Grover's Disease: What works to help find relief?

I'm new here and new diagnosis as of yesterday. Had what was assumed to be a scabies infestation late January, though the rash began mid December. Back then I worried it was bed bugs from travelling but they were ruled out as were fleas, my next worry. By the time I went to the doctor it was inflamed and intensely, painfully itchy spots from my neck to my knees. I was treated for scabies without mites actually checked for so it may have been Grovers from the start. I was given Permethrin cream twice then ivermectin a long with steroids and it seemed to improve but came back quickly. Punch biopsy led to the diagnosis and now I'm seeking advice on managing it till it hopefully resolves

Suggest you might review entries here for last several years and find what has given some relief to others. Hope you may find help (less side effects).

There’s a Facebook page called Grover’s disease support group that has a lot of helpful information. For many people, avoiding triggers (heat, sweating, friction) and an anti-inflammatory diet have helped. I’ve read that some people have all so had Success with dupixnet but it is expensive and often not covered by insurance. It seems people do a lot of trial and error with different medications until they find their groove. Good luck!

Grover's is doubly aggravating under the breasts because the area tends to be moist. The first line of defense therefore is to do your best to keep it dry. This can be accomplished with Gold Bond medicated powder or with a product that contains zinc oxide such as Destin ointment or paste. I also had luck with another Gold Bond product: a roll on called Friction Defense.

Just found this post. Has the Miracle Oil creme continued to work for you?

Had a very similar experience and have tried multiple treatments . Some give short term relief. Now on acitretin (low dose) pregabalin and have done a course of phototherapy. My back is not clearing but elsewhere much better. Definitely look up the Facebook group ,has been so helpfull and Brian Lewis very knowlegable.

Acitretin worked well for me until my liver counts started to climb to 5 times what they should be. I got off it for a year and am considering going back on for a while due to the recent breakout that I have had. Just started using some cream specific to eczema to see if that will help.

Some people find the taste of cilantro very unpleasant. It's a genetic trait a lot of people I know have. I'm lucky. It's one if my favorite herbs and use it frequently. However, I'm not sure it had anything to do with keeping Grover's away, but for now it's clear. The Moderna covid vaccine triggered my last outbreak.

Like you I don't find cilantro unpleasant at all and have begun adding it to my salads and in place of lettuce on sandwiches. I am not familiar with this herb enough to know if the tiny black specks , that I see so much , are insect damage or if it's going bad. It's very fragile and I wash it thoroughly, let dry on paper towels and store loosely in plastic bag in the refrigerator. I haven't started freezing it yet since I try eat it within two days after its been washed and don't do the smoothie routine that many suggest. . Do you see anything like that on yours , the tiny dark specks? Since specks have tiny holes too, I thought it might be insect damage. Any ideas?

Good afternoon. I was reading that the cilantro smoothies helped with your Grovers disease. I was diagnosed with GD four weeks ago and wanted to know if you could send me the recipe for the cilantro smoothies. Thank you so much.