Grover's Disease: What works to help find relief?

Thanks for the additional information!!

Take a few hours and read this entire blog beginning in mid Feb 2019.
We learned about cilantro smoothies from Kimass1. It helps about 50% of us. After years of dealing with GD cyclically I no long have active periods because of my cilantro smoothies. I no longer need to drink them daily, just as a precaution I make one about every 2-3 months.
So do your homework on this site.
Cilantro is a heavy metal detox. Parkinson's, Alzheimer's, and GD are linked to heavy metals. The cilantro will chelate your blood and remove heavy metals naturally. Look up this heavy metal link on the internet. As we age we collect heavy metals.
Nothing else ever helped me. I tried it all for years.

Do to laziness and a seeming overcoming of the effects of gd, as well as just being plain tired of drinking those smoothies religiously for three years, I gave the cilantro oil a try. It seemed to work. The smoothies never eliminated my itching but kept it at a minimum and it didn't get any worse with the oil. I then ran out of oil and the itching increased. I finally got my delivery of the oil and now the itching seems to have lessened. This may all be a fantasy or the placebo effect, or just my imagination, but the oil appears to be effective for me. I will keep using it for the foreseeable future and report back after a couple of months.

Has anyone tried other chelation treatments to replicate the experience with cilantro?

I'm glad you're posting about using Cilantro Oil instead of fresh or frozen. We have had little input about the benefits of the oil. Yes it is easier. You definitely gave the fresh a try drinking them for 3 years.
For those of us that go into remission or notice less severity in our symptom's it usually happens within 3 months. The reason that drinking the cilantro for 3 years didn't help you is because you may be the 50% that don't benefit it. So sorry, yet keep searching. Are you on other blogging sites? I've heard the Facebook site is active. IfI hadn't improved I would have checked out the earthclinic GD site, that is the site Kimass1 learned about cilantro as a treatment from fellow bloggers. As you have learned by now there is nothing more to be learned from the medical profession, this disease stumps them.

I'm glad you're posting about using Cilantro Oil instead of fresh or frozen. We have had little input about the benefits of the oil. Yes it is easier. You definitely gave the fresh a try drinking them for 3 years.
For those of us that go into remission or notice less severity in our symptom's it usually happens within 3 months. The reason that drinking the cilantro for 3 years didn't help you is because you may be the 50% that don't benefit it. So sorry, yet keep searching. Are you on other blogging sites? I've heard the Facebook site is active. IfI hadn't improved I would have checked out the earthclinic GD site, that is the site Kimass1 learned about cilantro as a treatment from fellow bloggers. As you have learned by now there is nothing more to be learned from the medical profession, this disease stumps them.

Just got off earthclinic site where someone is enthusiastic about diaper rash cream really managing their gd itching. Interesting.

Diaper rash cream did absolutely ZERO to help me with my itching, but that doesn't mean it won't work for others. The only cream that helped me with my itching is made by CeraVe and is their Itch Relief Moisturizing Cream formula.
As far as the concept of chelation for treating GD goes, my theory on that is that heavy metals in the body may be the cause of the disease for only some people, and those are the ones for which the cilantro works, about 50% as @gardeningjunkie estimates. Personally, I speculate that damaged skin from overexposure to the sun may also be a cause of GD, particularly in my case. This is total speculation on my part, but I have seen others mention this as a possibility as well. If this is an actual possible cause of GD, then I see no reason why taking cilantro would be of much benefit for these people's GD other than the fact that it has some beneficial nutrients, thus the approximately 50% of people with GD that it doesn't help. There appear to be no easy, one-size-fits-all answers with this disease, so we all just keep experimenting hoping to hit on something that at least works for some of us. Best of luck!

Quick update on my using of the Cilantro extract drops from Herb Pharm as opposed to the cilantro smoothies. I had been using the drops since 6/9 and my itchiness and the number of sores that were a brighter shade of red definitely decreased, but it was still far from being in remission. Also, I was taking chlorella about 45-60 minutes before the drops as was recommended in some articles I found about natural chelation methods. Several days ago I gave up on the whole routine out of frustration that I was not continuing to improve on my quest to achieve remission status as has @gardeningjunkie. Yesterday I had a bad outbreak of new sores on both of my "love handles", those areas on your lower back and sides where fat seems to like to accumulate. I'm a skinny guy, but I've still got 'em! LOL. So anyway, I went back on the chlorella and cilantro last night and this morning I'm noticeably better. Does all of this prove anything about cilantro? Scientifically speaking, no. It is interesting anecdotal evidence though. I guess I'm sticking with the chlorella/cilantro routine. If you do a search for "chlorella and cilantro detox protocol" you will come up with some articles on why the two work well together if you are interested.