22 yrs old with blood clots in lungs
Hey. I’m 22. In April of this year I was diagnosed with several blood clots in both lungs. I take high doses of warfarin daily, 25 mgs. In June I started having severe leg pain. A few days later it was in my back. Now I have severe pain everyday of my life. Have to take pain pills so I can move. I visit the Dr every week. And frequent er visits. I’m tired of taking pills. They say my clots came from smoking and birth control pills. My INR levels have not been therapeutic ever. Please help me.
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I was 18 and had 6 in my lungs. they said the same to me. I am currently 23 and am struggling to find a doctor to help me. I cannot get therapeutic. I’m on 15mg of Coumadin and a lovenox daily. throughout the years, I have come to find I have more than lupus anticoagulant. I am in so much pain daily. I also have Raynaud’s phenomenon, i’m having TIA’s, spinal stenosis, APS, 40% blockage in my carotid artery or something ( I just was released from the hospital for that), my heart rate jumps to 150 resting, my skin feels like I am laying on sharp rocks all over sometimes, not often, but it is so painful, migraines.. the list goes on. I was accepted into the mayo clinic in Rochester MN but I never sent back my triage papers BC I was losing my medical insurance that week and was overwhelmed with finances. I am begging for help as well. I look to the lupus anticoagulant group on Facebook as a family in need. they have helped me so much. I talk with all my problems and have actually had gotten correct information and was able to tell my doctor what was wrong for once. it’s just a support group, not a medical advise group. just making that clear. and I would love to help BC I am at my bottom with this disease. no one can understand except those whom have it
Ask your doctor if he thinks you may be Coumadin Resistant. Also, ask about genetic testing to be safe should it be decided to discontinue thinners. Google Post Thrombotic Syndrome, and see a Cardiologist to see if your heart has damage. At your age you will pay in the long run if you don’t self advocate for proper care. Having a Hematologist check for genetic disorders can save much stress worrying about recurrence, and ask about your diet – Vitamin K intake.It is now recommended you continue eatting the same amount of vegetables containing K that you did before. The body needs Vit K to have proper clotting balance.