Pre -Transplant Diet and Exercise Ideas

Posted by Rosemary, Volunteer Mentor @rosemarya, Jul 23, 2018

Once you find out you need a transplant, you will learn that there are some things that you can do before surgery to ensure that you are prepared.

-If you smoke, you should quit.
-Eat healthy foods like fruits, vegetables, lean protein, and whole grains.
-Exercise to maintain your energy level as you are able.
-Get plenty of rest.

Now..we all know that it is much more difficult to achieve success with our complications….but it is worth it to know it will make life much easier on the other side…and that you gave it your all!

Anyone who wants to share diet and exercise ideas..please do…be creative!

Interested in more discussions like this? Go to the Transplants Support Group.

@kequick

Great topic, Rosemary! Last year we interviewed Heather Bamlet, RDN, LD, transplant clinical dietitian at Mayo Clinic’s campus in Rochester on the topic of weight gain AFTER transplant. She had lots of good tips for getting the scale to go down, and I assume many of these are relevant to patients looking to get healthy before their transplant too.

Cooking and Meal Planning:
-Plan meals ahead of time.
-When designing a meal, follow the MyPlate method.
-Use cooking methods that will keep the foods out of reach for snacking, such as a slow cooker.

Eating:
-Be aware of your portion sizes.
-Eat more fruits and vegetables.
-Choose whole grains, lean meats and low-fat dairy products most often.
-Keep treats like cake, candy, cookies, chips or soda to a minimum.
-If still hungry after meals using the MyPlate method, reach for more fruits and vegetables.
-Make sure you are drinking enough noncaloric fluids.

Exercise:
-Get active. Aim for at least 150 minutes of exercise weekly. It is better to split this up and do at least 20 minutes most days of the week.
-Do weight training. Add this in to boost your muscle mass after your surgeon clears you to do so, since muscle burns more calories at rest than fat does.

Here's the link to the full post: https://connect.mayoclinic.org/newsfeed-post/weight-gain-after-transplant-where-does-it-come-from-and-how-to-get-rid-of-it-2/.

Jump to this post

@jeanne5009 I hope you find a good place for your water aerobics. The health club I go to has such a good group of women (and a few men) that it really helps to make it enjoyable, and most of the instructors are great too. We are considering moving -- downsizing -- and if we do so we could possibly move to a location too far for me to go to this club. If so I hope I can find a comparable one.
Even with your bone spurs and nearly torn achilles, I am sure you will be able to do the water. At my club they very consciously tell you to do what you are able, and to tailor the exercises to your own abilities.
JK

REPLY
@jeanne5009

@rosemarya @colleenyoung
Thanks ladies for helping us discuss how important it is to be in shape for the changing moment of our lives. We will need all of our energy just to get thru the operation!
For me, that was a big wake up call. I somehow...managed to put on 20 lbs in 1 yr after diagnosis of Stage 4 Cirrhosis. I was and still am dead tired...not even able to get out of bed some days. No appetite...didnt even want to see the kitchen let alone go to the food store. As a young woman I was always athletic and active..cheerleader..aerobic dancing instructor...didnt know what a diet was! Suddenly I find myself in strange territory. Some of the answers are there..water retention...portal hypertension and throw in a little HE for fun! So after my evaluation at Mayo Jax...things are changing...
Because each of us has our own special set of complications... ie diabetes, etc. each of us has a different plan of attack.
I am now on the Medditeranean Diet. It's not too hard on me because I always ate pretty healthy food. The water weight was killing me so Im now reading labels and eliminating sugar and salt...best I can. I spent a whole day researching before I even attempted the grocery store. Remember nothing in a box, bag, or can is your friend. Read the labels. Fluids are very difficult for me. I never drank coffee, gave up
beer and soda years ago...not a big fan of water as I don't think it's a good idea to switch around especially when traveling. Thought fruit juice would work ... still too much sugar...switched to lemonade watered down...didnt work. So.....I found bottled water that I add fresh berries or fruit and a pinch of Stevia ...seems to be working. Diuretics were increased and now Im losing weight and have a little more spunk. Exercise is a whole other subject that I will talk about next time I get the motivation to get on here again.
That's part of what I am doing. I cant tell you how important finding motivation is. We each find it differently. We just have to be receptive to desiring to make the effort....
It is worth it...you WILL, of course, make yourself ready for receiving that gift of life. The former owner of my new liver deserves it....
Carry on.....

Jump to this post

@rosemarya
This is the real deal diet. It's not about losing lbs....its all about being healthy when it's my turn. Adaption is regulated by motivation and I have it! I have cut sugar and salt to the bone...I read every label...I stopped drinking juice and lemonade and went to 0 calorie flavored water. Sometimes I add a scant pinch of Stevia and berries. The Medditeranean Diet has enough REAL food that I don't starve and I switch menu plan items around.
I have lost 8 solid Lbs. The Dr. increased my spirolactone too so Im sure that accounts for most of it. I feel better too.
Except...for the bone spurs in both feet ..one with a tiny Achilles tear...Ugh.. Have to wear braces and PT 3 X wk for 1 Mo.
It is what it is...I thought only athletes got this stuff.
Imperative to repair and strenghten for down the road....Feet don't fail me now!!! LOL

REPLY
@kequick

Great topic, Rosemary! Last year we interviewed Heather Bamlet, RDN, LD, transplant clinical dietitian at Mayo Clinic’s campus in Rochester on the topic of weight gain AFTER transplant. She had lots of good tips for getting the scale to go down, and I assume many of these are relevant to patients looking to get healthy before their transplant too.

Cooking and Meal Planning:
-Plan meals ahead of time.
-When designing a meal, follow the MyPlate method.
-Use cooking methods that will keep the foods out of reach for snacking, such as a slow cooker.

Eating:
-Be aware of your portion sizes.
-Eat more fruits and vegetables.
-Choose whole grains, lean meats and low-fat dairy products most often.
-Keep treats like cake, candy, cookies, chips or soda to a minimum.
-If still hungry after meals using the MyPlate method, reach for more fruits and vegetables.
-Make sure you are drinking enough noncaloric fluids.

Exercise:
-Get active. Aim for at least 150 minutes of exercise weekly. It is better to split this up and do at least 20 minutes most days of the week.
-Do weight training. Add this in to boost your muscle mass after your surgeon clears you to do so, since muscle burns more calories at rest than fat does.

Here's the link to the full post: https://connect.mayoclinic.org/newsfeed-post/weight-gain-after-transplant-where-does-it-come-from-and-how-to-get-rid-of-it-2/.

Jump to this post

@contentandwell
I sure hope they don't change your class. That happened to a friend of mine who takes Zumba. She found a new place and likes it even better. I used to teach aerobic dancing classes and it can be great fun! Let us know what happens.

REPLY
@kequick

Great topic, Rosemary! Last year we interviewed Heather Bamlet, RDN, LD, transplant clinical dietitian at Mayo Clinic’s campus in Rochester on the topic of weight gain AFTER transplant. She had lots of good tips for getting the scale to go down, and I assume many of these are relevant to patients looking to get healthy before their transplant too.

Cooking and Meal Planning:
-Plan meals ahead of time.
-When designing a meal, follow the MyPlate method.
-Use cooking methods that will keep the foods out of reach for snacking, such as a slow cooker.

Eating:
-Be aware of your portion sizes.
-Eat more fruits and vegetables.
-Choose whole grains, lean meats and low-fat dairy products most often.
-Keep treats like cake, candy, cookies, chips or soda to a minimum.
-If still hungry after meals using the MyPlate method, reach for more fruits and vegetables.
-Make sure you are drinking enough noncaloric fluids.

Exercise:
-Get active. Aim for at least 150 minutes of exercise weekly. It is better to split this up and do at least 20 minutes most days of the week.
-Do weight training. Add this in to boost your muscle mass after your surgeon clears you to do so, since muscle burns more calories at rest than fat does.

Here's the link to the full post: https://connect.mayoclinic.org/newsfeed-post/weight-gain-after-transplant-where-does-it-come-from-and-how-to-get-rid-of-it-2/.

Jump to this post

@jeanne5009 It's not them changing the class that I am concerned about, it's that if we move and I need to find a new club, will I find one that I like as much as the one I go now. Plus, being in NH, my club is less expensive than many will be if we move to MA. I pay about $70 a month and for the club I go to that is pretty reasonable. All the classes I take are included in that cost.
JK

REPLY

@jeanne5009, How are you feeling? I have so much I want to ask you about: dietary changes, bone spurs, PT, and how you are navigating Florida's Red Tide? I know I am asking for a novel - but I would love to have a glimpse of what's happening with you. Hugs, Rosemary

REPLY

@rosemarya
So many factors not going well. Trying to be positive and it is really getting more difficult. I hate to complain...there are so many more worse than me.
We are dealing in FL with a natural and manmade disaster. Our waters are so polluted that manatees dolphin turtles and all marine life are dying in unheard of numbers. Maggots in the sand...cant wait for the fly invasion..
It is incredibly sad and depressing to see the beauty that we hold on to so dearly to help us through our " tough days" suffocating in front of us. Facebook has enabled us to view this horrific scene like never before. I am working hard writing and calling anyone and everyone who can help. We are in a declared disaster zone which gives us state and federal funds...but it's a drop in the bucket. Politicians are being accused of turning their heads and allowing the poison in Lake Occechobee to be released. This is traveling through the 2 rivers designated to go East to the ocean and West to the Gulf. In the Gulf we have a naturally occuring red tide which is annoying but not as dangerous. Seems this poison from the Lake mixes in the Gulf with the red tide and creates a super bacteria. This is causing all the problems and people are now sick and in the hospital. No end or solution in sight.
I am busy researching the effects on people with liver disease. I will forward any thing I find to you. One study has a an 11 page report that I am studying now. Didn't know I had to add marine biologist to my required degrees! Isn't life fun???
Ok so all of that leads to me. Along with raspy sore throat, violent headaches, itchy runny eyes and more. I went to the Dr. He immediately put me on antibiotics and prednisone in addition to my asthma meds and inhaler. Pneumonia is next and he has 2 patients in the hospital. His practice is very small. I'm doing ok so far....
That is the latest calamity in the Life and Times of Miss Jeanne..lol
Bone spurs are slowly responding to PT 3 xs/wk. I see the Podiatrist next week for further rehab planning. It kills to walk still.
Diet is working. I lost 9 lbs and felt good. I cheated...too much salt..and gained 3 back. So now know what I have to do to feel better. No Salt Salt Salt!
Have been asked to participate in a clinical trial. I go for screening next week. I'm not sure of the particulars but will let you know what Im thinking and will be looking for input from the Group.

There is my novel....wishing it were a fairy tale but it seems The Life and Times of Miss Jeanne is more of a modern tragedy! Lol
I'm ok...dealing with whatever God is dishing out. He's been in a bad mood lately....guess He has a lot on His plate too!

REPLY
@jeanne5009

@rosemarya
So many factors not going well. Trying to be positive and it is really getting more difficult. I hate to complain...there are so many more worse than me.
We are dealing in FL with a natural and manmade disaster. Our waters are so polluted that manatees dolphin turtles and all marine life are dying in unheard of numbers. Maggots in the sand...cant wait for the fly invasion..
It is incredibly sad and depressing to see the beauty that we hold on to so dearly to help us through our " tough days" suffocating in front of us. Facebook has enabled us to view this horrific scene like never before. I am working hard writing and calling anyone and everyone who can help. We are in a declared disaster zone which gives us state and federal funds...but it's a drop in the bucket. Politicians are being accused of turning their heads and allowing the poison in Lake Occechobee to be released. This is traveling through the 2 rivers designated to go East to the ocean and West to the Gulf. In the Gulf we have a naturally occuring red tide which is annoying but not as dangerous. Seems this poison from the Lake mixes in the Gulf with the red tide and creates a super bacteria. This is causing all the problems and people are now sick and in the hospital. No end or solution in sight.
I am busy researching the effects on people with liver disease. I will forward any thing I find to you. One study has a an 11 page report that I am studying now. Didn't know I had to add marine biologist to my required degrees! Isn't life fun???
Ok so all of that leads to me. Along with raspy sore throat, violent headaches, itchy runny eyes and more. I went to the Dr. He immediately put me on antibiotics and prednisone in addition to my asthma meds and inhaler. Pneumonia is next and he has 2 patients in the hospital. His practice is very small. I'm doing ok so far....
That is the latest calamity in the Life and Times of Miss Jeanne..lol
Bone spurs are slowly responding to PT 3 xs/wk. I see the Podiatrist next week for further rehab planning. It kills to walk still.
Diet is working. I lost 9 lbs and felt good. I cheated...too much salt..and gained 3 back. So now know what I have to do to feel better. No Salt Salt Salt!
Have been asked to participate in a clinical trial. I go for screening next week. I'm not sure of the particulars but will let you know what Im thinking and will be looking for input from the Group.

There is my novel....wishing it were a fairy tale but it seems The Life and Times of Miss Jeanne is more of a modern tragedy! Lol
I'm ok...dealing with whatever God is dishing out. He's been in a bad mood lately....guess He has a lot on His plate too!

Jump to this post

Thank you for your "novel". I left Florida over 40 years ago and after reading your "novel" I am thankful or I would be camping out on the steps of the hospital with other Transplants. I did not know it was as bad as it is. I do know, for those of us that like to learn new things, that we are on Mayo Clinic Connect because we like to share what we have experienced and at the same time learn new things. I would like to thank the person or persons who came up with the idea of Connect. I have learned from the experience of others and I hope others have learned from me and my experiences.

THANK YOU MAYO CONNECT!
mlmcg

REPLY
@jeanne5009

@rosemarya
So many factors not going well. Trying to be positive and it is really getting more difficult. I hate to complain...there are so many more worse than me.
We are dealing in FL with a natural and manmade disaster. Our waters are so polluted that manatees dolphin turtles and all marine life are dying in unheard of numbers. Maggots in the sand...cant wait for the fly invasion..
It is incredibly sad and depressing to see the beauty that we hold on to so dearly to help us through our " tough days" suffocating in front of us. Facebook has enabled us to view this horrific scene like never before. I am working hard writing and calling anyone and everyone who can help. We are in a declared disaster zone which gives us state and federal funds...but it's a drop in the bucket. Politicians are being accused of turning their heads and allowing the poison in Lake Occechobee to be released. This is traveling through the 2 rivers designated to go East to the ocean and West to the Gulf. In the Gulf we have a naturally occuring red tide which is annoying but not as dangerous. Seems this poison from the Lake mixes in the Gulf with the red tide and creates a super bacteria. This is causing all the problems and people are now sick and in the hospital. No end or solution in sight.
I am busy researching the effects on people with liver disease. I will forward any thing I find to you. One study has a an 11 page report that I am studying now. Didn't know I had to add marine biologist to my required degrees! Isn't life fun???
Ok so all of that leads to me. Along with raspy sore throat, violent headaches, itchy runny eyes and more. I went to the Dr. He immediately put me on antibiotics and prednisone in addition to my asthma meds and inhaler. Pneumonia is next and he has 2 patients in the hospital. His practice is very small. I'm doing ok so far....
That is the latest calamity in the Life and Times of Miss Jeanne..lol
Bone spurs are slowly responding to PT 3 xs/wk. I see the Podiatrist next week for further rehab planning. It kills to walk still.
Diet is working. I lost 9 lbs and felt good. I cheated...too much salt..and gained 3 back. So now know what I have to do to feel better. No Salt Salt Salt!
Have been asked to participate in a clinical trial. I go for screening next week. I'm not sure of the particulars but will let you know what Im thinking and will be looking for input from the Group.

There is my novel....wishing it were a fairy tale but it seems The Life and Times of Miss Jeanne is more of a modern tragedy! Lol
I'm ok...dealing with whatever God is dishing out. He's been in a bad mood lately....guess He has a lot on His plate too!

Jump to this post

@jeanne5009, You are running circles around me with all of your involvement! Thank goodness that you have a doctor who is watching and taking care of you and your asthma. I pray for you and for Florida. I hope that you will not develop pneumonia.

Dietwise - Great! It is easy to cheat, but I like your attitude and your admitting that you know what you have to do to feel better! You Go Girl! I'm rooting for you.

Yes, do let us know about the possible clinical trial. I know that others here on Connect will surely be interested. Where will you be going for that?

REPLY

Hi to All. It has been a while, How are you doing? I want to share the following information that a member shared in another discussion group.

Webinar – Eating healthy with diabetes and kidney disease
Wednesday, November 28, 2018 from 1:00 – 2:00 p.m. EST
Speaker: Lori Martinez-Hassett, RD, CSR,
Topics: Diabetes • Diet • ESRD • Nutrition

http://www.kidneyfund.org/training/webinars/eating-healthy-with-diabetes-and-kidney-disease.html

-If you are interested in attending this webinar, you will need to register. There is a place to add your own comments and/or questions.

After the webinar, join us in the Diabetes and Endocrine Group for conversation and sharing of ideas.
https://connect.mayoclinic.org/discussion/healthy-eating-for-diabetics-with-kidney-disease/

Let me know if you need/want my help to sign in.

REPLY

@mikej, I want to invite you to this discussion about diet before transplant. Some patients struggle with weight loss associated with liver failure, and others struggle with weight gain associated with liver failure and medications. Always - All the time - Whatever the disease - The primary focus needs to be on maintaining a healthy lifestyle that includes food choices and physical activity. Mike . What is your main dietary concern?

@jeanne5009, @contentandwell, @mlmcg, How are you getting along these days? What would you have to say to @mikej, who is interested in learning about healthy foods for someone with liver cirrhosis?
@athenalee, @amyintucson, @digibson, @kathycaudle, @melody12 - Do you remember what foods and nutrition guidelines you were you advised to follow for your pre-transplant liver disease?

REPLY
Please sign in or register to post a reply.