1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

lioness | @lioness | May 30, 2018
In reply to @joannemaisey "Any ideas for constant toothache type pain on left side of nose ,cheek and upper teeth...." + (show)
@joannemaisey

Any ideas for constant toothache type pain on left side of nose ,cheek and upper teeth. Also dysfunctional nose. 13 years of pain getting worse

Jump to this post

@joanmassieyhave oh gone to an ENT Dr?

REPLY
lauren123 | @lauren123 | May 31, 2018
In reply to @joannemaisey "Any ideas for constant toothache type pain on left side of nose ,cheek and upper teeth...." + (show)
@joannemaisey

Any ideas for constant toothache type pain on left side of nose ,cheek and upper teeth. Also dysfunctional nose. 13 years of pain getting worse

Jump to this post

I suggest you see an MD or Dentist specializing in oral facial pain. It may be trigeminal neuralgia type I or type 2. Dental work could make it worse.

REPLY
lauren123 | @lauren123 | May 31, 2018
In reply to @joannemaisey "Any ideas for constant toothache type pain on left side of nose ,cheek and upper teeth...." + (show)
@joannemaisey

Any ideas for constant toothache type pain on left side of nose ,cheek and upper teeth. Also dysfunctional nose. 13 years of pain getting worse

Jump to this post

please see my previous note. Good luck. Some people call it BMS or burning mouth syndrome.

REPLY
Never Give Up | @freezing | Jun 2, 2018

Hello. My name is Ann. I have chronic pain and have been taking oxycodone for about 6 years. I was diagnosed with EDS less than a year ago. I’ve had around 45 surgical procedures and continue with additional surgeries. I self diagnosed followed by confirmation by a rheumatologist. I was diagnosed with arthritis in my 20s. I worked as a generalist in the clinical laboratory for 17 years and as a RN for ten. Up until this past month my PCP prescribed my pain medication. Since November of 2017 until May of this year I had 3 surgeries, several teeth extracted, pneumonia, and 3 episodes of severe muscle spasms. Having worked in healthcare many years I am knowledgeable in the safe practice of using narcotic and non-narcotic medications. There were times I took more than my usual doses of oxycodone. I kept my PCP informed about when and why I took extra medication. I had a pain contract with my doctor. With a pain contract I cannot receive any prescriptions from another doctor. I went through hell with pain because of this. I have never abused my medication. On the last update to my PCP I was informed she would no longer prescribe oxycodone for me. She referred me to another doctor to get me on Suboxone. I explained I was not an addict and Suboxone would not help relieve the pain. She insisted otherwise. I saw the physician I was referred to. He agreed with me. I am not an addict and Suboxone, he stated, would not be beneficial to me. I went to my pain clinic and explained the situation. I am now taking OxyContin 3 times a day and I’m allowed two 10 mg oxycodone per day. I had to sign another contract. The experience was humiliating. I feel I am being treated like a criminal instead of a patient with legitimate reasons to be taking narcotics. In the past I have used CBD capsules to reduce pain. If I do so now I will no longer be able to get my prescribed medication. Chronic pain, loss of the ability to work, and physical limitations has also caused problems with depression. I know there are many individuals out there with these same issues. I feel each and every one of us needs to stand together for changes in our health care system to be made.I know this has been long to read. Thank you for taking the time to read this. It feels good to vent. There are many days I want to give up. When a life lacks quality it’s difficult to keep on trying to live.

REPLY
4 replies
lioness | @lioness | Jun 2, 2018
In reply to @freezing "Hello. My name is Ann. I have chronic pain and have been taking oxycodone for about..." + (show)
@freezing

Hello. My name is Ann. I have chronic pain and have been taking oxycodone for about 6 years. I was diagnosed with EDS less than a year ago. I’ve had around 45 surgical procedures and continue with additional surgeries. I self diagnosed followed by confirmation by a rheumatologist. I was diagnosed with arthritis in my 20s. I worked as a generalist in the clinical laboratory for 17 years and as a RN for ten. Up until this past month my PCP prescribed my pain medication. Since November of 2017 until May of this year I had 3 surgeries, several teeth extracted, pneumonia, and 3 episodes of severe muscle spasms. Having worked in healthcare many years I am knowledgeable in the safe practice of using narcotic and non-narcotic medications. There were times I took more than my usual doses of oxycodone. I kept my PCP informed about when and why I took extra medication. I had a pain contract with my doctor. With a pain contract I cannot receive any prescriptions from another doctor. I went through hell with pain because of this. I have never abused my medication. On the last update to my PCP I was informed she would no longer prescribe oxycodone for me. She referred me to another doctor to get me on Suboxone. I explained I was not an addict and Suboxone would not help relieve the pain. She insisted otherwise. I saw the physician I was referred to. He agreed with me. I am not an addict and Suboxone, he stated, would not be beneficial to me. I went to my pain clinic and explained the situation. I am now taking OxyContin 3 times a day and I’m allowed two 10 mg oxycodone per day. I had to sign another contract. The experience was humiliating. I feel I am being treated like a criminal instead of a patient with legitimate reasons to be taking narcotics. In the past I have used CBD capsules to reduce pain. If I do so now I will no longer be able to get my prescribed medication. Chronic pain, loss of the ability to work, and physical limitations has also caused problems with depression. I know there are many individuals out there with these same issues. I feel each and every one of us needs to stand together for changes in our health care system to be made.I know this has been long to read. Thank you for taking the time to read this. It feels good to vent. There are many days I want to give up. When a life lacks quality it’s difficult to keep on trying to live.

Jump to this post

@freezing Hi I'm a retired nurse back fracture on job ,fibromyalgia for 30+ yrs and studied holistic meds,herbs,homeopathic treatments I found for muscle pain , magnesium in a higher mg. Helped Dr.had me on Narcotics for awhile from fracture , then Tramadol 50,mg. I was on 6 a day but now down to 1-2 for pain ,my discretion. Along with Tramadol now Dr put me on 1Moloxican .Faith in God is a must for us sufferers.Sorry for your own pain but this is a good place to share your story Welcome oh health care system isn't helping us who legitimately need it. One thing for muscle spasms helps is drinking pickle juice ,an old remedy but it works as well as Epsom Salts rub on muscles if you can't take bath. This rub is fairly new I found it at Walmart. Blessings to you Linda

REPLY
GailBL, Alumni Mentor | @gailb | Jun 2, 2018

@freezing

Welcome to the Mayo Connect, Chronic Pain thread. I'm a Volunteer Mentor and am not a medical professional. I can offer my experience and support, but no medical diagnosis or medical advice. Others in the Mayo Connect community offer their support and suggestions for alternatives they have tried in similar situations to yours.

From what you have shared, you have been through so many surgeries and so much pain that my heart goes out to you. I have had a few surgeries and procedures, and pain, but not at the level you have experienced. As an RN, it must be very difficult for you to step back and have others determine what level of pain management you need. With the new emphasis on getting people off opioids, those whose bodies require strong pain control are being left in the cold. I'm sorry you're caught in this cycle.

Others on this thread who may be able to give you support and ideas are @parus @grandmar @gman007 @hopeful33250 @windwalker @contentandwell. I see that @lioness has already responded to you. I know that having a place to talk about our problems is very important to our mental health when we're in pain. Hopefully you will also find some alternative ways to help with your pain.

Warm regards,
Gail
Volunteer Mentor

REPLY
1 reply
cognac | @cognac | Jun 2, 2018
In reply to @freezing "Hello. My name is Ann. I have chronic pain and have been taking oxycodone for about..." + (show)
@freezing

Hello. My name is Ann. I have chronic pain and have been taking oxycodone for about 6 years. I was diagnosed with EDS less than a year ago. I’ve had around 45 surgical procedures and continue with additional surgeries. I self diagnosed followed by confirmation by a rheumatologist. I was diagnosed with arthritis in my 20s. I worked as a generalist in the clinical laboratory for 17 years and as a RN for ten. Up until this past month my PCP prescribed my pain medication. Since November of 2017 until May of this year I had 3 surgeries, several teeth extracted, pneumonia, and 3 episodes of severe muscle spasms. Having worked in healthcare many years I am knowledgeable in the safe practice of using narcotic and non-narcotic medications. There were times I took more than my usual doses of oxycodone. I kept my PCP informed about when and why I took extra medication. I had a pain contract with my doctor. With a pain contract I cannot receive any prescriptions from another doctor. I went through hell with pain because of this. I have never abused my medication. On the last update to my PCP I was informed she would no longer prescribe oxycodone for me. She referred me to another doctor to get me on Suboxone. I explained I was not an addict and Suboxone would not help relieve the pain. She insisted otherwise. I saw the physician I was referred to. He agreed with me. I am not an addict and Suboxone, he stated, would not be beneficial to me. I went to my pain clinic and explained the situation. I am now taking OxyContin 3 times a day and I’m allowed two 10 mg oxycodone per day. I had to sign another contract. The experience was humiliating. I feel I am being treated like a criminal instead of a patient with legitimate reasons to be taking narcotics. In the past I have used CBD capsules to reduce pain. If I do so now I will no longer be able to get my prescribed medication. Chronic pain, loss of the ability to work, and physical limitations has also caused problems with depression. I know there are many individuals out there with these same issues. I feel each and every one of us needs to stand together for changes in our health care system to be made.I know this has been long to read. Thank you for taking the time to read this. It feels good to vent. There are many days I want to give up. When a life lacks quality it’s difficult to keep on trying to live.

Jump to this post

Ann, I'm in a similar situation as you, but not as severely. My PCP as stopped prescribing any type of pain meds. When my Script runs out I'm not sure what I'm going to do. You mentioned using CBD capsules. I've been researching CBD products. If you don't mind sharing, would you please tell me the strength and frequency of the capsules you used? I'd appreciate it. I truly wish you luck in your search for pain relief. And also relief for your depression. I very much understand how they are interlaced. @cognac

REPLY
marcyk | @marcyk | Jun 2, 2018
In reply to @TonyHart87 "A "young" chronic pain sufferer here. I'm 30 but have had pain (most likely) due to..." + (show)
@TonyHart87

A "young" chronic pain sufferer here. I'm 30 but have had pain (most likely) due to a ganglion cyst in my right hand/wrist for the last 2 years. I've had the cyst "popped" once using a needle through ultrasound guidance and it provided relief for a few months but has worsened with time. I have tweaked exercises to reduce pain on it and have cut way down on riding my bicycle though am frustrated that days in which I spend with my 17 month old daughter that I pick her up a lot leave me with throbbing pain for the next few days that gradually gets better. Ibuprofen and Aleve help with the pain but it's something that will only be healed if I surgically get the cyst removed. Has anyone else had surgery to help deal with a pain issue? What finally made you take the surgery plunge?

Jump to this post

Thank you but I have have had chroni back pain since 1977 - most of my adult life. I get frightened cause I lost my wondetful hubby who helped me immensely 5 years ago and my son is married with 4 children - one autistic. So he helps when he can but his wife had to go back to work so he is totally overwhelmed himself. So I get frightened- what if it gets worse ? And now I have knee problems and am not really a candidate for surgery. A mess..

REPLY
GailBL, Alumni Mentor | @gailb | Jun 2, 2018
In reply to @freezing "Hello. My name is Ann. I have chronic pain and have been taking oxycodone for about..." + (show)
@freezing

Hello. My name is Ann. I have chronic pain and have been taking oxycodone for about 6 years. I was diagnosed with EDS less than a year ago. I’ve had around 45 surgical procedures and continue with additional surgeries. I self diagnosed followed by confirmation by a rheumatologist. I was diagnosed with arthritis in my 20s. I worked as a generalist in the clinical laboratory for 17 years and as a RN for ten. Up until this past month my PCP prescribed my pain medication. Since November of 2017 until May of this year I had 3 surgeries, several teeth extracted, pneumonia, and 3 episodes of severe muscle spasms. Having worked in healthcare many years I am knowledgeable in the safe practice of using narcotic and non-narcotic medications. There were times I took more than my usual doses of oxycodone. I kept my PCP informed about when and why I took extra medication. I had a pain contract with my doctor. With a pain contract I cannot receive any prescriptions from another doctor. I went through hell with pain because of this. I have never abused my medication. On the last update to my PCP I was informed she would no longer prescribe oxycodone for me. She referred me to another doctor to get me on Suboxone. I explained I was not an addict and Suboxone would not help relieve the pain. She insisted otherwise. I saw the physician I was referred to. He agreed with me. I am not an addict and Suboxone, he stated, would not be beneficial to me. I went to my pain clinic and explained the situation. I am now taking OxyContin 3 times a day and I’m allowed two 10 mg oxycodone per day. I had to sign another contract. The experience was humiliating. I feel I am being treated like a criminal instead of a patient with legitimate reasons to be taking narcotics. In the past I have used CBD capsules to reduce pain. If I do so now I will no longer be able to get my prescribed medication. Chronic pain, loss of the ability to work, and physical limitations has also caused problems with depression. I know there are many individuals out there with these same issues. I feel each and every one of us needs to stand together for changes in our health care system to be made.I know this has been long to read. Thank you for taking the time to read this. It feels good to vent. There are many days I want to give up. When a life lacks quality it’s difficult to keep on trying to live.

Jump to this post

@cognac

If you go back one page here (from 174 to 173 or 172) you'll find a post from me that gives links to 3 different online websites that are about the use of CBD, how to determine what your dosage should be, and a good place to buy it. I hope you find the information you need.

Gail
Volunteer Mentor

REPLY
JK | @contentandwell | Jun 2, 2018
In reply to @gailb "@freezing Welcome to the Mayo Connect, Chronic Pain thread. I'm a Volunteer Mentor and am not..." + (show)
@gailb

@freezing

Welcome to the Mayo Connect, Chronic Pain thread. I'm a Volunteer Mentor and am not a medical professional. I can offer my experience and support, but no medical diagnosis or medical advice. Others in the Mayo Connect community offer their support and suggestions for alternatives they have tried in similar situations to yours.

From what you have shared, you have been through so many surgeries and so much pain that my heart goes out to you. I have had a few surgeries and procedures, and pain, but not at the level you have experienced. As an RN, it must be very difficult for you to step back and have others determine what level of pain management you need. With the new emphasis on getting people off opioids, those whose bodies require strong pain control are being left in the cold. I'm sorry you're caught in this cycle.

Others on this thread who may be able to give you support and ideas are @parus @grandmar @gman007 @hopeful33250 @windwalker @contentandwell. I see that @lioness has already responded to you. I know that having a place to talk about our problems is very important to our mental health when we're in pain. Hopefully you will also find some alternative ways to help with your pain.

Warm regards,
Gail
Volunteer Mentor

Jump to this post

@gailb @freezing I was mentioned as someone who might be able to help/support but honestly this is beyond me. I have had some surgeries of course, the biggie being the liver transplant, but I have not a persistent pain problem.
I wish you success in getting help for your needs. I am glad you found a doctor more understanding than your prior doctor. Of course opioids were getting over-prescribed but that does not mean that some people really do need them to be able to live a full life. It's really terrible that because of the problems, people like yourself are denied what you do need.
JK

REPLY
View MoreView Less
Please sign in or register to post a reply.