1. < Brain & Nervous System

Internal Body Tremors and Tinnitus

Posted by kkinsley @kkinsley, Jun 29, 2021

I am a 47 year old female who has been in very good health most of my life. I work out daily. In January I had sudden elevated blood pressure and feelings of heart racing/palpitations. I was put on 25 mg of Losartan. An Echo and 7 day heart monitor were normal. 3 weeks into taking the medication, I developed ear ringing and feeling shaky. I was switched to Coreg (beta blocker) to see if symptoms improve.

Symptoms progressed to feelings of internal head vibrations/quivering and sometimes into chest and abdomen as well as a feeling of shakiness in my limbs off and on. I had a CT Scan and MRI as well as lots of blood tests including checking thyroid and hormonal/adrenal gland issues. All tests normal. Saw an ENT for the tinnitus and also tell me everything looks normal. Only reference in MRI was that the bilateral anterior inferior cerebellar arteries are coursing in close proximity to their respective 7th and 8th cranial nerves. Neurologist didn't think symptoms were typical of neurological diseases so these are ruled out for now. He isn't sure but only speculation that it's possible arteries have irritated cranial nerves but had no treatment to recommend. I have days when the head and body vibrations are unbearable and days when they are more manageable.

Sleeping is challenging and I started on Gabapentin (Neurontin) at bedtime which has helped my sleep. I am also now off all blood pressure medications and my blood pressure is normal again. I have perplexed my doctors. Seeking any insight here. I am beyond frustrated. Not even sure if the Blood Pressure issues and meds caused this or just coincidence in timing. Seems I have some sort of internal tremors but no tests show why yet.

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nikki12241973 | @nikki12241973 | Dec 15, 2022
In reply to @amesmassage "I would highly recommend you go to a Mayo Clinic near you if possible! They use..." + (show)
@amesmassage

I would highly recommend you go to a Mayo Clinic near you if possible! They use a team approach to get down to a diagnosis!
I had gone to 7 neurogists seeking a diagnosis and got different diagnoses and was prescribed different medications, but kept getting sicker.
I got into a physical therapist who said i needed to go to Mayo, so she called my Primary Care Physician, and the two of them both wrote letters to get me in.
Within 2 days i had a CORRECT diagnosis and was given a prescription that IMMEDIATELY made me feel better!!!

Jump to this post

What did they diagnose you with? I feel like my head is shaking all the time.

REPLY
curtz316 | @curtz316 | Dec 22, 2022
In reply to @amesmassage "I would highly recommend you go to a Mayo Clinic near you if possible! They use..." + (show)
@amesmassage

I would highly recommend you go to a Mayo Clinic near you if possible! They use a team approach to get down to a diagnosis!
I had gone to 7 neurogists seeking a diagnosis and got different diagnoses and was prescribed different medications, but kept getting sicker.
I got into a physical therapist who said i needed to go to Mayo, so she called my Primary Care Physician, and the two of them both wrote letters to get me in.
Within 2 days i had a CORRECT diagnosis and was given a prescription that IMMEDIATELY made me feel better!!!

Jump to this post

Could you please share the dx and rx….

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pacer3702 | @pacer3702 | Dec 22, 2022
In reply to @kevinator "Hi my name is Kevin I have The same symptoms you are describing been to eeg,..." + (show)
@kevinator

Hi my name is Kevin I have The same symptoms you are describing been to eeg, sleep study, I am waiting for an MRI . I have had several visits to er for hypothyroidism problems maybe unrelated. However shorty after getting the 3rd booster and contacting Covid I have developed these weird internal vibrations that come and go. My wife can feel them on the back of my neck and on my chest. I feel them in my mid section and in my head. Some days are really bad. I can barely stand them.☹️
Most of the time it happens when I try to sleep or shortly after waking up. My doctor put me on jamp quetiapine 50 mg. Some days it doesn’t help me at all.
I think it’s the same thing Heidi Ferrer had.
I also heard of this happening to another guy similar age to me 55, but he said he didn’t get Covid and that it happened a couple of months after the booster shot.
I was completely fine before this pandemic thing!
Can anyone help me

Jump to this post

You may benefit from joining the Neuro V Long-Haulers Facebook group. There are many vaccine-injured patients reporting tinnitus and internal vibration sensations. This group has been a tremendous source of information and support for me. I developed sensory and motor peripheral neuropathy after the Pfizer vaccine.

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irr4et | @irr4et | Dec 24, 2022

I have advanced Fibromyalgia and have internal vibrations and tinnitus. But I did get the four vaccine boosters and the vibrations and tinnitus may have been due to them.

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Jacki | @jaxtapoze | Dec 25, 2022

You might want to contact your Doctor about this.

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1 reply
7881188 | @7881188 | Dec 25, 2022
In reply to @jaxtapoze "You might want to contact your Doctor about this." + (show)
@jaxtapoze

You might want to contact your Doctor about this.

Jump to this post

I told a neurologist about my interior vibrations and she has never heard of it, nor offer any advice!

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1 reply
Jacki | @jaxtapoze | Dec 25, 2022
In reply to @7881188 "I told a neurologist about my interior vibrations and she has never heard of it, nor..." + (show)
@7881188

I told a neurologist about my interior vibrations and she has never heard of it, nor offer any advice!

Jump to this post

I am SO sorry! I have extra neuropathic problems since having long Covid and it’s depressing on another level. Hang in there, find another doctor? There’s always someone on here for ya! Merry Christmas 🎄

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1 reply
7881188 | @7881188 | Dec 25, 2022
In reply to @jaxtapoze "I am SO sorry! I have extra neuropathic problems since having long Covid and it’s depressing..." + (show)
@jaxtapoze

I am SO sorry! I have extra neuropathic problems since having long Covid and it’s depressing on another level. Hang in there, find another doctor? There’s always someone on here for ya! Merry Christmas 🎄

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Thanks…as long as the buzzing is not painful, I’m fine with them! But if this continues on and on or becomes painful or just really really annoying, then I’ll find another doctor.

Thanks again for your reply.

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seezlabar | @seezlabar | Jan 6, 2023
In reply to @colleenyoung "I see you posted a new discussion about Duloxetine and got some answers here: - What..." + (show)
@colleenyoung

I see you posted a new discussion about Duloxetine and got some answers here:
- What was your experience with duloxetine (US Brand Name; Cymbalta)? https://connect.mayoclinic.org/discussion/duloxetine-us-brand-name-cymbalta/

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I made an account just to post on here because I experience the same thing…

I first encountered internal tremors + tinnitus when I was taking cymbalta and oxycodone but the tremors would start when if I smoked marijuana. Even a very small amount.

Now I’m on lexapro and the same thing happens. It only happens when I smoke marijuana. I only very recently realized that this is what was causing it and cut it out completely and it happens significantly less.

It is a frightening feeling the tremors and tinnitus. It’s exactly as you describe. It feels like I’m going to have a seizure, or like I am having one honestly.

The guess I had for myself was possible serotonin syndrome or at the least elevated levels of serotonin.

My brain rumbles (which also feel like “brain zaps’ except continuous, buzzing) come in varying intensities.

It’s low in intensity for a few seconds, then as if someone is smashing on a gas pedal, it cranks up in intensity for another few seconds, and it reduces back to low and then it repeats in this sequence.

At first I thought perhaps I was having anxiety instead of tremors, but my teeth would chatter because of them. And I, like you, feel it in my chest and abdomen. It’s an “internal tremor” for me. You can’t see me physically shaking.

My next step was to see a neurologist too. Now I’m unsure. I scheduled an appointment with my GP
so I could get the referral.

I just feel off. Even when I’m not smoking marijuana, I feel off. The tremors do subside when I’m not smoking but I have noticed them while sober as well. Usually when waking up or when going to sleep. And it’s typically followed by sleep paralysis.

Oddly enough this same “brain rumbling” & tinnitus that I’m having while awake is the EXACT thing I also experience while actually in sleep paralysis itself. Even the sequence of strong intensity, then low intensity.

So, I really don’t know what any of this means at all, but this is my experience. I’m absolutely puzzled by it all.

Weird stuff. :/

Best of luck to you.

REPLY
1 reply
sharing | @sharing | Jan 6, 2023
In reply to @seezlabar "I made an account just to post on here because I experience the same thing… I..." + (show)
@seezlabar

I made an account just to post on here because I experience the same thing…

I first encountered internal tremors + tinnitus when I was taking cymbalta and oxycodone but the tremors would start when if I smoked marijuana. Even a very small amount.

Now I’m on lexapro and the same thing happens. It only happens when I smoke marijuana. I only very recently realized that this is what was causing it and cut it out completely and it happens significantly less.

It is a frightening feeling the tremors and tinnitus. It’s exactly as you describe. It feels like I’m going to have a seizure, or like I am having one honestly.

The guess I had for myself was possible serotonin syndrome or at the least elevated levels of serotonin.

My brain rumbles (which also feel like “brain zaps’ except continuous, buzzing) come in varying intensities.

It’s low in intensity for a few seconds, then as if someone is smashing on a gas pedal, it cranks up in intensity for another few seconds, and it reduces back to low and then it repeats in this sequence.

At first I thought perhaps I was having anxiety instead of tremors, but my teeth would chatter because of them. And I, like you, feel it in my chest and abdomen. It’s an “internal tremor” for me. You can’t see me physically shaking.

My next step was to see a neurologist too. Now I’m unsure. I scheduled an appointment with my GP
so I could get the referral.

I just feel off. Even when I’m not smoking marijuana, I feel off. The tremors do subside when I’m not smoking but I have noticed them while sober as well. Usually when waking up or when going to sleep. And it’s typically followed by sleep paralysis.

Oddly enough this same “brain rumbling” & tinnitus that I’m having while awake is the EXACT thing I also experience while actually in sleep paralysis itself. Even the sequence of strong intensity, then low intensity.

So, I really don’t know what any of this means at all, but this is my experience. I’m absolutely puzzled by it all.

Weird stuff. :/

Best of luck to you.

Jump to this post

Have you had a ANA done? Over the years I’ve had every weird health issues. If they knew or thought it possible, I should have been tested but we’re talking mostly from age 10 on up. They kept sending me to the school psychiatrist and in general, nobody knew what to do with me. I stopped trying to explain years ago. HOWEVER BEFORE I DIGRESS, have you been tested for autoimmune diseases?

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