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Bonita
@bonitav

Posts: 44
Joined: May 19, 2015

Slow degradation of my vision. Seeing a retina specialist

Posted by @bonitav, May 19, 2015

After a slow degradation of my vision, especially close as in computer usage, saw optician and after eye exam, received new lenses. Not much improvement, so I scheduled appointment with an ophthalmologist, who diagnosed very dry eyes, but with bleeding behind the retina in my left eye. Referred me to a retina specialist whom I see tomorrow. Any ideas what could be causing this other than retina detachment? About two years ago, had laser treatment for floaters. Wonder if this is related to that procedure. Can this also be related to a vascular problem? Thanks!

REPLY

@bonitav Hi, I’ve been thinking about you and wondering if you had started treatment with Stelara yet? I hope you are feeling OK. All is well with me. Teresa

@hopeful33250

@bonitav Hi, I’ve been thinking about you and wondering if you had started treatment with Stelara yet? I hope you are feeling OK. All is well with me. Teresa

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@hopeful33250, hi there. Strange you should ask about Stelara. Was scheduled for first infusion today but came down with a UTI this weekend and am taking antibiotic. Therefore, have to delay the infusion. I was anxious about it but wanted to get it going.
How is everything going with you? Happy Valentines!

Hi @bonitav; I’m sorry to hear about the UTI. I’m sure that you would have liked to get started with the Stelara and found out if it helped or not. All is going well with me. I’m working at keeping my energy level as constant as possible by not taking on too many tasks and keeping my schedule “reasonable.” Sometimes that is hard to do, I think that I may be addicted to “busyness”! On Valentine’s Day my daughter and I saw a real neat movie, A Dog’s Purpose. A real cute movie, told all from a dog’s perspective. If you would like a change of pace, I highly recommend it. How long do you have to wait after the UTI treatment before you can begin the Stelara? Keep in touch. Teresa

@bonitav, I want to inquire about your visit to the retina specialist. Were you able to find out about the bleeding behind your retina? Is there any treatment for it? I was diagnosed with a blood seepage in my right eye, but I think it is in front of retina. My condition is branch retinal vein occlusion. I receive treatment and regular checkups for it. Rosemary

@rosemarya

@bonitav, I want to inquire about your visit to the retina specialist. Were you able to find out about the bleeding behind your retina? Is there any treatment for it? I was diagnosed with a blood seepage in my right eye, but I think it is in front of retina. My condition is branch retinal vein occlusion. I receive treatment and regular checkups for it. Rosemary

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@rosemarya .. I went to an opthamologist the first time I had a floater in my eye. He referred me to the retina specialist, who did a laser treatment for the floater. Then on a followup visit a year later, the occlusion in my eye was detected. That was treated with a series of injections into the blood vessel. I will return for followup in the near future. Hope you can find a specialist who can treat you.

@hopeful33250

Hi @bonitav; I’m sorry to hear about the UTI. I’m sure that you would have liked to get started with the Stelara and found out if it helped or not. All is going well with me. I’m working at keeping my energy level as constant as possible by not taking on too many tasks and keeping my schedule “reasonable.” Sometimes that is hard to do, I think that I may be addicted to “busyness”! On Valentine’s Day my daughter and I saw a real neat movie, A Dog’s Purpose. A real cute movie, told all from a dog’s perspective. If you would like a change of pace, I highly recommend it. How long do you have to wait after the UTI treatment before you can begin the Stelara? Keep in touch. Teresa

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Oh, I understand the ‘busyness’ issue Teresa, but have gotten caught up in political issues that keep my mind busy. Has detracted me from my reading though. Anyway, I do want to see A Dog’s Purpose; I’ve seen the previews. I’m sure it was a real hoot! Am preparing for a move to a larger place not so far from here. Mostly just a mental process now… assessing the number of boxes I’ll need, etc. So, not sure how long after the antibiotic I’ll have to wait before I began Stelara. Will give the GI a call soon, or after I learn the outcome of the urine culture.. At any rate, glad you’re doing well. Wish me luck with the move, etc. Bonnie.

Thank you, @bonitav. I am a ‘regular’ at the retina specialist. I’ve been going for 4 or 5 years. I have had a good response to the injections. After getting rounds of monthly injections pretty regularly, I’m finally stable. Last injection was in Dec. 2015! I still have to keep appointments every 3 – 4 months.
Thanks for your concern about me.
My vision in my right (affected) eye is like looking thru a donut or cheerio. ie there is a donut shaped dark spot, and I can see thru center or around outside. Weird, but apparently my left eye has learned to compensate for that.
I hope your followup goes well.
Rosemary

@hopeful33250

Hi @bonitav; I’m sorry to hear about the UTI. I’m sure that you would have liked to get started with the Stelara and found out if it helped or not. All is going well with me. I’m working at keeping my energy level as constant as possible by not taking on too many tasks and keeping my schedule “reasonable.” Sometimes that is hard to do, I think that I may be addicted to “busyness”! On Valentine’s Day my daughter and I saw a real neat movie, A Dog’s Purpose. A real cute movie, told all from a dog’s perspective. If you would like a change of pace, I highly recommend it. How long do you have to wait after the UTI treatment before you can begin the Stelara? Keep in touch. Teresa

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@bonitav I wish you well on your move, how exciting! Take care and allow others to help you with the work and packing. Remember you don’t need to do it all. Teresa

@rosemarya

Thank you, @bonitav. I am a ‘regular’ at the retina specialist. I’ve been going for 4 or 5 years. I have had a good response to the injections. After getting rounds of monthly injections pretty regularly, I’m finally stable. Last injection was in Dec. 2015! I still have to keep appointments every 3 – 4 months.
Thanks for your concern about me.
My vision in my right (affected) eye is like looking thru a donut or cheerio. ie there is a donut shaped dark spot, and I can see thru center or around outside. Weird, but apparently my left eye has learned to compensate for that.
I hope your followup goes well.
Rosemary

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Glad you have a retina specialist @rosemarya. Does the dr have a diagnosis for the right eye issue? I have mild onset of macular degeneration in one eye and take AREDS2 vision vitamins which have been clinically tested by Bausch and Lomb (think I spelled that right). Just so many things with my health but I manage to juggle appointments rather well. Hope you don’t have as many docs as I do.. 🙂 My best to you! Bonnie.

@hopeful33250

Hi @bonitav; I’m sorry to hear about the UTI. I’m sure that you would have liked to get started with the Stelara and found out if it helped or not. All is going well with me. I’m working at keeping my energy level as constant as possible by not taking on too many tasks and keeping my schedule “reasonable.” Sometimes that is hard to do, I think that I may be addicted to “busyness”! On Valentine’s Day my daughter and I saw a real neat movie, A Dog’s Purpose. A real cute movie, told all from a dog’s perspective. If you would like a change of pace, I highly recommend it. How long do you have to wait after the UTI treatment before you can begin the Stelara? Keep in touch. Teresa

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@hopeful33250 I know I need help with packing, etc., but so often I’ve done things on my own. Have to admit I’m not as young as I once was. 🙂 Appreciate your concern. Bonnie.

@hopeful33250

Hi @bonitav; I’m sorry to hear about the UTI. I’m sure that you would have liked to get started with the Stelara and found out if it helped or not. All is going well with me. I’m working at keeping my energy level as constant as possible by not taking on too many tasks and keeping my schedule “reasonable.” Sometimes that is hard to do, I think that I may be addicted to “busyness”! On Valentine’s Day my daughter and I saw a real neat movie, A Dog’s Purpose. A real cute movie, told all from a dog’s perspective. If you would like a change of pace, I highly recommend it. How long do you have to wait after the UTI treatment before you can begin the Stelara? Keep in touch. Teresa

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@bonitav, I agree with Teresa. It is okay to ask for help. I know that is hard to do sometimes, especially when we have developed our own independence. None of us are as young as we used to be, but we can age gracefully! And hurting ourselves by overdoing it is not a good idea at any age.
My husband and I have always been do-it-yourselfers. This time we hired the painting out to professionals, and it was amazing! They prepped, they painted, they even cleaned up. And moved the furniture, too. I’m a believer:-)
Rosemary

@rosemarya

Thank you, @bonitav. I am a ‘regular’ at the retina specialist. I’ve been going for 4 or 5 years. I have had a good response to the injections. After getting rounds of monthly injections pretty regularly, I’m finally stable. Last injection was in Dec. 2015! I still have to keep appointments every 3 – 4 months.
Thanks for your concern about me.
My vision in my right (affected) eye is like looking thru a donut or cheerio. ie there is a donut shaped dark spot, and I can see thru center or around outside. Weird, but apparently my left eye has learned to compensate for that.
I hope your followup goes well.
Rosemary

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@bonitav, I was seeing flashing lights when I closed my eyes. My PCP sent me to ophthalmologist, ophthalmologist sent me to retina specialist. This all happened in a 3 day span of time. The retina specialist said that there was blood seeping from a small (branch) vein. My condition is called retinal vein occlusion. I have been on repeated series of the injections to ‘mop up the seepage’ and reduce the inflammation. He is very pleased with my response to the injection medication. Now he continues to monitor my eye. He will begin injections again if I need them. HE/and his partners think that my cause is because of the way my veins are pressed against each other. I also take eye drops to reduce eye pressure.
Rosemary

@bonitav Hi Bonnie: I hope that your vision problem is responding to treatment. Have you had a return visit lately.? I hope that your move went well and that you are settling in your new place. Keep in touch, i think about you often. Teresa

@hopeful33250

@bonitav Hi Bonnie: I hope that your vision problem is responding to treatment. Have you had a return visit lately.? I hope that your move went well and that you are settling in your new place. Keep in touch, i think about you often. Teresa

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Hi Teresa @hopeful33250 — Oh my gosh, so much has happened since we last spoke. First, and the issue that’s breaking my heart, is my younger brother was diagnosed with Lung Cancer and was being treated with Chemo. He progressed nicely until he could go home and return to the hospital for chemo. Unfortunately, after having been home for just a few days, one morning he didn’t wake up. Seems he’d had a massive stroke during the night. Back to the hospital and was dx’d with a massive stroke on one side of his brain. Then what had been a bit of reaction, he lost all ability to recognize his surroundings. So, I’m trying to decide if it’s time I returned to TN at least to let him know I’m there. Family is discouraging me…not making it easy. As for me, I’ve had one infusion of Stelara but tough to tell if it’s doing its job since my gallbladder absence is causing lots of issues. Had an MRI yesterday to check the pancreatic cyst for growth or changes. And…. Monday took my 17 year old kitty to the vet for a recheck. We decided it was time for her to leave me. Broke my heart. Seems there’s so much to deal with right now. Oh, and when I moved, pulled a muscle in my back and was in physical therapy for weeks. Had to hire someone to help me unpack as the back pain prevented me from doing much. Have appt with retina specialist soon… in a couple of weeks.
Just describing all this is disturbing but I will get through this. I’ll update you if I decide to do the 10 hour drive to visit my brother. Thanks so much for checking on me… Hope all is well with you. Bonnie.

@hopeful33250

@bonitav Hi Bonnie: I hope that your vision problem is responding to treatment. Have you had a return visit lately.? I hope that your move went well and that you are settling in your new place. Keep in touch, i think about you often. Teresa

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@bonitav Oh Bonnie, I am so sorry to hear about your brother’s diagnoses. How very difficult for you and your entire family. I’m also sorry to hear of you kitty, pets are such an important part of our family and our support! It sounds like you have had a tough few months. Take care of yourself and stay in touch. I will be thinking about you and hope that the Stelara begins to work and that your retina problem gets under control I’ll copy mentor, @rosemarya on this as I know she has posted with you regarding the eye problem. Take care and let me know how the MRI for the pancreatic cysts comes out. I’m due tor another MIR to check on my pancreatic cysts as well, sounds like we are on a similar schedule! Teresa

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