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Mayo Clinic Connect’s homepage, your new home base for everything that interests you in the community. (Be sure to bookmark https://connect.mayoclinic.org/)
Let’s take a tour.
This is the new homepage.
Groups and discussions
In the center panel, you’ll find your main connection hub for all the activity you follow (My Groups). You can also select All to see the latest discussions from all groups or Unanswered to see posts that haven’t received a reply yet.
By default, the most recent discussions appear at the top. Scroll down to see more discussions. Click View More to load more discussions in the center pane.
For each discussion, you can see:
- Profile image of the member who started the discussion
- Group name
- Discussion title
- Number of replies
- Timestamp of most recent post
By clicking the discussion title, you will be taken to the most recent post in that discussion.
Follow groups
Want to see if there are any other groups you may be interested in following?
- Click Select a Group to open the Group Directory in a popup window.
- Browse the group listing.
- Click Follow for any group that interests you. Its activity will now appear in the center pane on the homepage and in your daily or weekly digest.
- Click Close (x) in the upper right corner.
You can also click the group name to go to browse the topics in that group.
Start a new discussion
Without leaving the homepage you can also Start a discussion.
- Click Start a discussion.
- Enter a title. (Ask a question or describe the topic.)
- Enter your message and question.
- Choose the group best suited for your topic or question.
- Click POST DISCUSSION. This takes you to your discussion.
Notice the breadcrumb path above the title of your discussion. Use the links in the breadcrumbs to return to the homepage or the group landing page to see all discussions.
Blogs, podcasts, news, events with Mayo Clinic experts
On the side panels (horizontal scroll on mobile), you’ll find the latest blog posts and podcasts by Mayo Clinic experts, upcoming events such as invitations to monthly Zoom support groups, video Q&As, webinars, and patient conferences, and Mayo Clinic news articles.
Spotlights
Keep your eye on the Spotlight to stay up-to-date with new developments on Mayo Clinic Connect. This is where you’ll be the first to know when we open new groups, feature a member, release a new functionality, and more.
Tip: Add a picture and bio to your profile to help members get to know you.
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I am 69 years old and I’ve always been very active but I’ve recently developed neuropathy in my feet which is making activity difficult. My feet go from burning hot to ice cold toes.
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1 ReactionGood evening @bcool123. Welcome to Connect. As mentors, we are here to support you by sharing our experiences with your medical condition. However, we do not have medical backgrounds and cannot diagnose or prescribe. Hopefully, we can introduce you to other members, who, as patients have similar symptoms and have found solutions.
You have described a condition, half of which I have and that is the ice-cold toes and feet. Sometimes it as if the icy gel-like feeling runs up my legs as well. I can't say there is any pain with the cold I experience, just discomfort. I have been coping with small-fiber polyneuropathy (SFN) for several years but this is the first time I have experienced the icy feet. And I don't have the hot episodes that you do. Are your feet also numb or tingly such that driving becomes
risky?
Have you spoken with a neurologist or other clinician? It does seem like some of these SFN symptoms come and go in phases. It would be important to know what type of neuropathy you have if in fact, it is neuropathy. For a year or so I had sharp pains up my legs at 5:30 a.m. every morning. That was a strange wake-up call.
It is possible to get some relief from medication and also a form of physical therapy called MFR or Myofascial Release. At this time, I have two sessions every week and the feet are at the top of the agenda.
I am also going to introduce you to @johnbishop, who has SFN with no pain....just the numbness.
May you be free, safe, and protected from inner and outer harm.
Chris
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4 ReactionsThank you. I ran across a post about tapping from the Calgary Institute. It has been very helpful to me… I can’t find it again but I saved the video. Thank you guys for being there with all of your information
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2 ReactionsIs this the one you are looking for?
Sue
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2 ReactionsSue, Thanks for sharing the link to the tapping. Watched the video out of curiosity and it was really good information with evidenced based references. I added it to my TXT reference file for possible future reference in the neuropathy and chronic pain discussions.
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2 ReactionsThank you for your reply I just talk to my doctor and she increased my gabapentin from 300 once a day to 300 twice a day. We’ll see how that works. I’m kind of concerned about some of the side effects because I already have trouble walking because of a broken hip. Going to a specialty shoe store Friday to see if they can help me. Do you have shoes that have worked for you?
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1 ReactionYes that is the video. I’ve shared it with several friends for several reasons. And I hope you can make it available to others also.… I don’t understand how to do that so I’ll leave it up to you!
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1 ReactionWe use tapping during our Yoga sessions on Tuesday. One of our Sangha group who lives n Plymouth, MN uses it in her practice. It seems especially good for SFN.
Chris
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1 ReactionI am undergoing excruciating pain in my left shoulder to the extent that I have to sleep upright or in a recliner. I would like to speak to a specialist before undergoing shoulder surgery. I would like to have another specialist go over my mri's and other x-rays .
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2 ReactionsHello @barbtom1961, welcome to Mayo Clinic Connect. While we are backed by Mayo Clinic, this is a community forum comprised of members such as yourself who “connect” with each other to help find answers and offer support.
Wow, your shoulder is sure demanding a lot of extra attention! I’m sorry you’re going through that level of pain. Was this from an injury?
I hope you don’t mind if I ask a few more questions just so I can get a better understanding of your situation.
Are you currently scheduled for shoulder surgery? It sounds like you’ve already had MRIs and other X-rays to get to the bottom of your shoulder pain. What was the diagnosis?
Are you not confident with your current specialist to correct your shoulder damage?
As a patient, you’re always entitled to a second opinion.
Are you asking for a second opinion from a Mayo Clinic? Here is our link to appointment requests. When you are on the site, you’ll be able to select the campus most convenient to you.
http://mayocl.in/1mtmR63
Have you tried contacting another specialist or larger medical college in your area?
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4 Reactions