Interstitial Lung Disease and Autoimmune Diseases

Posted by spiritnsoul @spiritnsoul, Jul 18, 2021

Hi, im trying to connect with other people dealing with Interstitial Lung Disease, and Rheumatoid arthritis auto immune diseases

Interested in more discussions like this? Go to the Autoimmune Diseases group.

Also concerned with how medications for these diseases impact seniors having osteoporosis

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@spiritnsoul

Also concerned with how medications for these diseases impact seniors having osteoporosis

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Hello, @spiritnsoul Welcome to Connect. We’re a group of people who try to help each other through their health journey with information, resources, and tips on what works and doesn’t work for us. But were not doctors so we can’t diagnose or prescribe medications.
You’ve asked about the medications affecting seniors with osteoporosis. Well, that’s me! I’m a senior who was diagnosed with an autoimmune disease about 3 years ago. Initial treatment is 5 days of high-dose steroids followed by oral steroids. Of course i developed osteoporosis . Actually I’m having a DEXA scan this afternoon to see if I’ve made any progress with countering the osteoporosis.. i also take calcium, Fosamax for strengthening bones, and daily walks.
What are you taking for the autoimmune diseases and for bone health?

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Where and when did you receive your diagnoses of interstitial Lung Disease and Rheumatoid Arthritis? My husband has antisynthetase and these are two of the immune diseases that are part of it. Antisynthetase Syndrome affects the complete body. Don's started in the lungs but he has also had the blood affected and his muscles. Currently he only has problems with his feet. He doesn't have diabetes but he does have neuropathy of his feet.

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@nancykay1888

Where and when did you receive your diagnoses of interstitial Lung Disease and Rheumatoid Arthritis? My husband has antisynthetase and these are two of the immune diseases that are part of it. Antisynthetase Syndrome affects the complete body. Don's started in the lungs but he has also had the blood affected and his muscles. Currently he only has problems with his feet. He doesn't have diabetes but he does have neuropathy of his feet.

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I have been diagnosed with Connective Tissue Disease which has affected my lungs with Interstitial Lung Disease, also Rheumatoid Arthritis and skin issues .

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@nancykay1888

Where and when did you receive your diagnoses of interstitial Lung Disease and Rheumatoid Arthritis? My husband has antisynthetase and these are two of the immune diseases that are part of it. Antisynthetase Syndrome affects the complete body. Don's started in the lungs but he has also had the blood affected and his muscles. Currently he only has problems with his feet. He doesn't have diabetes but he does have neuropathy of his feet.

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Yep @nancykay1888

It has been a while since you last posted about your husband's diagnosis of Antisynthetase Syndrome. How is he doing?

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I’ve been treated with ILD and RA for 5 years. Taking Cellcept and Plaquinil.
My symptoms are fairly well controlled with some flares involving mostly one shoulder.
I have sharp pains in hands and feet that come on when doing tasks then leave then stop. My lungs are good with occasional coughing which I feel is allergy related.
The RA is different everyday, my best days are when I get up and start moving immediately upon awaking. Using a jacuzzi several times a day, staying warm during cold weather and cool during high temperatures.
I feel fortunate that my symptoms and damage are manageable.

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@jilliemo12345

I’ve been treated with ILD and RA for 5 years. Taking Cellcept and Plaquinil.
My symptoms are fairly well controlled with some flares involving mostly one shoulder.
I have sharp pains in hands and feet that come on when doing tasks then leave then stop. My lungs are good with occasional coughing which I feel is allergy related.
The RA is different everyday, my best days are when I get up and start moving immediately upon awaking. Using a jacuzzi several times a day, staying warm during cold weather and cool during high temperatures.
I feel fortunate that my symptoms and damage are manageable.

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Jill, I'm tagging @spiritnsoul to make she they see your post about living with Interstitial Lung Disease and Rheumatoid Arthritis. As you prove, getting moving helps with RA, but it can be a challenge to move when you're feeling stiff and/or in pain. How do you encourage yourself to move on the tough days?

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