Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@bevo

Is there a digital download or DVD to share in this class from out of state?

Jump to this post

I went online and found an interesting video about Vitamin D and pain. I thought everyone in this discussion group might find this interesting as well. Just click on the link. Will you let me know your thoughts after listening to it?
https://www.mayoclinic.org/medical-professionals/physical-medicine-rehabilitation/videos/mayo-clinic-study-suggests-those-who-have-chronic-pain-may-need-to-assess-vitamin-d-status/VID-20433392

Liked by migizii

REPLY
@hopeful33250

I went online and found an interesting video about Vitamin D and pain. I thought everyone in this discussion group might find this interesting as well. Just click on the link. Will you let me know your thoughts after listening to it?
https://www.mayoclinic.org/medical-professionals/physical-medicine-rehabilitation/videos/mayo-clinic-study-suggests-those-who-have-chronic-pain-may-need-to-assess-vitamin-d-status/VID-20433392

Jump to this post

I have deep, bone pain often. I have much worse pain when my D level is down. I take liquid D-3 daily and it helps a lot.

REPLY
@tazscott

Mayo has a 10 week class that you only meet once a week. You do not have to do any physical movement in the class. Dr. Joan Cronin instructs the classes on Mondays. I did the class and it's truely a great class. Please give it a try. It does teach most of the same thing as the rehab program. You can truely benefit from that class. And Joan is incredible. If you have a hard time get through to her let me know. I can give you her personal email or numbers

Jump to this post

Hi there.
Where can I found out more information regarding these classes that are held at the Mayo. I live in Tucson and would drive to Scottsdale, about 2.5 hrs, if it’s worth it. Do any info you can forward would be great.

REPLY

Let me try and connect with my pain doctor and see if there is the same thing available out there.

REPLY
@mam14

I have deep, bone pain often. I have much worse pain when my D level is down. I take liquid D-3 daily and it helps a lot.

Jump to this post

REPLY
In reply to @lioness "@mam14" + (show)

@mam14 I liked the DVD Hopeful sent about Vit D I'm on 5000 units but am going to ask Dr for my next blood work to check my levels of D It is helping me also

REPLY
@mam14

I have deep, bone pain often. I have much worse pain when my D level is down. I take liquid D-3 daily and it helps a lot.

Jump to this post

@mam14
I have deep bone pain as well. It is the worst type of pain. Is it from Osteoporosis?
How long have you been using the liquid Vit. D?

REPLY

I use the vitamins d too. I totally feel the difference. can't stand it when I stop once. I think it would be worth a try for you. My doctor prescribed it and my insurance pays for all of it.

REPLY

Hello again:
It is late nigth and I don´t understand where to write about myself.
My name is Marta. I am 33 years old. I was Early Music and harp student, also singing.
I had a Dengue fever five years ago. It left me with a moderated variant of Guillain-Barré. Doctors did not realize of that in that moment and the time passed. Now I have a Poly-Radiculo-Neuropathy. A condition that give me crisis of acute pain since my coxis to my lumbar, dorsal, cervical spine connecting with my head, face teeth, shoulders, chest, ribs, arms, and hands. I have pain all the time. I cannot sleep. Doctors prescribed first Gabapentine and then Carbamazepine. This last pill helps a little but my nights are infernal. I cannot be setting for much time, or resting in bed, or stay on foot. I cannot sustain a heavy book in my hands because of the pain. Of course I haven’t talck about the lost of ‎muscle strength, but PAIN is what don´t left me never.
I am searching another medicine for neurological pain. It cannot contain Opium derivates, cause I am allergic.
I will thank your advices.
Marta

REPLY
@vradifegari

Hello again:
It is late nigth and I don´t understand where to write about myself.
My name is Marta. I am 33 years old. I was Early Music and harp student, also singing.
I had a Dengue fever five years ago. It left me with a moderated variant of Guillain-Barré. Doctors did not realize of that in that moment and the time passed. Now I have a Poly-Radiculo-Neuropathy. A condition that give me crisis of acute pain since my coxis to my lumbar, dorsal, cervical spine connecting with my head, face teeth, shoulders, chest, ribs, arms, and hands. I have pain all the time. I cannot sleep. Doctors prescribed first Gabapentine and then Carbamazepine. This last pill helps a little but my nights are infernal. I cannot be setting for much time, or resting in bed, or stay on foot. I cannot sustain a heavy book in my hands because of the pain. Of course I haven’t talck about the lost of ‎muscle strength, but PAIN is what don´t left me never.
I am searching another medicine for neurological pain. It cannot contain Opium derivates, cause I am allergic.
I will thank your advices.
Marta

Jump to this post

@vradifegari Good morning, Marta. Welcome to Mayo Clinic Connect. We're glad you found us. That is a long time to live with worsening pain; you must be exhausted! I'm so sorry you have had to go through this. Have your Dr's been able to give you any options that you can try? Non-medical but therapies that come to my mind include gentle yoga and stretching, massage therapy, warm water therapy, and a review of your diet to minimize foods that could cause increased inflammation. The website eatingwell.com may be a resource for you to look at for ideas on good nutrition with chronic inflammation. Here at Mayo Connect we are not Dr's but fellow patients and caregivers; we cannot offer medical advice but do share our experiences and what has worked [or not!] for us. Can you share with us what things you have tried beyond the two medications you mentioned? We care here, and want to help you out.
Ginger

REPLY
@vradifegari

Hello again:
It is late nigth and I don´t understand where to write about myself.
My name is Marta. I am 33 years old. I was Early Music and harp student, also singing.
I had a Dengue fever five years ago. It left me with a moderated variant of Guillain-Barré. Doctors did not realize of that in that moment and the time passed. Now I have a Poly-Radiculo-Neuropathy. A condition that give me crisis of acute pain since my coxis to my lumbar, dorsal, cervical spine connecting with my head, face teeth, shoulders, chest, ribs, arms, and hands. I have pain all the time. I cannot sleep. Doctors prescribed first Gabapentine and then Carbamazepine. This last pill helps a little but my nights are infernal. I cannot be setting for much time, or resting in bed, or stay on foot. I cannot sustain a heavy book in my hands because of the pain. Of course I haven’t talck about the lost of ‎muscle strength, but PAIN is what don´t left me never.
I am searching another medicine for neurological pain. It cannot contain Opium derivates, cause I am allergic.
I will thank your advices.
Marta

Jump to this post

Hello @vradifegari, welcome to Connect. Although it is not the main source of your post, you may find the following Mayo Clinic Radio podcast of interest: Guillain-Barre Syndrome (Mayo Clinic Radio), https://connect.mayoclinic.org/page/podcasts/newsfeed-post/guillain-barre-syndrome-mayo-clinic-radio/.

@vradifegari, I see you also posted in the Brain & Nervous System group in regards to your radiculo-neuropathy. Were you aware there is Carbamazepine is classified in the anti-seizure medication class?

REPLY
@vradifegari

Hello again:
It is late nigth and I don´t understand where to write about myself.
My name is Marta. I am 33 years old. I was Early Music and harp student, also singing.
I had a Dengue fever five years ago. It left me with a moderated variant of Guillain-Barré. Doctors did not realize of that in that moment and the time passed. Now I have a Poly-Radiculo-Neuropathy. A condition that give me crisis of acute pain since my coxis to my lumbar, dorsal, cervical spine connecting with my head, face teeth, shoulders, chest, ribs, arms, and hands. I have pain all the time. I cannot sleep. Doctors prescribed first Gabapentine and then Carbamazepine. This last pill helps a little but my nights are infernal. I cannot be setting for much time, or resting in bed, or stay on foot. I cannot sustain a heavy book in my hands because of the pain. Of course I haven’t talck about the lost of ‎muscle strength, but PAIN is what don´t left me never.
I am searching another medicine for neurological pain. It cannot contain Opium derivates, cause I am allergic.
I will thank your advices.
Marta

Jump to this post

Hello Marta, I am very sorry for all of your pain. I also have/had severe pain from neuropathy in my feet. I cannot imagine how you must feel to have it in so many places, as just my feet pain was unbearable, and ruining my life. I must tell you about Scrambler/Calmare Therapy. I have many posts about it on the neuropathy sight. It is the only thing that has really helped me, and I have tried Physical Therapy, Acupuncture, Lasers, Gabapentin, and Duloxetine. I have posted lots of information about it in the Neuropathy Group. It is not cheap, and cost me 2500.00. Insurance does not cover it. The only other thing that helped, but only for a few hours, is CBD salves and tinctures. They worked much better than Gabapentin and Duloxetin. Let me know if you need more information, as I will happily give you whatever you need. You sound like you had/have many passions for life. My heart goes out to you. Please, please. If you need anything, let me know. Research Scrambler Therapy, because it really helps nerve pain. It is amazing. God bless, Lori Renee

REPLY
@lorirenee1

Hello Marta, I am very sorry for all of your pain. I also have/had severe pain from neuropathy in my feet. I cannot imagine how you must feel to have it in so many places, as just my feet pain was unbearable, and ruining my life. I must tell you about Scrambler/Calmare Therapy. I have many posts about it on the neuropathy sight. It is the only thing that has really helped me, and I have tried Physical Therapy, Acupuncture, Lasers, Gabapentin, and Duloxetine. I have posted lots of information about it in the Neuropathy Group. It is not cheap, and cost me 2500.00. Insurance does not cover it. The only other thing that helped, but only for a few hours, is CBD salves and tinctures. They worked much better than Gabapentin and Duloxetin. Let me know if you need more information, as I will happily give you whatever you need. You sound like you had/have many passions for life. My heart goes out to you. Please, please. If you need anything, let me know. Research Scrambler Therapy, because it really helps nerve pain. It is amazing. God bless, Lori Renee

Jump to this post

@lorirenee1, I searched scrambler therapy and found this, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4973603/. Is this the therapy you were talking about to @vradifegari?

REPLY

I'm a 75 year old male with many years of chronic back pain with no relief. I recently had a medial facet block but it yielded no positive results. I'm now waiting for a repeat procedure.

REPLY
@JustinMcClanahan

@lorirenee1, I searched scrambler therapy and found this, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4973603/. Is this the therapy you were talking about to @vradifegari?

Jump to this post

Hi Justin, Yes, this is the therapy I was talking about. This article about Scrambler is the most comprehensive I have seen. It is a good one! Lori

REPLY
Please login or register to post a reply.