Post-Covid dizziness/off-balance, as most troubling symptom

I'm new to this thread and reading the posts. I'll try to cram the timeline and my personal storyline in here as briefly as possible, but hopefully someone here can help in support. I got covid in late November 2020 (lost sense of taste and smell with nothing out of the ordinary). Fast forward a year later to November of 2021, and out-of-the- blue my right eye started twitching, followed by muscle twitching in my right arm, and then eventually all over my body which basically hasn't stopped. I then started experiencing heavy/dizzy/leaning feeling all the time and when walking, along with feeling fatigued and an abnormal feeling in my gait. I also experienced these weird internal vibrations while laying down at night, but mostly when I woke up in the morning. It was nothing that I have ever felt before in my life. I was finally able to get an MRI to scan for lesions on my brain and then met with my neurologist in January of 2022. The first MRI of my brain and top area of my neck came back normal and unremarkable. My neurologist then completed the EMG test and then another MRI, this time of my upper spine/cervical neck area. Both tests came back as normal. The Neurologist ruled out the scary ALS and stated she didn't think it was MS either. Though the tests all came back clear (which is a relief to negate the scary stuff), these symptoms, unfortunately, persist but with less internal vibrations interestingly enough. I still to this day have the heaviness and the "weighted down" feeling, as well as muscle twitches everywhere and wavy ripple-like muscle twitches in my legs. I have fatigue and especially in my right hand/arm when picking stuff up. I do plan to go back to the neurologist and re-test with an EMG, just to make sure muscle/nerves haven't degenerated.

For a span of maybe a month or two, these symptoms had lessened, but then have reared its ugly head again the past few weeks. I suppose the good news is that I don't feel I've deteriorated within the last 10/11 months as far as muscle degeneration, worsened fatigue, etc. However, the bad news is, it hasn't "gone away" like what many people have told me. I take magnesium at night, and I think that helps a little with the muscle spasms. If anyone can share their experiences with me and provide possible medications/supplements to help lessen the symptoms, it would be greatly appreciated.

I bad those exact same symptoms. If you read my post, you know that what helped me was sinus medications. However, I failed to mention the EXTREME fatigue that made it so hard to get out of bed in the mornings and the all-over weakness, tingling, and sometimes numbness. Since I began the sinus med regimen, the fatigue is all but gone! The tingling persists, but I can deal with it because I no longer feel such a terrible abnormal brain fog and intense vertigo (floor "tilted", hallway "moving", etc). Try Zyrtec, Flonase, and NeilMed sinus rinses daily. (Or generics, of course.) Maybe that will help you like it helped me. However, I will say, the two prescription meds helped the most: Singulair (montelukast) & Azelistine/Asteline.

I dealt with my symptoms for 14 months before I saw a HUGE improvement after starting those sinus meds.

Good luck to you!

I bad those exact same symptoms. If you read my post, you know that what helped me was sinus medications. However, I failed to mention the EXTREME fatigue that made it so hard to get out of bed in the mornings and the all-over weakness, tingling, and sometimes numbness. Since I began the sinus med regimen, the fatigue is all but gone! The tingling persists, but I can deal with it because I no longer feel such a terrible abnormal brain fog and intense vertigo (floor "tilted", hallway "moving", etc). Try Zyrtec, Flonase, and NeilMed sinus rinses daily. (Or generics, of course.) Maybe that will help you like it helped me. However, I will say, the two prescription meds helped the most: Singulair (montelukast) & Azelistine/Asteline.

I dealt with my symptoms for 14 months before I saw a HUGE improvement after starting those sinus meds.

Good luck to you!

The very first night I took the montelukast pill, I slept like a log and did not breathe with my mouth open which I've done since I was a teenager). I was breathing through my nose all night long and woke up so refreshed! Within 2 weeks of starting the montelukast & cetirizine pills (1 each at bedtime), I had regained my speed of walking to a normal pace ... after 13 months of walking like a 90-year-old zombie wearing lead boots in the mud!

My vision was still "off". I didn't see correctly. Everything still LOOKED wrong to me. I was walking faster and appearing more normal outwardly, but inside my own head, things were not right yet. I was still having such vertigo, especially when I would walk into stores where there are fluorescent lights, reflective white tile floors, and so much visiual stimuli as I looked up and down aisles and shelves. When I explained this to my immunologist, he added that 2nd nasal spray (Azelistine / asteline). It took about 1-2 weeks of taking this before I started to come out of my nearly 14-month covid brain fog/vertigo/weird vision symptoms. Then, I finally began FEELING almost like my old self again! I can now go into stores without feeling so exhausted, or getting tremors, or getting hit with such horrible vertigo that I have trouble looking from my grocery cart to the checkout while I load my groceries.

Here is my daily regimen:
In the morning, I use my OTC NeilMed sinus rinse. Then, I use 2 sprays in each nostril of the Azelistine (Rx). After work, I use 2 sprays in each nostril of OTC fluticasone (Flonase). At bedtime, I use 2 sprays in each nostril of the Azelistine again. And I take my two pills: one OTC cetirizine (Zyrtec) and one Rx montelukast (Singulair).

I hope that helps you like it has helped me!

Does your dizziness get triggered by any movements or activity? Mine typically just comes out of nowhere. I can have my eyes closed or open, laying down or sitting up, no rhyme or reason. It sometimes feels like my brain is shaking or unstable. Can anyone relate to that description?

I'm new to this thread and reading the posts. I'll try to cram the timeline and my personal storyline in here as briefly as possible, but hopefully someone here can help in support. I got covid in late November 2020 (lost sense of taste and smell with nothing out of the ordinary). Fast forward a year later to November of 2021, and out-of-the- blue my right eye started twitching, followed by muscle twitching in my right arm, and then eventually all over my body which basically hasn't stopped. I then started experiencing heavy/dizzy/leaning feeling all the time and when walking, along with feeling fatigued and an abnormal feeling in my gait. I also experienced these weird internal vibrations while laying down at night, but mostly when I woke up in the morning. It was nothing that I have ever felt before in my life. I was finally able to get an MRI to scan for lesions on my brain and then met with my neurologist in January of 2022. The first MRI of my brain and top area of my neck came back normal and unremarkable. My neurologist then completed the EMG test and then another MRI, this time of my upper spine/cervical neck area. Both tests came back as normal. The Neurologist ruled out the scary ALS and stated she didn't think it was MS either. Though the tests all came back clear (which is a relief to negate the scary stuff), these symptoms, unfortunately, persist but with less internal vibrations interestingly enough. I still to this day have the heaviness and the "weighted down" feeling, as well as muscle twitches everywhere and wavy ripple-like muscle twitches in my legs. I have fatigue and especially in my right hand/arm when picking stuff up. I do plan to go back to the neurologist and re-test with an EMG, just to make sure muscle/nerves haven't degenerated.

For a span of maybe a month or two, these symptoms had lessened, but then have reared its ugly head again the past few weeks. I suppose the good news is that I don't feel I've deteriorated within the last 10/11 months as far as muscle degeneration, worsened fatigue, etc. However, the bad news is, it hasn't "gone away" like what many people have told me. I take magnesium at night, and I think that helps a little with the muscle spasms. If anyone can share their experiences with me and provide possible medications/supplements to help lessen the symptoms, it would be greatly appreciated.