High calcium score: I'm in shock

Posted by sjy70 @sjy70, Jun 14, 2021

Hi everyone... just wanted to share my last few days - I'm scared and lost and was just hoping to hear from some people who have been in my place. Long story short - I went in for a "routine" checkup at age 50 to make sure my heart was okay. I had a stress test two years ago that was fine. But I do have a family history, and somewhat high LDL and blood pressure so the doctor sent me for a cardiac calcium score. It came back at 407 at age 50!!! That's like the 98th percentile for my age, which is shocking. I do Crossfit and have done half marathons so it was totally unexpected. Now I'm going for another stress test in two weeks to make sure no blockages are over 70%, and I'm not sure of the steps after that.... I'm terrified of needing open heart surgery - I've gotten myself into a place of being okay with a stent if needed. I know it's better to know than not know, but I just feel like my life was suddenly ripped out from under me and to be honest I'm spinning right now... every waking second I feel like I'm going to drop over..

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

@whineboy

Hi OP, there is a lot of good advice here. I know how you must feel about the CAC score, it's a shock to get a high one. After my latest I spent weeks walking around feeling like I could keel over at any minute.
I'm 59 and my CAC score was 1124 in April 2021. I've been on rosuvastatin/Crestore for many years but ate an unhealthy Standard American Diet and had a high-stress job. Since late 2018 I have been eating a low-carb, healthy fat diet, and have sustained a 50 lb. weight loss on a husky 5'7" frame, I'm 175 lbs. I walk 3-5 miles a day, briskly, and do tension band exercises every other day. I'm semi-retired (part-time jobs).
Whether you eat plant-based, LCHF or Keto, I think it's important to avoid processed carbs and added sugar, they lead to metabolic syndrome which ties to heart disease. You want to be insulin sensitive. All of these ways of eating can help you achieve a good triglycerides/HDL ratio (ideally less than 1.5 if calculated using mg/dl measurements).
Something to keep in mind is that statins may be linked to elevated CAC scores.
Also, I have heard K2 works best with sufficient magnesium (I supplement).
You may want to check out Yuri Granik's high CAC score Facebook group, it's where I learn a lot of this stuff (private group, you have to apply to membership and provide your test scores).
And - lastly - high cholesterol is not itself necessarily bad, nor is high LDL. It's the type of LDL (either fluffy buoyant or hard and dense, the latter being the bad type). That can be changed by diet and lifestyle. I recommend you get an advanced lipid panel with NMR fractionation, it will tell you more about the makeup of your blood lipids and better help you assess your risk.
Stay well..

Jump to this post

I used to go to Dr, Agotston when I lived closer to his office. He 'invented' the calcium score aka the Agotston Test. I had and have high cholesterol and cannot tolerate statins. But a comprehensive cardio blood workup showed that my body makes a healthy amount of the "large molecule big, fluffy, non-sticky" cholesterol" which, according to him, helped explain my calcium score of zero at the time. [It rose to 4 over seven subsequent years.] Thr good news is that, if ones body doesn't naturally produce a lot of the large molecule cholesterol, it's since been shown that exercise does increase production of it.

REPLY

I come to this thread every once in a while. Was wondering if you all can participate in https://www.facebook.com/groups/cacgranik which is Facebook Coronary Artery Calcification group. I am not a salesperson for this group. However, there are many experts and the group is very lively, 10's of posts per day. The administrator is VERY informed about heart, CAC Score, nutrients, more. It is by invitation only, but if CAC Score is of concern, you'll be accepted. Every day, the admin posts multiple scholarly articles, and there is a Guide section with lots of spreadsheets that spell out lab tests, supplements, other people's scores, analysis, forecasting upcoming developments. You will find me there as BTL Atlantic. I hope to see you there. Once this referral is done, I'll find some time to post, here, my latest. Soon .....

REPLY
@helpfull

I come to this thread every once in a while. Was wondering if you all can participate in https://www.facebook.com/groups/cacgranik which is Facebook Coronary Artery Calcification group. I am not a salesperson for this group. However, there are many experts and the group is very lively, 10's of posts per day. The administrator is VERY informed about heart, CAC Score, nutrients, more. It is by invitation only, but if CAC Score is of concern, you'll be accepted. Every day, the admin posts multiple scholarly articles, and there is a Guide section with lots of spreadsheets that spell out lab tests, supplements, other people's scores, analysis, forecasting upcoming developments. You will find me there as BTL Atlantic. I hope to see you there. Once this referral is done, I'll find some time to post, here, my latest. Soon .....

Jump to this post

It's a great group, I'm a member. Many people there question the statin/aspirin/low fat/low LDL orthodoxy. I'm one of them.

REPLY
@anniehall56

I have a 255 CAC score - just found out six months ago after some blood tests that showed high glucose, high cholesterol/LDL, and a terrible family history of heart disease- and also passed a stress test and told I had no blockages. I decided I should have a CT angiogram (non-invasive X-Ray of the arteries) to make sure which came back a couple of days ago that I have an approximate 50 percent blockage in my LAD. The cardiologist also ran a blood flow test (FFRct) and it showed restricted blood flow in that area. I will be seeing the cardiologist at UCLA tomorrow to go over what this all means but I'm glad I went beyond my standard of care cardiologist who told me I was fine after the stress test and instead, saw a research cardiologist who specialized in CAC.

Jump to this post

Hello @anniehall56

It has been several months since you last posted about your blockage. At that time, you were seeing a research cardiologist who specializes in CAC.

I hope you have found treatment for this heart condition and that you are feeling better now. Could you post an update when it is convenient for you?

REPLY
@whineboy

It's a great group, I'm a member. Many people there question the statin/aspirin/low fat/low LDL orthodoxy. I'm one of them.

Jump to this post

Interesting.

Are you a medical doctor or researcher?

REPLY
@whineboy

It's a great group, I'm a member. Many people there question the statin/aspirin/low fat/low LDL orthodoxy. I'm one of them.

Jump to this post

And, therein is the problem. Unqualified folks questioning medical professionals, anti-statin, anti-medicine comments are common on the CAC fb page. There is very little policing, few practicing doctor inputs, many who want to discuss the latest book or podcast by the latest youtube doc - so there are a lot of whacky comments.

REPLY
@mayoconnectuser1

And, therein is the problem. Unqualified folks questioning medical professionals, anti-statin, anti-medicine comments are common on the CAC fb page. There is very little policing, few practicing doctor inputs, many who want to discuss the latest book or podcast by the latest youtube doc - so there are a lot of whacky comments.

Jump to this post

I respectfully disagree that comments from people who are not “medical professionals” but who are touting “ the latest book or podcast by the latest YouTube doc” are whacky.
I’m a registered nurse with a 25-year history of CCICU and SICU experience. That does not make me an MD, but puts me in a position to see the benefits of conventional medicine and it’s failures in this specialty.
I would venture to guess that most people who find their way to this site are not anti-conventional medicine and can think for themselves.
For myself, I explore answers to health issues from a wholistic perspective and I know many doctors who do the same.
I have very high cholesterol and before agreeing to statins I asked for the
CAC and ultrasounds of my carotids and jugular veins. All were perfectly clear. I suspected they would be because decades ago I read an article in the NYTs that the problem with cholesterol may not be the amount of cholesterol but the size. Remembering this, when my cholesterol went up I paid out of pocket to discover the size. They were the large, fluffy kind known not to stick to the arteries.
Now we know of a simple calculation that will indicate the size of your cholesterol:
Divide your triglycerides by your HDL. Lower is better and you want to be below 2 and closer to 1. Mine, with a total cholesterol consistently over 300 is 1 or just below 1.
I offer these comments in the spirit of encouraging people to keep an open mind and in hopes that people will continue to offer information they have come across that they think make sense or would like feedback on.
BTW, I think that Vitamin K2 has played a part in keeping my arteries clear.

REPLY
@kefnb

I respectfully disagree that comments from people who are not “medical professionals” but who are touting “ the latest book or podcast by the latest YouTube doc” are whacky.
I’m a registered nurse with a 25-year history of CCICU and SICU experience. That does not make me an MD, but puts me in a position to see the benefits of conventional medicine and it’s failures in this specialty.
I would venture to guess that most people who find their way to this site are not anti-conventional medicine and can think for themselves.
For myself, I explore answers to health issues from a wholistic perspective and I know many doctors who do the same.
I have very high cholesterol and before agreeing to statins I asked for the
CAC and ultrasounds of my carotids and jugular veins. All were perfectly clear. I suspected they would be because decades ago I read an article in the NYTs that the problem with cholesterol may not be the amount of cholesterol but the size. Remembering this, when my cholesterol went up I paid out of pocket to discover the size. They were the large, fluffy kind known not to stick to the arteries.
Now we know of a simple calculation that will indicate the size of your cholesterol:
Divide your triglycerides by your HDL. Lower is better and you want to be below 2 and closer to 1. Mine, with a total cholesterol consistently over 300 is 1 or just below 1.
I offer these comments in the spirit of encouraging people to keep an open mind and in hopes that people will continue to offer information they have come across that they think make sense or would like feedback on.
BTW, I think that Vitamin K2 has played a part in keeping my arteries clear.

Jump to this post

I would encourage you to join the CAC site mentioned to determine whether many are whacky. Some are very reasonable and consistent, but MANY are grasping at any information that agrees with their beliefs - while, at the same time disparaging medical care by professionals because they believe the medical profession to be owned by the large pharmaceutical companies.

While I appreciate that everyone has an opinion, the constant selling of the latest YouTube doctor, the latest podcast doctor, or the latest book written by one of the aforementioned, was overwhelming. That particular fb group allows unqualified folks to motivate others to do potential damage to themselves.

My personal background is why I started reviewing this topic - 68 yo, 6'1", 200 pounds, eat balanced, don't smoke, walk a lot, very active, a bit high BP (140 ish) managed with irbesartan for 18 years, trig 49 (atovastatin at 65 due to historical BP) , HDL 46, LDL 47, completely asymptomatic - then, CAC score of 1352 (2.5 years ago), consult with cardiologist, stress test with 10.3 METS and 9 Duke scores with no ischemia. Started on icosapent ethyl. Cardiologist, in the absence of symptoms, supports a stress test in another two years, but not concerned, otherwise. Sure, would like to "get to the bottom of this," but on the way there it is confused without an angiogram/angioplasty - a lot of "noise" from folks without medical training or experience. You can sense the frustration 🙂

REPLY
@kefnb

I respectfully disagree that comments from people who are not “medical professionals” but who are touting “ the latest book or podcast by the latest YouTube doc” are whacky.
I’m a registered nurse with a 25-year history of CCICU and SICU experience. That does not make me an MD, but puts me in a position to see the benefits of conventional medicine and it’s failures in this specialty.
I would venture to guess that most people who find their way to this site are not anti-conventional medicine and can think for themselves.
For myself, I explore answers to health issues from a wholistic perspective and I know many doctors who do the same.
I have very high cholesterol and before agreeing to statins I asked for the
CAC and ultrasounds of my carotids and jugular veins. All were perfectly clear. I suspected they would be because decades ago I read an article in the NYTs that the problem with cholesterol may not be the amount of cholesterol but the size. Remembering this, when my cholesterol went up I paid out of pocket to discover the size. They were the large, fluffy kind known not to stick to the arteries.
Now we know of a simple calculation that will indicate the size of your cholesterol:
Divide your triglycerides by your HDL. Lower is better and you want to be below 2 and closer to 1. Mine, with a total cholesterol consistently over 300 is 1 or just below 1.
I offer these comments in the spirit of encouraging people to keep an open mind and in hopes that people will continue to offer information they have come across that they think make sense or would like feedback on.
BTW, I think that Vitamin K2 has played a part in keeping my arteries clear.

Jump to this post

My CAC score decreased from
199 to 18 after I started Vitamin K2 mk7. I have high cholesterol, high LDL, and high HDL. My TG/HDL is 0.9. I don’t like to take statins because they have caused worsening neuropathy in my feet in the past. However, I am back on a very low statin dose because I have soft plaque developing according to a recent CT Angio, and a low carb diet. I need to lose a few pounds.

I order my advanced lipid labs through Ulta Lab Tests. https://www.ultalabtests.com for a big discount. You can shop on their site for discount coupons. They do not bill insurance and you don’t need a doctor’s order in most states. The CardioIQ panels are run at Quest Cleveland Heart Lab. Most doctors are reluctant to order the advanced CardioIQ labs because Medicare and many other insurers won’t pay for them.

The Quest Cardio IQ advanced panels give you a more detailed breakdown of your particle size. I am Pattern A. I order panel 94220 which includes hsCRP.
https://www.questdiagnostics.com/healthcare-professionals/about-our-tests/cardiovascular/cardio-iq-report
This may be a helpful option. I have a strong immune system and LDL plays an importent role in the process. I don’t want my LDL too low and I like the option of monitoring my own lipids. I have been able to order a simple cholesterol panel for $15 with a coupon plus a $8 lab draw fee. I do the more advanced panel once a year, which is more expensive.

REPLY
@janet23

My CAC score decreased from
199 to 18 after I started Vitamin K2 mk7. I have high cholesterol, high LDL, and high HDL. My TG/HDL is 0.9. I don’t like to take statins because they have caused worsening neuropathy in my feet in the past. However, I am back on a very low statin dose because I have soft plaque developing according to a recent CT Angio, and a low carb diet. I need to lose a few pounds.

I order my advanced lipid labs through Ulta Lab Tests. https://www.ultalabtests.com for a big discount. You can shop on their site for discount coupons. They do not bill insurance and you don’t need a doctor’s order in most states. The CardioIQ panels are run at Quest Cleveland Heart Lab. Most doctors are reluctant to order the advanced CardioIQ labs because Medicare and many other insurers won’t pay for them.

The Quest Cardio IQ advanced panels give you a more detailed breakdown of your particle size. I am Pattern A. I order panel 94220 which includes hsCRP.
https://www.questdiagnostics.com/healthcare-professionals/about-our-tests/cardiovascular/cardio-iq-report
This may be a helpful option. I have a strong immune system and LDL plays an importent role in the process. I don’t want my LDL too low and I like the option of monitoring my own lipids. I have been able to order a simple cholesterol panel for $15 with a coupon plus a $8 lab draw fee. I do the more advanced panel once a year, which is more expensive.

Jump to this post

Thank you Janet, that is extremely helpful information. I have in mind a friend who will find the inexpensive lab tests very helpful

REPLY
Please sign in or register to post a reply.