Primary Biliary Cholangitis and Autoimmune Hepatitis

Posted by mahdi123 @mahdi123, Dec 16, 2018

Hi this is Mahdi

Hi, Mahdi. Welcome to Connect. Mayo Clinic Connect is an online community where you can share your experiences and find support from people like you. I would like to help you. Would you share what brought you to Connect? What question do you have about Primary Biliary Cholangitis or Autoimmune Hepatitis.

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Mahdi,
My original diagnosis was autoimmune hepatitis. I was diagnosed at the age of 12 and had my first liver transplant at age 22 in 1995. I received a second liver transplant due to graft failure of the first one at age 34 in 2007. I then ended up with kidney failure due to the anti-rejection meds in 2010 with a living donor-related kidney transplant in 2012.

Having lived with autoimmune disease for the majority of my life, I would be happy to answer any questions I can regarding this particular aspect.

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@charicen

Mahdi,
My original diagnosis was autoimmune hepatitis. I was diagnosed at the age of 12 and had my first liver transplant at age 22 in 1995. I received a second liver transplant due to graft failure of the first one at age 34 in 2007. I then ended up with kidney failure due to the anti-rejection meds in 2010 with a living donor-related kidney transplant in 2012.

Having lived with autoimmune disease for the majority of my life, I would be happy to answer any questions I can regarding this particular aspect.

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Appreciate your support
Hopping you are will

I need to send medical report to the concerned Dr. please direct me
Appreciate

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I need help with my situation with my PBC and autoimmune hepititis. I had this disgnised at 29 but am 51. I apparently have a MELD score of 15. Not sure where this leaves me? I am in winnipeg canada.

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@charicen

Mahdi,
My original diagnosis was autoimmune hepatitis. I was diagnosed at the age of 12 and had my first liver transplant at age 22 in 1995. I received a second liver transplant due to graft failure of the first one at age 34 in 2007. I then ended up with kidney failure due to the anti-rejection meds in 2010 with a living donor-related kidney transplant in 2012.

Having lived with autoimmune disease for the majority of my life, I would be happy to answer any questions I can regarding this particular aspect.

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@charicen
OMG you are sent from heaven! Put thru the ringer! THANK you for sharing your depth of info..I am sure you will be someone's angel!

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@lisababs, @mahdi123,
On Connect, I am a patient, just like you. I do not have any experience with either Primary Biliary Cholangitis (PBC) or with Autoimmune Hepatitis (AIH). I have experiencer another form of liver disease, and so I can relate to your concern about your disease.

I want to share some information from Mayo Clinic about both liver diseases, as well as information about contacting Mayo Clinic about appointment. When you make an appointment, you can learn where to send your records.

Autoimmune hepatitis is liver inflammation that occurs when your body's immune system turns against liver cells.
https://www.mayoclinic.org/diseases-conditions/autoimmune-hepatitis/symptoms-causes/syc-20352153

Primary biliary cholangitis, previously called primary biliary cirrhosis, is a chronic disease in which the bile ducts in your liver are slowly destroyed.
https://www.mayoclinic.org/diseases-conditions/primary-biliary-cholangitis-pbc/symptoms-causes/syc-20376874

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That’s great information
I need to send case to concern dr .

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@jeanne5009

@charicen
OMG you are sent from heaven! Put thru the ringer! THANK you for sharing your depth of info..I am sure you will be someone's angel!

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I share with anyone who asks, especially when someone sees me out and about wearing one of my numerous t-shirts that have to do with organ donation or transplants. If someone can benefit from my experiences, all the better. It is important to share and get the knowledge out there. Ironically, I found out at my 20-year high school class reunion that one of my classmates became a pediatric gastroenterologist and had encountered several patients over the years of his practice that had AIH. He was based in Seattle at that time but has since moved to Montana.

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@lisababs

I need help with my situation with my PBC and autoimmune hepititis. I had this disgnised at 29 but am 51. I apparently have a MELD score of 15. Not sure where this leaves me? I am in winnipeg canada.

Jump to this post

lisababs, Have you been able to get an appointment with a gastroenterologist (GI) or a liver specialist? How are you feeling?

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@rosemarya

@lisababs, @mahdi123,
On Connect, I am a patient, just like you. I do not have any experience with either Primary Biliary Cholangitis (PBC) or with Autoimmune Hepatitis (AIH). I have experiencer another form of liver disease, and so I can relate to your concern about your disease.

I want to share some information from Mayo Clinic about both liver diseases, as well as information about contacting Mayo Clinic about appointment. When you make an appointment, you can learn where to send your records.

Autoimmune hepatitis is liver inflammation that occurs when your body's immune system turns against liver cells.
https://www.mayoclinic.org/diseases-conditions/autoimmune-hepatitis/symptoms-causes/syc-20352153

Primary biliary cholangitis, previously called primary biliary cirrhosis, is a chronic disease in which the bile ducts in your liver are slowly destroyed.
https://www.mayoclinic.org/diseases-conditions/primary-biliary-cholangitis-pbc/symptoms-causes/syc-20376874

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Hi nice to find cooperative person like you
Attached is some records
Please advise me and tell me your experience with MAYO CLINIC
THANKS

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@mahdi123

Hi nice to find cooperative person like you
Attached is some records
Please advise me and tell me your experience with MAYO CLINIC
THANKS

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Hi @mahdi123, I removed your medical records from this public forum. It is not recommended to share personal identifying information on a social network such as Connect. If you would like to seek a second medical opinion, please contact Mayo Clinic here: https://www.mayoclinic.org/departments-centers/international/appointments

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@colleenyoung

Hi @mahdi123, I removed your medical records from this public forum. It is not recommended to share personal identifying information on a social network such as Connect. If you would like to seek a second medical opinion, please contact Mayo Clinic here: https://www.mayoclinic.org/departments-centers/international/appointments

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Thanks a lot for removing the document

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@rosemarya

lisababs, Have you been able to get an appointment with a gastroenterologist (GI) or a liver specialist? How are you feeling?

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Hi
In fact I need to hear from specialists the possibility of treatment before having an appointment .But at the same time I don’t know to hear the specialist opinions
Do I have to have an appointment first?
Thanks

Liked by jodeej

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@mahdi123

Hi
In fact I need to hear from specialists the possibility of treatment before having an appointment .But at the same time I don’t know to hear the specialist opinions
Do I have to have an appointment first?
Thanks

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Hi, Mahdi.
No two patients are alike, and it would be unfair to you for me to try to answer this question.

I encourage you to make contact to the Mayo Clinic with your question about a second opinion. You will be able to talk with someone who will be able to answer your questions. They will likely ask you questions to connect you with the appropriate department who will be qualified to guide you forward.
https://www.mayoclinic.org/departments-centers/international/appointments

Mahdi, I hope that you find the answers that you are seeking.

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Thanks a lot for your advice
I just want to know the possibility of treatment or transplanting in the clinic whether they have or not

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