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Grover's Disease: What works to help find relief?

Skin Health | Last Active: Mar 17 1:04pm | Replies (1921)

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@sophiep

I know that Prednisone is a short term fix, but can you share any knowledge or personal experience that you may have of it's hazards and if it's possible that it may halt the Grover's, at least for a while, after stopping. So far it's been the only way I've gotten complete relief. Clobetasol, a topical and also very strong, offers some relief. I've never had a remission in a year and have severely damaged my skin, so at least for now on the Prednisone I'm healing and not itching.

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Replies to "I know that Prednisone is a short term fix, but can you share any knowledge or..."

I'm not the right person for this question. I subdued mine in an odd sort of way that many people would not be willing to try. I sleep in our guest bedroom in a hammock. It keeps my back cool, even cold, all night long. Antihistamine also helped. That said, it sounds like you're on the right track with the prednisone. You got to get relief however you can find it.

Prednisone worked well for me temporarily, but it shot my blood glucose way up, so much so that I was put on Metformin—a Diabetes medication.

I've been in photo (light) therapy for years now, and it has remained in remission. I was originally diagnosed with Grover’s in 1976. photo therapy and Prednisone both work for me, but Prednisone’s has side effects that I don’t want.

What dose of prednisone are you doing? When my symptoms first started with spreading rash and itching my MD had me try Medrol 4 MG which did nothing so was referred to dermatologist. Two different dermatologists so far and I seem to know more about GD than they do. 🤷🏼‍♀️ Thank you!