Chronic Pain members - Welcome, please introduce yourself

Yes I can't see that happening to me too. I double mask. I also help my best friend who has Leukemia so I stay masked up in public for him too. I used to smoke but quit when Covid came to town. Good excuse to get rid of a bad habit!
It's too funny waking up with your mask dangling on your chest! I tried a chin strap, lolol, I woke up tearing it off my face. I was having a nightmare because of it! Talk about high BP in the middle of the night!
Are nose pillows itchy?

Hi Laura, really bad that you are still suffering. That's some poop for sure. Does anything help with the headache?

Tried all that. Doesn't work

@cheeps Hi there! You are a young Cheep still to spend too much time in bed. I definitely recommend going back to the Curable App, considering you said it was helpful. May I ask why you discontinued using it? Might you consider one of Mayo Clinic's 3 locations for Pain Rehabilitation? It would be Curable x 1,000%.

I think that we can all agree it sure takes commitment and lifestyle change for living a chronic pain life, but can be done better than most think.

What would you most like to improvement in your current condition?

@loke Your motto is very true! The worse thing we can do is compare. That is dangerous waters and not fair to do to ourselves. I enjoy helping others also, to find positive paths forward and realize life can happen.

It's nice that you like to help others and find answers to questions. Not everyone is good researcher or has the ability to research. Yay, you!!

Hi there @daliea.Welcome to the conversation, glad to have you join us. I'm sorry to hear that you are experiencing neurological difficulties since your illness.

Have you heard of Central Sensitization Syndrome (CSS)? It is a process that can upregulate the central nervous system and peripheral input sensory system causing many of the symptoms you describe.

Here is a discussion about CSS you may be interested in:

- https://connect.mayoclinic.org/discussion/has-anyone-been-diagnosed-with-central-sensitization-if-so-id-like-to/

You may find this video about CSS helpful as well. It's presented by Mayo Clinic's Dr. Sletten. He explains how other diagnosis such as fibromyalgia and neuropathy fall under the CSS umbrella:

- https://www.youtube.com/watch?v=vJNhdnSK3WQ

How long have you been having the symptoms you describe? Are you working with a neurologist or having any testing?

Hi Colleen, thank you for responding to my comment. I never thought I would be in this situation. If I had, I would have taken better care of myself. I guess most of us have regrets and it doesn't help to dwell on them. Thank you for what you do.

Sherry

Thank you for adding me to your group. I’ve had chronic pain since I was dx’ed with fibromyalgia 20 years ago. I also have osteoarthritis, and will have knee replacement surgery in June. I don’t feel sorry for myself because of the pain. I exercise, go for walks, and stay busy. Being active really does help with fighting fibromyalgia pain for me. I am an RN with a hubs and 5 boys. Three are grown and two at home.

Hello everyone,My name is Lorraine I have browsed information on fibromyalgia,MS and Sjogren’s. I was diagnosed with fibromyalgia about thirty five years ago but I did not have any debilitating symptoms.After having a virus the end of February 2020.The virus lasted about one month and I was left with aches and pains and tingling.Now I feel like I am wearing a suit of armor two sizes too small and standing in a camp fire. I really need a diagnosis,May third I have my first appointment with Phsyciatry and hopefully I will eventually have the medical testing to come up with the diagnosis. I will give updates as I get some answers.

Thank you for your welcome and question. The UTI had cleared but the c.dif that followed upon the antibiotic treatment for it is being treated (almost finished and may ask for verification of its being clear); it was a consensus that the epidural be delayed until the c.dif was gone.