How to Search on Connect - It can help you!

Oh my goodness, @agnieszka, you’ve had quite a history being involved in the Chernobyl incident. That had to be terrifying for you and your family…and everyone else there! I know that’s huge understatement because the world-over was terrified.
I’m trying to condense everything I read through in your notes…and to clarify I am not a medical professional so I cannot offer any treatments or interpret the results of your labs.
Your liver sure took a hit in 2020 caused by Lo Loestrin. The numbers have dropped quite a bit since then but they are still very high so it’s good your doctor is continuing to investigate.

I know you’re concerned about having the transjugular biopsy. It sounds much worse than it is. It’s very safe and you won’t need to have an MRI first because the procedure is guided by an ultrasound. So the radiologist can see exactly where he/she needs to be. I’ve had this done and it’s painless. But the test allows the doctor to get a good sample of your liver to check for any cellular damage.

This may be way off base but since you’re having these weird liver numbers and also elevated autoimmune symptoms, I thought I’d toss these conversations into the mix about autoimmune hepatitis.
If there is any autoimmune condition that may be causing your continued liver issue, the liver biopsy your doctor ordered can also detect that.

https://connect.mayoclinic.org/discussion/primay-biliary-cholagitis-and-autoimmune-hepattitis/
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https://connect.mayoclinic.org/discussion/autoimmune-hepatitis-1/
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https://connect.mayoclinic.org/discussion/aih-autoimmune-hepititus/

This all has to be very frustrating and frightening for you. I just feel you have a good team of doctors working with you from what I’m seeing. With your family history of autoimmune diseases and your new symptoms it’s good you’re seeing a rheumatologist. So that is a wise next step.
It will be interesting to see what the meeting with the rheumatologist will yield. Hopefully you find some answers. Will you let me know what you learn?

I have stomach pain. looking for someone who has had all the Ct's, MRI, Blood work, Ultra sound, etc. but pain pursist and even at times is very painful. Located in a small area, but doctors have no answers!

is kaposi sarcoma cureable

I cannot start a new discussion. I followed directions but do not see a tab for "start a new discussion". I want to discuss tinnitus but the only thing that comes up in search is "hearing loss". Can you please help me or start the discussion for me?

You should see "Start a new discussion" right under "Search Discussions".

I've overlooked it myself at times.

@carol1024, learn more about how to start a discussion and more in the Help Center https://connect.mayoclinic.org/help-center/
@scottrl also provided some help with pictures. Thanks, Scott.

Carol, I see you have joined an existing discussion on tinnitus (https://connect.mayoclinic.org/discussion/tinnitus-15/), which is the better way to connect with others.

Using the search function, I see there are a variety of discussions about tinnitus - over 140 discussions.
https://connect.mayoclinic.org/search/discussions/?search=Tinnitus

I have just joined the forum. Is there a section on Myelomalacia?

My name is Steve.

Hi Steve, Welcome to Connect. Yes, there is a discussion on myelomalacia. Here is the link:
Chronic myelomalacia: https://connect.mayoclinic.org/discussion/chronic-myelomalacia/

I don’t have a computer at this time. Can I use my IPhone to see a discussion on nerve pain or nerve damage in the mouth after having a tooth removed. A burning pain. Thank you