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Any ideas for constant toothache type pain on left side of nose ,cheek and upper teeth. Also dysfunctional nose. 13 years of pain getting worse

Any ideas for constant toothache type pain on left side of nose ,cheek and upper teeth. Also dysfunctional nose. 13 years of pain getting worse

Any ideas for constant toothache type pain on left side of nose ,cheek and upper teeth. Also dysfunctional nose. 13 years of pain getting worse

Hello. My name is Ann. I have chronic pain and have been taking oxycodone for about 6 years. I was diagnosed with EDS less than a year ago. I’ve had around 45 surgical procedures and continue with additional surgeries. I self diagnosed followed by confirmation by a rheumatologist. I was diagnosed with arthritis in my 20s. I worked as a generalist in the clinical laboratory for 17 years and as a RN for ten. Up until this past month my PCP prescribed my pain medication. Since November of 2017 until May of this year I had 3 surgeries, several teeth extracted, pneumonia, and 3 episodes of severe muscle spasms. Having worked in healthcare many years I am knowledgeable in the safe practice of using narcotic and non-narcotic medications. There were times I took more than my usual doses of oxycodone. I kept my PCP informed about when and why I took extra medication. I had a pain contract with my doctor. With a pain contract I cannot receive any prescriptions from another doctor. I went through hell with pain because of this. I have never abused my medication. On the last update to my PCP I was informed she would no longer prescribe oxycodone for me. She referred me to another doctor to get me on Suboxone. I explained I was not an addict and Suboxone would not help relieve the pain. She insisted otherwise. I saw the physician I was referred to. He agreed with me. I am not an addict and Suboxone, he stated, would not be beneficial to me. I went to my pain clinic and explained the situation. I am now taking OxyContin 3 times a day and I’m allowed two 10 mg oxycodone per day. I had to sign another contract. The experience was humiliating. I feel I am being treated like a criminal instead of a patient with legitimate reasons to be taking narcotics. In the past I have used CBD capsules to reduce pain. If I do so now I will no longer be able to get my prescribed medication. Chronic pain, loss of the ability to work, and physical limitations has also caused problems with depression. I know there are many individuals out there with these same issues. I feel each and every one of us needs to stand together for changes in our health care system to be made.I know this has been long to read. Thank you for taking the time to read this. It feels good to vent. There are many days I want to give up. When a life lacks quality it’s difficult to keep on trying to live.

Hello. My name is Ann. I have chronic pain and have been taking oxycodone for about 6 years. I was diagnosed with EDS less than a year ago. I’ve had around 45 surgical procedures and continue with additional surgeries. I self diagnosed followed by confirmation by a rheumatologist. I was diagnosed with arthritis in my 20s. I worked as a generalist in the clinical laboratory for 17 years and as a RN for ten. Up until this past month my PCP prescribed my pain medication. Since November of 2017 until May of this year I had 3 surgeries, several teeth extracted, pneumonia, and 3 episodes of severe muscle spasms. Having worked in healthcare many years I am knowledgeable in the safe practice of using narcotic and non-narcotic medications. There were times I took more than my usual doses of oxycodone. I kept my PCP informed about when and why I took extra medication. I had a pain contract with my doctor. With a pain contract I cannot receive any prescriptions from another doctor. I went through hell with pain because of this. I have never abused my medication. On the last update to my PCP I was informed she would no longer prescribe oxycodone for me. She referred me to another doctor to get me on Suboxone. I explained I was not an addict and Suboxone would not help relieve the pain. She insisted otherwise. I saw the physician I was referred to. He agreed with me. I am not an addict and Suboxone, he stated, would not be beneficial to me. I went to my pain clinic and explained the situation. I am now taking OxyContin 3 times a day and I’m allowed two 10 mg oxycodone per day. I had to sign another contract. The experience was humiliating. I feel I am being treated like a criminal instead of a patient with legitimate reasons to be taking narcotics. In the past I have used CBD capsules to reduce pain. If I do so now I will no longer be able to get my prescribed medication. Chronic pain, loss of the ability to work, and physical limitations has also caused problems with depression. I know there are many individuals out there with these same issues. I feel each and every one of us needs to stand together for changes in our health care system to be made.I know this has been long to read. Thank you for taking the time to read this. It feels good to vent. There are many days I want to give up. When a life lacks quality it’s difficult to keep on trying to live.

A "young" chronic pain sufferer here. I'm 30 but have had pain (most likely) due to a ganglion cyst in my right hand/wrist for the last 2 years. I've had the cyst "popped" once using a needle through ultrasound guidance and it provided relief for a few months but has worsened with time. I have tweaked exercises to reduce pain on it and have cut way down on riding my bicycle though am frustrated that days in which I spend with my 17 month old daughter that I pick her up a lot leave me with throbbing pain for the next few days that gradually gets better. Ibuprofen and Aleve help with the pain but it's something that will only be healed if I surgically get the cyst removed. Has anyone else had surgery to help deal with a pain issue? What finally made you take the surgery plunge?

Hello. My name is Ann. I have chronic pain and have been taking oxycodone for about 6 years. I was diagnosed with EDS less than a year ago. I’ve had around 45 surgical procedures and continue with additional surgeries. I self diagnosed followed by confirmation by a rheumatologist. I was diagnosed with arthritis in my 20s. I worked as a generalist in the clinical laboratory for 17 years and as a RN for ten. Up until this past month my PCP prescribed my pain medication. Since November of 2017 until May of this year I had 3 surgeries, several teeth extracted, pneumonia, and 3 episodes of severe muscle spasms. Having worked in healthcare many years I am knowledgeable in the safe practice of using narcotic and non-narcotic medications. There were times I took more than my usual doses of oxycodone. I kept my PCP informed about when and why I took extra medication. I had a pain contract with my doctor. With a pain contract I cannot receive any prescriptions from another doctor. I went through hell with pain because of this. I have never abused my medication. On the last update to my PCP I was informed she would no longer prescribe oxycodone for me. She referred me to another doctor to get me on Suboxone. I explained I was not an addict and Suboxone would not help relieve the pain. She insisted otherwise. I saw the physician I was referred to. He agreed with me. I am not an addict and Suboxone, he stated, would not be beneficial to me. I went to my pain clinic and explained the situation. I am now taking OxyContin 3 times a day and I’m allowed two 10 mg oxycodone per day. I had to sign another contract. The experience was humiliating. I feel I am being treated like a criminal instead of a patient with legitimate reasons to be taking narcotics. In the past I have used CBD capsules to reduce pain. If I do so now I will no longer be able to get my prescribed medication. Chronic pain, loss of the ability to work, and physical limitations has also caused problems with depression. I know there are many individuals out there with these same issues. I feel each and every one of us needs to stand together for changes in our health care system to be made.I know this has been long to read. Thank you for taking the time to read this. It feels good to vent. There are many days I want to give up. When a life lacks quality it’s difficult to keep on trying to live.

@freezing

Welcome to the Mayo Connect, Chronic Pain thread. I'm a Volunteer Mentor and am not a medical professional. I can offer my experience and support, but no medical diagnosis or medical advice. Others in the Mayo Connect community offer their support and suggestions for alternatives they have tried in similar situations to yours.

From what you have shared, you have been through so many surgeries and so much pain that my heart goes out to you. I have had a few surgeries and procedures, and pain, but not at the level you have experienced. As an RN, it must be very difficult for you to step back and have others determine what level of pain management you need. With the new emphasis on getting people off opioids, those whose bodies require strong pain control are being left in the cold. I'm sorry you're caught in this cycle.

Others on this thread who may be able to give you support and ideas are @parus @grandmar @gman007 @hopeful33250 @windwalker @contentandwell. I see that @lioness has already responded to you. I know that having a place to talk about our problems is very important to our mental health when we're in pain. Hopefully you will also find some alternative ways to help with your pain.

Warm regards,
Gail
Volunteer Mentor