Grover's Disease: What works to help find relief?

Hello, @kbhga74. Welcome to Connect. As you can see.....we believe that sharing with other members on this forum is one way to learn more about the condition you have and that's great. What else you will learn as I have is that not every medication or treatment works for everyone.

I had two years of pretty disheartening neuropathic itch during which I frequently went under the light for therapy to relieve all of the itching remains and help heal the open wounds from scratching. It provided some relief....kind of the way your skin feels after being in sunlight. I am concerned about the tanning bed because it is not monitored by a dermatologist or other clinician. The machines are set precisely to manage the treatment time in a graduated course. However, the maximum I reached after four weeks was about 3 minutes. Also, it is important to know that clinical light therapy booths are 360 degrees. That means your entire body is treated at the same time. The staff is also very aware of planning the session to avoid in threat of skin cancer.

Another item you may want to explore is Dermeleve. An OTC, It is available online at http://www.dermeleve.com. The ointment, Dermeleve, is my emergency product. It brings relief in 10-15 minutes and lasts about 6 hours.....time enough to find your medicine that lasts longer.

My other pass-through to you is a product named Dupixent. I waited two years to be approved for Dupixent. It is for an itch that comes from within your body.....not from the wool sweater you just wore for the first time. I do self-injections every two weeks and I will honestly say that I have not had any itching since I started Dupixent. My arms, legs, face, and other skin areas are looking better than they have in several years.

I also have gone through tubes of expensive Rx ointments. Please be careful as some are strong steroids that present other problems. They can cause your skin to become thin and you may be restricted to usage only ever two or three days. Dupixent is steroid free and so is Dermeleve.

How long have you been suffering from this disease? Do you see a specialist at this time?

May you be free of suffering and the causes of suffering.
Chris

An oral steroid will stop it, but it WILL return when the steroid is discontinued, which it must. Plus, they make most people hungry and cause weight gain. Those are the least of a long list of nasty side effects. Most derms will reserve steroids for extreme flare-ups.

I know that Prednisone is a short term fix, but can you share any knowledge or personal experience that you may have of it's hazards and if it's possible that it may halt the Grover's, at least for a while, after stopping. So far it's been the only way I've gotten complete relief. Clobetasol, a topical and also very strong, offers some relief. I've never had a remission in a year and have severely damaged my skin, so at least for now on the Prednisone I'm healing and not itching.

I know that Prednisone is a short term fix, but can you share any knowledge or personal experience that you may have of it's hazards and if it's possible that it may halt the Grover's, at least for a while, after stopping. So far it's been the only way I've gotten complete relief. Clobetasol, a topical and also very strong, offers some relief. I've never had a remission in a year and have severely damaged my skin, so at least for now on the Prednisone I'm healing and not itching.

I am just ending my third round of Prednisone for this year, and this time it has not started to come back and it’s been 3 days since the last pill, my lesions look the best they ever have are now flat and a lighter color and no itching, although I am still applying the Avene cream after a semi warm shower, I am hopeful that it is on its way out. I finally see my dermatologist on Dec 2nd, so we’ll see what she says.

First time post here. I've read many of the insightful comments and truly appreciate all of the details that have been shared. I've had Grover's for nearly two years, seen a top-notch mercury poisoning expert in NYC, and found no relief in using prescriptions that chelate mercury and other metals. I've been consuming the cilantro/chlorella smoothies for about a month without much of a noticeable change in my GD so far but I will keep up with the smoothies for more months.

Question: has anyone performed an analysis of their gut microbiome via stool tests and found dysbiotic bacteria present? I have and discovered harmful bacteria present that may be a contributing factor to my GD. I'll be working with a naturopath to treat the dysbiosis. Any comments about your experiences with gut health are welcome.

Also - I'm on a zero gluten, low-starch, low-carb diet. I've been strict about it too.

I have had great success getting rid of rash and itch with a prescription for Triamcinolone Aceetonide Cream USP, 0.1%. Use twice a day and stop eating fish.

I know that Prednisone is a short term fix, but can you share any knowledge or personal experience that you may have of it's hazards and if it's possible that it may halt the Grover's, at least for a while, after stopping. So far it's been the only way I've gotten complete relief. Clobetasol, a topical and also very strong, offers some relief. I've never had a remission in a year and have severely damaged my skin, so at least for now on the Prednisone I'm healing and not itching.