined to do everything I can to slow the progression!! I am now looking for some clinical research on Wet type macular degeneration. Macular Degeneration is very scary, but I believe there will be a solution someday!!

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@kaoru1106, I admire your strength of attitude. That will be in your favor because it is vital to remain steadfast in maintaining your treatments as prescribed for your eye care.
I do not have MC. I am treated by a Retina Specialist who works with my opthamologist. My condition condition has resulted in a donut hole visual field in my affected right eye. I have regular appointments at 4-6 month intervals with my Retina doc in addition to 6 month intervals with opthamologist. I am also monitored for glaucoma – eye pressure – and must use nightly eye drops to maintain a normal pressure. The Retina doctor monitors and administers the Lucentis injections. I usually get it in a series of 4 months, followed by a varying span where it is not necessary. There are eye scans that show what is going with my retina.. The goal is to prevent further damage.
I feel confident about my care because the Retina practice is associated with both Johns Hopkins and Univ of Ky Research and Practices.

What kind of follow-up is your doctor recommending for you?
Have you been examined by a Retina Specialist?
Rosemary

@peach414144

how nice of you to think of me. I am going blind from gloucoma and a surgeons actions. I have severe stage gloucoma. Monday 7/9/18 I am going to Baskin Palmer with my fingers crossed. Some one is driving me . Bless all. peach

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Went to Baskin Palmer ln West Palm Beach. Perhaps if I went to the Miami one I would have been satisfied.

@peach414144

how nice of you to think of me. I am going blind from gloucoma and a surgeons actions. I have severe stage gloucoma. Monday 7/9/18 I am going to Baskin Palmer with my fingers crossed. Some one is driving me . Bless all. peach

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@peach414144

I am sorry to hear that you were not satisfied with your appointment. You can always get another opinion if you feel uncertain about what you were told.

I hope that you are able to get the information that you need.

Teresa

@peach414144

how nice of you to think of me. I am going blind from gloucoma and a surgeons actions. I have severe stage gloucoma. Monday 7/9/18 I am going to Baskin Palmer with my fingers crossed. Some one is driving me . Bless all. peach

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Thank you.

@peach414144

how nice of you to think of me. I am going blind from gloucoma and a surgeons actions. I have severe stage gloucoma. Monday 7/9/18 I am going to Baskin Palmer with my fingers crossed. Some one is driving me . Bless all. peach

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I have been to three opthamalogista and have been given 3 different diagnosis. But they all say I will lose my sight. So now the treatment would be the problem. Which will be the correct one. Thank you for caring. I really should go to Manhattan Eye and Ear. Waiting to win the lottery.

@peach414144

how nice of you to think of me. I am going blind from gloucoma and a surgeons actions. I have severe stage gloucoma. Monday 7/9/18 I am going to Baskin Palmer with my fingers crossed. Some one is driving me . Bless all. peach

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@peach414144, I am sorry to read about your unsatisfactory results with no diagnosis. Have you been examined by a Retina Specialist? A retina specialist is trained and experienced for specialized treatment for complicated eye diseases or conditions. I think that you might want to consider getting an appointment with one. I don't know whether you can do it on your own or if you need a referral from your current ophthalmologist. It might be worth a phone call to get the details.
The retina doctors are also able to provide help you to obtain low vision aids so that you can still live independently more easily.
Rosemary

@peach414144

how nice of you to think of me. I am going blind from gloucoma and a surgeons actions. I have severe stage gloucoma. Monday 7/9/18 I am going to Baskin Palmer with my fingers crossed. Some one is driving me . Bless all. peach

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@peach414144

I just can't imagine how difficult and frustrating it is to have 3 different diagnoses. Please keep in touch, I hope you are able to find some answers and treatment.

Teresa

@peach414144

Ranked #1…bascom-palmer-eye-institute, Miami
Ranked #2…Wills Eye Hospital Philadelphia
Ranked #3…Wilmer Eye Institute at Johns Hopkins
Ranked #4…Massachusetts Eye and Ear Infirmary
Ranked #5….Stein and Doheny Eye Institutes at UCLA

The 2014-15 Best Hospitals rankings are accessible online at the US News website.Oct 29, 2017

@peach414144

how nice of you to think of me. I am going blind from gloucoma and a surgeons actions. I have severe stage gloucoma. Monday 7/9/18 I am going to Baskin Palmer with my fingers crossed. Some one is driving me . Bless all. peach

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Yes, I have seen a retinal specialist and was told the retina is fine. Yet I am continuing to lose sight with the glocouma. Three opthamalogists say three different conditions of the gloucoma and three different ways to treat it. Will continue to work on this.

@peach414144

how nice of you to think of me. I am going blind from gloucoma and a surgeons actions. I have severe stage gloucoma. Monday 7/9/18 I am going to Baskin Palmer with my fingers crossed. Some one is driving me . Bless all. peach

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P. S. I should have gone to the Miami Baskin Palmer and not the West Palm Beach one. (It was closer) Money, Money, Money. Pray.

I have been reading the posts on this thread because 2 weeks ago I was sitting outside enjoying the view in the evening, and had a sudden feeling that I had something in my left eye. When I searched in the mirror, I couldn't find anything. The next morning, I saw a rather large black circle that followed my eye movements, so I made an appointment with my opthamologist. He dilated my eyes, tested my pressure, and did a thorough exam. He said I have a floater in my eye that is probably the result of my vitreous gel breaking down as a natural part of aging. He made an appointment for 2 weeks out and I went home feeling relieved. Then, about a week later, my eyesight suddenly worsened and seemed to have a cloud that was in my sight. I returned for another exam, telling the eye doctor I have a very active imagination so perhaps nothing had changed. After the exam he told me that in fact the vitrious gel had definately pulled away from the back of my eye. He said I was fine and that no retinal tear showed up. He made an appointment for 1 month out.

It's been 2 weeks since this all started, and my left eye is getting worse. I can't focus well at all, and the cloudy area is there all the time. I feel as if I am looking through a fine white porous screen. Also, there are more black floaters in my left eye now, although these are much smaller than the first one that I can see all the time now. I'm trying to research if this is just part of the vitrious gel separation, or if something worse is going on. I'm worried as I have lots of painting and drawing I want to do now that I'm retired. I don't know if I should wait another 3 weeks before I see the doctor, or if I need to go to a retinal specialist. I don't want to go blind, which as someone else said here, is a very scary thing to consider. It never occurred to me that I would have problems with my eyesight as I got older.

I have T2 diabetes, insulin dependent with an A1c of 6.8 – 7.3 at my tests. I have had cataract surgery in both eyes 3 years ago. Otherwise I'm pretty darned healthy. If anyone has experience with this type of occurance or knows of research in this area, please let me know. I will continue looking through Mayo papers, and other research on my own as well.

Thanks, Gail
Volunteer Mentor

A doctor friend of mine says that if you want good medical care, you have to fight for it. I have spent more than six months searching for a solution to my eye problems–finally found an ophthalmologist who acknowledged that I had a problem and made an appointment for me with a neuro opthalmologist. Now I must wait till Oct. but I feel he will be the one to solve the problem. Don't wait–your eyesight is so important. Find the right medical care.

@gailb

I have been reading the posts on this thread because 2 weeks ago I was sitting outside enjoying the view in the evening, and had a sudden feeling that I had something in my left eye. When I searched in the mirror, I couldn't find anything. The next morning, I saw a rather large black circle that followed my eye movements, so I made an appointment with my opthamologist. He dilated my eyes, tested my pressure, and did a thorough exam. He said I have a floater in my eye that is probably the result of my vitreous gel breaking down as a natural part of aging. He made an appointment for 2 weeks out and I went home feeling relieved. Then, about a week later, my eyesight suddenly worsened and seemed to have a cloud that was in my sight. I returned for another exam, telling the eye doctor I have a very active imagination so perhaps nothing had changed. After the exam he told me that in fact the vitrious gel had definately pulled away from the back of my eye. He said I was fine and that no retinal tear showed up. He made an appointment for 1 month out.

It's been 2 weeks since this all started, and my left eye is getting worse. I can't focus well at all, and the cloudy area is there all the time. I feel as if I am looking through a fine white porous screen. Also, there are more black floaters in my left eye now, although these are much smaller than the first one that I can see all the time now. I'm trying to research if this is just part of the vitrious gel separation, or if something worse is going on. I'm worried as I have lots of painting and drawing I want to do now that I'm retired. I don't know if I should wait another 3 weeks before I see the doctor, or if I need to go to a retinal specialist. I don't want to go blind, which as someone else said here, is a very scary thing to consider. It never occurred to me that I would have problems with my eyesight as I got older.

I have T2 diabetes, insulin dependent with an A1c of 6.8 – 7.3 at my tests. I have had cataract surgery in both eyes 3 years ago. Otherwise I'm pretty darned healthy. If anyone has experience with this type of occurance or knows of research in this area, please let me know. I will continue looking through Mayo papers, and other research on my own as well.

Thanks, Gail
Volunteer Mentor

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@gailb, I suggest a call to the opthamologist in the morning. One thing my docs tell me is 'If you notice any changes before your next appointment, Call."
See if he will get you in to see a specialist right away. Because they usually have a long waiting time. My PCP got me in next day to see opthamologist, and the opthamologist got me next day in to see the retina specialist. Also I am aware that my retina doc will work in patients who have sudden vision issues as you are experiencing.

As @pedie has said – your eyesight is important!
I will be thinking of you tomorrow as you are making phone calls.
Keep in touch, Rosemary

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