Slow degradation of my vision. Seeing a retina specialist

Posted by Bonita @bonitav, May 19, 2015

After a slow degradation of my vision, especially close as in computer usage, saw optician and after eye exam, received new lenses. Not much improvement, so I scheduled appointment with an ophthalmologist, who diagnosed very dry eyes, but with bleeding behind the retina in my left eye. Referred me to a retina specialist whom I see tomorrow. Any ideas what could be causing this other than retina detachment? About two years ago, had laser treatment for floaters. Wonder if this is related to that procedure. Can this also be related to a vascular problem? Thanks!

I have been thinking of all of you and wondering how youy are getting on with your vision issues. Does anyone have an update?

Yesterday I had my routine appointment with my retina spcialist for my Lucentis injection. (#3 of a possible series of 4 injections for this round of treatments) The current plan is to spread out my injections with the goal or reducing flair ups for my BRVO (Branch Retinal Vein Occlusion). So my next visit will be in 10 weeks and include a full eye exam and scans. The results will determine if I get to skip an injection.
I know this is a chronic condition and the goal stop any progression of vision loss. I do have a donut shaped blind spot on the cemter vision of my right eye, and my left eye is compensating so that I hardly notice it. I am getting tired of this routine and the anticipation/anxiety that I experience before each visit.

I would appreciate any hearing from anyone about similar experiences. How do you stay strong? How do you cope with the 'dreaded' injection each time?

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@rosemarya

I have been thinking of all of you and wondering how youy are getting on with your vision issues. Does anyone have an update?

Yesterday I had my routine appointment with my retina spcialist for my Lucentis injection. (#3 of a possible series of 4 injections for this round of treatments) The current plan is to spread out my injections with the goal or reducing flair ups for my BRVO (Branch Retinal Vein Occlusion). So my next visit will be in 10 weeks and include a full eye exam and scans. The results will determine if I get to skip an injection.
I know this is a chronic condition and the goal stop any progression of vision loss. I do have a donut shaped blind spot on the cemter vision of my right eye, and my left eye is compensating so that I hardly notice it. I am getting tired of this routine and the anticipation/anxiety that I experience before each visit.

I would appreciate any hearing from anyone about similar experiences. How do you stay strong? How do you cope with the 'dreaded' injection each time?

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I am sorry that I can only state that I am having the same problems and worse. The doctors do nothing I think because there is need for more studies so they will know what else can be done for us. Why is this happening? Why is this area of the medical field so lacking on a very serious issue? Blindness is a terrible way to live. Thinking of you, me and the rest of us. Peach

Liked by lioness

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@peach414144

I am sorry that I can only state that I am having the same problems and worse. The doctors do nothing I think because there is need for more studies so they will know what else can be done for us. Why is this happening? Why is this area of the medical field so lacking on a very serious issue? Blindness is a terrible way to live. Thinking of you, me and the rest of us. Peach

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@peach414144 One question you could ask is if there are any medications you may take have side effects that affect vision. Prescription drugs can affect both hearing and vision and you can look up your medicines online for information, but also ask your pharmacy to look at this for you. Sometimes doctors don't give you the detailed information.

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@jenniferhunter

@peach414144 One question you could ask is if there are any medications you may take have side effects that affect vision. Prescription drugs can affect both hearing and vision and you can look up your medicines online for information, but also ask your pharmacy to look at this for you. Sometimes doctors don't give you the detailed information.

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When doctor S. Hunt removed the cataract from my eye (or so he says) is when I lost my vision, As soon as the bandage was removed the vision was all of a sudden gone.and I feel as though there is something sharp moving around in my eye and now, only just after the procedure do I have glucoma. The other eye that he did not touch is fine, only that the eye is amblyoptic and legally blind since birth. But yes you are correct, medications have a large affect on the body including the eyes. The other opthamalagists here where I live will not address the issues with the problem eye. They only prescribe for the glucoma. Thank you for caring.

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@peach414144

When doctor S. Hunt removed the cataract from my eye (or so he says) is when I lost my vision, As soon as the bandage was removed the vision was all of a sudden gone.and I feel as though there is something sharp moving around in my eye and now, only just after the procedure do I have glucoma. The other eye that he did not touch is fine, only that the eye is amblyoptic and legally blind since birth. But yes you are correct, medications have a large affect on the body including the eyes. The other opthamalagists here where I live will not address the issues with the problem eye. They only prescribe for the glucoma. Thank you for caring.

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@peach414144 Hi Peach, the same thing happened to me when I got my cataract surgery. The sack got damaged, it is called PCO: Posterior capsule opacification. I was so excited, but then… it took another year and a half for doctors to do laser, they were afraid I was going to have another dettachment. Thank God it worked out, now my bad eye is my good eye. In regards to the injections, I take it one day at a time, I try not to think about it, I do carry a stress ball with me, to keep me calm. Hope this helps.

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@isaosunagatty

@peach414144 Hi Peach, the same thing happened to me when I got my cataract surgery. The sack got damaged, it is called PCO: Posterior capsule opacification. I was so excited, but then… it took another year and a half for doctors to do laser, they were afraid I was going to have another dettachment. Thank God it worked out, now my bad eye is my good eye. In regards to the injections, I take it one day at a time, I try not to think about it, I do carry a stress ball with me, to keep me calm. Hope this helps.

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isaosunagatty, Welcome to Connect. I am happy to meet you. You are fortunate to have a positive outcome. I am not familiar with what you have experienced with what you describe; I have not had cataract surgery (yet) My opthamalogist said that I will need it eventually.
Several of my friends have had catatact surgery and I have not heard them speak of any complications, so it is good for me to be aware and add it to my list of questions for him when the time does come.

My injection went well. It was a cloudy day, and I could see afterwards. I have only had 2 out of ordinary experiences after injection.
One time my eye pressure jumped afterwards, and drops were admisistered before I left the office to lower it. On another occasion, I rubbed my eye when I got home, and as the numbness wore off, I felt unusual burning pain in/on my eye. I called the doctor and he had me return to the office where he examined it and saw a scratch. I wore an eyepatch for 24 hrs.
My main physical discomfort is the burning with the drops before and afterwards. Sometimes I take a tylenol afterwards. I never thought of a stress ball! I do some deep breathing while waiting for the injection and this works well for me. My retina doctors are very good at the injections. I believe in one day at a time, as I am a transplant recipient. And for my eye condition, that is my mantra, too! One day or one visit at a time – my vision is worth a little discomfort.
How often do you get injections? Why do you get them?

I see a furry buddy in your photo. Is that your pet? If you are interested, Here is a link to the conversation, What Pets Can Do: Health and Healing. I do not have a pet, but I am so impressed with what others are sharing about their pet experiences. I want to invite you to take a look, and to join the conversatioin.
https://connect.mayoclinic.org/discussion/what-pets-can-do-health-and-healing/

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@peach414144

When doctor S. Hunt removed the cataract from my eye (or so he says) is when I lost my vision, As soon as the bandage was removed the vision was all of a sudden gone.and I feel as though there is something sharp moving around in my eye and now, only just after the procedure do I have glucoma. The other eye that he did not touch is fine, only that the eye is amblyoptic and legally blind since birth. But yes you are correct, medications have a large affect on the body including the eyes. The other opthamalagists here where I live will not address the issues with the problem eye. They only prescribe for the glucoma. Thank you for caring.

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Peach414144, I do care. I sure wish there was something that I could say or do that could help your condition.
My first thought is to ask you if you have someone who accompanies you to your appointment? It is good to have a second set of ears, and especially an extra voice to speak for you and with you about your diagnosis and treatment.
I also have a question for you. This is one that we struggled with concerning a family member. What kind of loss of vision care have your doctors offered to you? There are many assistive devices that can help to deal with loss of vision: lighting, magifycation devices, voiced news delivery, phones for visually impaired…..
Hugs to you.

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@peach414144 Im so sorry to hear about your vision didn't realize it was this bad .Have you contacted the Brielle Institute they have a wealth of information .They have audios of books that you can get and so much more I have information here in California but you may have them in your area A friend here bought magnifying glasses .

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@isaosunagatty

@peach414144 Hi Peach, the same thing happened to me when I got my cataract surgery. The sack got damaged, it is called PCO: Posterior capsule opacification. I was so excited, but then… it took another year and a half for doctors to do laser, they were afraid I was going to have another dettachment. Thank God it worked out, now my bad eye is my good eye. In regards to the injections, I take it one day at a time, I try not to think about it, I do carry a stress ball with me, to keep me calm. Hope this helps.

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The stress ball sounds very good to me. I do not receive injections for the eye. Lucky I guess. My bad eye is 20/200 or worse but It is better than being completely blind. Isn't it wonderful to have so many caring people around us with this very helpful site? I thank you all.

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@rosemarya

Peach414144, I do care. I sure wish there was something that I could say or do that could help your condition.
My first thought is to ask you if you have someone who accompanies you to your appointment? It is good to have a second set of ears, and especially an extra voice to speak for you and with you about your diagnosis and treatment.
I also have a question for you. This is one that we struggled with concerning a family member. What kind of loss of vision care have your doctors offered to you? There are many assistive devices that can help to deal with loss of vision: lighting, magifycation devices, voiced news delivery, phones for visually impaired…..
Hugs to you.

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Dear Rosemary, sorry to be so late in responding to your caring post. I do not know why, but the doctors in this area of Ocala, Florida have not recommended any type of vision help. I ask and they have no answers. I have been so very much in pain for the last two years with psoriatic arthritis (leg, from thigh to toes swollen, red, hot, and horribly painful that it is difficult to do much. And the fingers, ouch! Still working on the bunch of physical problems I have and will continue to persue with the stubbernes within me. Looking for someone to drive me to Mayo then will ask for an appointment. Have checked out the assisted living here and other places but with the experiences I have seen and had with this I will not go there….. Now this is a shame for the america that I much love.

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@lioness

@peach414144 Im so sorry to hear about your vision didn't realize it was this bad .Have you contacted the Brielle Institute they have a wealth of information .They have audios of books that you can get and so much more I have information here in California but you may have them in your area A friend here bought magnifying glasses .

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Dear Lionness: Thank you for the Brille Institute recommendation. I will use the internet to check this out.

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@peach41414_ Your welcome I feel blessed to live where I do It's near bus and Metro transaction Our Senior independent building has problems like most I think but I feel safe here sorry you can't find something there I feel blessed 🙏❤️ One other thing the Braille institute has are seeing eye dogs Have a good day

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@lioness

@peach41414_ Your welcome I feel blessed to live where I do It's near bus and Metro transaction Our Senior independent building has problems like most I think but I feel safe here sorry you can't find something there I feel blessed 🙏❤️ One other thing the Braille institute has are seeing eye dogs Have a good day

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Dear Lioness, without revealing your private address what state and city are you living in please. Peach

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@peach414144

Dear Lioness, without revealing your private address what state and city are you living in please. Peach

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@peach414144 Hi I live in sunny California Long Beach it's in southern Ca

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@lioness

@peach414144 Hi I live in sunny California Long Beach it's in southern Ca

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Thank you, Peach

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