Internal Body Tremors and Tinnitus

Posted by kkinsley @kkinsley, Jun 29 7:59pm

I am a 47 year old female who has been in very good health most of my life. I work out daily. In January I had sudden elevated blood pressure and feelings of heart racing/palpitations. I was put on 25 mg of Losartan. An Echo and 7 day heart monitor were normal. 3 weeks into taking the medication, I developed ear ringing and feeling shaky. I was switched to Coreg (beta blocker) to see if symptoms improve.

Symptoms progressed to feelings of internal head vibrations/quivering and sometimes into chest and abdomen as well as a feeling of shakiness in my limbs off and on. I had a CT Scan and MRI as well as lots of blood tests including checking thyroid and hormonal/adrenal gland issues. All tests normal. Saw an ENT for the tinnitus and also tell me everything looks normal. Only reference in MRI was that the bilateral anterior inferior cerebellar arteries are coursing in close proximity to their respective 7th and 8th cranial nerves. Neurologist didn't think symptoms were typical of neurological diseases so these are ruled out for now. He isn't sure but only speculation that it's possible arteries have irritated cranial nerves but had no treatment to recommend. I have days when the head and body vibrations are unbearable and days when they are more manageable.

Sleeping is challenging and I started on Gabapentin (Neurontin) at bedtime which has helped my sleep. I am also now off all blood pressure medications and my blood pressure is normal again. I have perplexed my doctors. Seeking any insight here. I am beyond frustrated. Not even sure if the Blood Pressure issues and meds caused this or just coincidence in timing. Seems I have some sort of internal tremors but no tests show why yet.

Hello @kkinsley, Welcome to Connect, an online community where patients and caregivers share their experiences, find support and exchange information with others. It can be extremely frustrating when you aren't getting much sleep along with your other symptoms and the doctors can't figure it out.

@lacy2 has mentioned internal tremors and tinnitus in another discussion and may have some thoughts on what you are experiencing. You may also be interested in viewing the following discussions while you wait for other members to share their experiences with you.

Tinnitis: https://connect.mayoclinic.org/discussion/tinnitis/
Constant tinnitus: Are there any solutions?: https://connect.mayoclinic.org/discussion/constant-tinnitis/

Have you considered seeking help from a teaching hospital or major health facility like Mayo Clinic? If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

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I would highly recommend you go to a Mayo Clinic near you if possible! They use a team approach to get down to a diagnosis!
I had gone to 7 neurogists seeking a diagnosis and got different diagnoses and was prescribed different medications, but kept getting sicker.
I got into a physical therapist who said i needed to go to Mayo, so she called my Primary Care Physician, and the two of them both wrote letters to get me in.
Within 2 days i had a CORRECT diagnosis and was given a prescription that IMMEDIATELY made me feel better!!!

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@kkinsley
•First I would start with the original issue, before doctors implemented there regimen of medicatIons and tests.

•You say you experienced high blood pressure/heart palpitations out of the blue and you are/were in overall good health.
I am curious if the first physician you saw, asked you anything about your current lifestyle? Any new added external or physical stressors and or how you handle stress in general? Sleep, nutrition etc…

•Later 40’s is a common age for females to start experiencing mild pre menopause symptoms, some of those can be heart palpitations and anxiety type feelings. Did any physician ask/check in on that area?

•High Blood pressure/Heart palpitations can be caused my many things. When someone presents to a doctor and a discussion is not throughly had, often the doctors first response is medications and tests as a precaution and to cover themselves of any liability.
This can in turn raise anxiety levels, which do not help high blood pressure/palpitations at all.

•As far as the MRI- I would trust the Neurologist as they told you it was not to worry about. Those are actually common findings and a radiologist is just doing their job to interpret everything they see on an MRI. Even their verbiage can cause people anxiety.

•Be very cautious on this site, to allow others to lead you down a path of making you more worrisome and unnecessary rabbit holes.

•In my opinion, it sounds like you were very healthy. Experienced an odd sensation, that was probably natural to timing in life or stressors. The doctors visits added or started something that was never there to begin with. ALL medications have some kind of side effect.

•Work with someone to get your body back in balance and back to its homeostatic state. And reduce the stress this has brought on you.

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@nrd1

@kkinsley
•First I would start with the original issue, before doctors implemented there regimen of medicatIons and tests.

•You say you experienced high blood pressure/heart palpitations out of the blue and you are/were in overall good health.
I am curious if the first physician you saw, asked you anything about your current lifestyle? Any new added external or physical stressors and or how you handle stress in general? Sleep, nutrition etc…

•Later 40’s is a common age for females to start experiencing mild pre menopause symptoms, some of those can be heart palpitations and anxiety type feelings. Did any physician ask/check in on that area?

•High Blood pressure/Heart palpitations can be caused my many things. When someone presents to a doctor and a discussion is not throughly had, often the doctors first response is medications and tests as a precaution and to cover themselves of any liability.
This can in turn raise anxiety levels, which do not help high blood pressure/palpitations at all.

•As far as the MRI- I would trust the Neurologist as they told you it was not to worry about. Those are actually common findings and a radiologist is just doing their job to interpret everything they see on an MRI. Even their verbiage can cause people anxiety.

•Be very cautious on this site, to allow others to lead you down a path of making you more worrisome and unnecessary rabbit holes.

•In my opinion, it sounds like you were very healthy. Experienced an odd sensation, that was probably natural to timing in life or stressors. The doctors visits added or started something that was never there to begin with. ALL medications have some kind of side effect.

•Work with someone to get your body back in balance and back to its homeostatic state. And reduce the stress this has brought on you.

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@nrd1 Thank you for your thoughtful response. I totally agree that the ongoing tests and medications started an unneeded spiral of worry. That is why I went off all the blood pressure medications, perhaps after it did some unwanted damage to my body, because I felt that they weren't really needed. I have also been in perimenopause for almost 3 years so did wonder about hormonal changes causing the palpitations. This was not explored sufficiently by my doctor other than doing some basic hormonal blood tests. I am not working with my ongoing workout activity, healthy eating and supplements to return to my homeostatic state. I will say, however, I do believe I have some nerve/nervous system issue caused by something because of the way the internal vibrations/tremors present. I continue to return to the neurologist to try to determine how to resolve these or perhaps over time they will go away. I am now over 2 months off all medications.

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@amesmassage

I would highly recommend you go to a Mayo Clinic near you if possible! They use a team approach to get down to a diagnosis!
I had gone to 7 neurogists seeking a diagnosis and got different diagnoses and was prescribed different medications, but kept getting sicker.
I got into a physical therapist who said i needed to go to Mayo, so she called my Primary Care Physician, and the two of them both wrote letters to get me in.
Within 2 days i had a CORRECT diagnosis and was given a prescription that IMMEDIATELY made me feel better!!!

Jump to this post

I have the same symptoms
What was your diagnosis and what were the meds?
I’ve been to three neurologist and pt and primary care Dr
This is a mystery to them . None of the meds work that they prescribed. At wits end
Maybe you can help me

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@mj953

I have the same symptoms
What was your diagnosis and what were the meds?
I’ve been to three neurologist and pt and primary care Dr
This is a mystery to them . None of the meds work that they prescribed. At wits end
Maybe you can help me

Jump to this post

HI MJ, you can read more about @amesmassage's diagnosis and treatment in this post https://connect.mayoclinic.org/comment/613758/. I'm sure she will also join in to share more too.

MJ, keep asking questions. Are you able to go to a large medical center like Mayo Clinic?

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@colleenyoung

HI MJ, you can read more about @amesmassage's diagnosis and treatment in this post https://connect.mayoclinic.org/comment/613758/. I'm sure she will also join in to share more too.

MJ, keep asking questions. Are you able to go to a large medical center like Mayo Clinic?

Jump to this post

Thx
Im not to sure howto use this blog. My Doctor suggested he wants me to go to University of Pennsylvania . Im in NJ so I cant travel to Florida Mayo right now. Too expensive.

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@colleenyoung

HI MJ, you can read more about @amesmassage's diagnosis and treatment in this post https://connect.mayoclinic.org/comment/613758/. I'm sure she will also join in to share more too.

MJ, keep asking questions. Are you able to go to a large medical center like Mayo Clinic?

Jump to this post

I followed this link but its not what I asked nbout . Wrong person?

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@mj953

I followed this link but its not what I asked nbout . Wrong person?

Jump to this post

The message was meant for you, but perhaps I misunderstood your question.

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@mj953

I have the same symptoms
What was your diagnosis and what were the meds?
I’ve been to three neurologist and pt and primary care Dr
This is a mystery to them . None of the meds work that they prescribed. At wits end
Maybe you can help me

Jump to this post

MJ, not sure if your question and post is directed to me from my post about internal body tremors and tinnitus? But, I do not have a diagnosis yet. I am still working with my neurologist to try to understand what is going on.

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@mj953

Thx
Im not to sure howto use this blog. My Doctor suggested he wants me to go to University of Pennsylvania . Im in NJ so I cant travel to Florida Mayo right now. Too expensive.

Jump to this post

MJ, you can learn more about how to navigate Mayo Clinic Connect here: https://connect.mayoclinic.org/get-started-on-connect/

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Hi,
I've had tinnitus since I was about 17. It's been getting louder in the past few weeks. I didn't connect it to the vibrations which I have now.They go from barely noticeable to 'have hardly any hand control' and I notice that them bottom lip will vibrate a bit. With the sports minerals I go to sleep w/o vibrations but have them in the AM.. You mentioned Neurotin. Monday I asked my Dr if she had anything that's not Ambien (messed with my mind – won't take it). She said no. Now I'll ask her about it specifically. Is it a mind-altering drug?
Thanks for the info.
Marko82

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