Grover's Disease: What works to help find relief?

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover's disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

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@babbs

If your PCP warned you about taking Benedryl because of the association between long term use and dementia, trazodone was also included in that list. I’ve been taking trazodone 50mg for >15 years for sleep. When I try to get off it, I don’t sleep and that is also bad. I’ve recently started using these drops called Relaxing Sleep by Herb Pharm which helps me get back to sleep when I wake in the middle of the night. It has valerian in it, but no melatonin (which doesn’t agree with me.) I think I might try to use the drops to initiate sleep as well. Also, I’ve found I’m much more sensitive to caffeine in my old age and have to stop drinking black tea by noon.

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Checkout the the validation of the dementia with benedryl.
URL about misinformation:
https://www.clinicalcorrelations.org/2013/05/22/clinical-misinformation-the-case-of-benadryl-causing-dementia/

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I, too, have used the CeraVe anti itch moisturing cream. It does help.

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@dorothydavis1

I, too, have used the CeraVe anti itch moisturing cream. It does help.

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Yes, it is certainly not a miracle, but pretty helpful. Also, it has almost no smell. I tried Sarna first, but that stuff STINKS!

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@locutus

Quick update on my using of the Cilantro extract drops from Herb Pharm as opposed to the cilantro smoothies. I had been using the drops since 6/9 and my itchiness and the number of sores that were a brighter shade of red definitely decreased, but it was still far from being in remission. Also, I was taking chlorella about 45-60 minutes before the drops as was recommended in some articles I found about natural chelation methods. Several days ago I gave up on the whole routine out of frustration that I was not continuing to improve on my quest to achieve remission status as has @gardeningjunkie. Yesterday I had a bad outbreak of new sores on both of my "love handles", those areas on your lower back and sides where fat seems to like to accumulate. I'm a skinny guy, but I've still got 'em! LOL. So anyway, I went back on the chlorella and cilantro last night and this morning I'm noticeably better. Does all of this prove anything about cilantro? Scientifically speaking, no. It is interesting anecdotal evidence though. I guess I'm sticking with the chlorella/cilantro routine. If you do a search for "chlorella and cilantro detox protocol" you will come up with some articles on why the two work well together if you are interested.

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Thanks to your posts, I have been doing the liquid Cilantro 2 times a day, and it SEEMS to be working. A couple of nights ago, I had an outbreak. The next day I received my new bottle, took some, and within 24 hours the symptoms lessened considerably. Now several days later, my symptoms are minimal. My thanks to you for motivating me to try the liquid. So much easier than smoothies. Hope your feeling better.

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@nodgabnoj

Thanks to your posts, I have been doing the liquid Cilantro 2 times a day, and it SEEMS to be working. A couple of nights ago, I had an outbreak. The next day I received my new bottle, took some, and within 24 hours the symptoms lessened considerably. Now several days later, my symptoms are minimal. My thanks to you for motivating me to try the liquid. So much easier than smoothies. Hope your feeling better.

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Thanks for the thanks! Glad you are doing better. I am too. I doubt if mine will ever go into complete remission. I've had it for many years and it doesn't seem to be giving up. However, if the cilantro drops can keep it much more subdued than it has been in the past, then at least that is something to feel positive about. I hope you keep improving, @nodgabnoj !

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@gardeningjunkie

I'm glad you're posting about using Cilantro Oil instead of fresh or frozen. We have had little input about the benefits of the oil. Yes it is easier. You definitely gave the fresh a try drinking them for 3 years.
For those of us that go into remission or notice less severity in our symptom's it usually happens within 3 months. The reason that drinking the cilantro for 3 years didn't help you is because you may be the 50% that don't benefit it. So sorry, yet keep searching. Are you on other blogging sites? I've heard the Facebook site is active. IfI hadn't improved I would have checked out the earthclinic GD site, that is the site Kimass1 learned about cilantro as a treatment from fellow bloggers. As you have learned by now there is nothing more to be learned from the medical profession, this disease stumps them.

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Very encouraging. Can you provide site to purchase the oil, Brand name and strength or any other specifics. Much appreciated HILLY

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@hilly

Very encouraging. Can you provide site to purchase the oil, Brand name and strength or any other specifics. Much appreciated HILLY

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I never used cilantro oil. I tried cilantro tablets by noticed no improvement, but I only did that a few weeks which may not have been enough time. I switched to fresh daily for about 4 months, then learned about how frozen was also helping and then used both fresh and frozen. Using frozen made the smoothie so much more convenient. I started noticing definite results with fresh cilantro in less than a month.

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Thanks for the providing your valuable information https:healthlinz.com

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@hilly

Very encouraging. Can you provide site to purchase the oil, Brand name and strength or any other specifics. Much appreciated HILLY

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Its purchased on Amazon, called Herb Pharm, there is no strength, one full squeeze of the dropper 2-3 times a day with a little bit of water. It seems to work pretty well for me.

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@hilly

Very encouraging. Can you provide site to purchase the oil, Brand name and strength or any other specifics. Much appreciated HILLY

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I use the same Cilantro drops as @nodgabnoj , but not nearly that amount. Here is a link to this product on Amazon, but you can buy it directly from Herb Pharm too.
https://www.amazon.com/Herb-Pharm-Certified-Cleansing-Detoxification/dp/B0014AWJZY/ref=sr_1_2?dchild=1&keywords=Herb%2BPharm%2BCilantro&qid=1632592309&s=hpc&sr=1-2&th=1
I started out very slowly concerning the number of drops I used after reading the reviews of the product further down the page on Amazon. Using the amount recommended on the product label resulted in some people detoxing too fast and they got very sick. I started out with only one drop twice/day and gradually worked my way up to larger amounts. I'm sure it will vary from individual to individual how much can be tolerated. Also, don't forget to shake the bottle well before each use.

Finally, @gardeningjunkie and others on this website, and the other website she references, got their results from using regular cilantro you would purchase in a grocery store and then processing it for using in a smoothie. Although it apparently works for only about half the people who try it, there is far more anecdotal evidence for this method of using cilantro for GD, so if you don't mind going to a bit more bother, this might be the way to go for you.
Good luck and keep us posted on what happens.

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