Tinnitus

Posted by buddysmom07 @buddysmom07, Oct 2, 2023

I’ve had tinnitus since 1995 and nothing has ever helped! Mine was a traumatic injury and I have hearing aids they don’t help tinnitus but I can hear a little better! I’ve been taking lipoflavinoid for 2 years and it doesn’t help either! I play soft music to help with sleep but mine is constant buzzing like locusts! Any suggestions please?

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....sorry to read - you too ! Have had for many years but worse now am older, together with moderate hearing loss, Hyperacusis and of all things “musical ear syndrome” - plus some Eustachian tube problems and ent had said no tubes for me as can give infection in 50 per cent of his placing ear tubes; on top of some other health issues. Mine too is now constant and mor of a rumbling but woke up to rumbling in one wear and a whine noise in others - I dont think some people realize how life-altering all this can be.... but always someone worse off for sure. I put ipad on pillow next to me and have relaxation tapes from you tube on when going to sleep and if and when wake up through night. Anyone who can find a “cure” for tinnitus would become an overnight billionaire! (And of course, cures for many other health issues) Best of luck and hope you get some helpful comments on here... J.

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@lacy2

....sorry to read - you too ! Have had for many years but worse now am older, together with moderate hearing loss, Hyperacusis and of all things “musical ear syndrome” - plus some Eustachian tube problems and ent had said no tubes for me as can give infection in 50 per cent of his placing ear tubes; on top of some other health issues. Mine too is now constant and mor of a rumbling but woke up to rumbling in one wear and a whine noise in others - I dont think some people realize how life-altering all this can be.... but always someone worse off for sure. I put ipad on pillow next to me and have relaxation tapes from you tube on when going to sleep and if and when wake up through night. Anyone who can find a “cure” for tinnitus would become an overnight billionaire! (And of course, cures for many other health issues) Best of luck and hope you get some helpful comments on here... J.

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Thank you 🙏 and you’re so right very life altering especially at this older age just can’t explain it to someone who doesn’t have it ! I appreciate you getting with me on this and apparently we’re only 2 of millions!

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Me too...going crazy with this tinnitus...noone knows except those that have it...have had this ringing in the ears for years.. many hearing tests and nothing ever helps...going to doctor again... to see if anything new can help...if anyone knows of any treatments please post..... .

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I live in Minnesota and have heard about this treatment but I don’t know anyone who has tried it so I am not endorsing it.
I found this info when looking for treatments for a friend who lives in Montana. She is trying to find a clinic that offers this.
This is a link to the University of Minnesota that explains the science of this new treatment.
https://cse.umn.edu/college/news/umn-professor-part-team-has-received-fda-approval-new-tinnitus-treatment

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If anyone has tried lenire program for tinnitus ...please post the results you had with it ..thanks

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@buddysmom07

Thank you 🙏 and you’re so right very life altering especially at this older age just can’t explain it to someone who doesn’t have it ! I appreciate you getting with me on this and apparently we’re only 2 of millions!

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Now we're three of millions!

Have had mine since 2010 and participated in one clinical study, now participating in another, been to three tinnitus clinics, joined the ATA and seen so many audiologists and ENT's (they are not helpful) that there isn't room to list them.

At this point in my life it seems best to participate in clinical studies to hopefully contribute toward a cure.

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@cvzird

Now we're three of millions!

Have had mine since 2010 and participated in one clinical study, now participating in another, been to three tinnitus clinics, joined the ATA and seen so many audiologists and ENT's (they are not helpful) that there isn't room to list them.

At this point in my life it seems best to participate in clinical studies to hopefully contribute toward a cure.

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That’s a great idea I never thought of participating in a study how do you go about doing that I would be willing also!

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@buddysmom07

That’s a great idea I never thought of participating in a study how do you go about doing that I would be willing also!

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You can check with the American Tinnitus Association to find clinical studies. That's how I found out.

https://www.ata.org/
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I have tinnitus that has gotten progressively worse in the last few months. It sounds like the squealing sounds from powerlines. I was desperate and ordered Cortexi ($177) for 3 bottles. I've only been using it a few days. I also take the lipoflavonoid for ringing in the ears. Some days are worse than others. Although it affects the ears, tinnitus actually comes from the brain. It has something to do with the part of the brain that processes hearing...over years of listening to loud noises, it does something to that part of the brain and the sounds become all jumbled up and squiggly and can't make the connection to the part of the brain to decipher it. It was an interesting video and made sense. I have been a stylist for 30 years so I have listened to blowdryers daily. I researched decibels once too. The product I ordered is all natural and meant to increase blood flow and to repair the neurons damaged in the brain responsible for hearing. I was desperate. I guess my next step will be audiologist. I know someone so desperate they had the nerve cut in the ear and the tinnitus got worse. I'm wondering if it's a blood flow issue, would regular exercise work because that increases blood flow too. That may just be my motivation to start using my treadmill. At times I can tune it out, almost like when you first get an aquarium and all you hear is running water but over time, you stop noticing it. I just know that there have been people that committed suicide because it became so unbearable. There has to be an answer. PLEASE somebody give me some good, hopeful news.

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