Grover's Disease: What works to help find relief?

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover's disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

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@sophiep

I've been reading all your posts for a week to help find relief from the itching. I've had Grover's for nearly a year and now it has covered almost every square inch of my body at some point. I've tried Triamcinone cream which didn't help at all, Clobetasol cream which did help a little and took Acitretin 25mg for 3 months. I'm not sure if the Acitretin helped and the side effects are numerous so I just stopped it to see if the Cilantro smoothie does the trick. Someone also mentioned Boudreau's Butt Paste so I've been trying it on my legs for a few hours each morning….it does kill the itch, but what a mess it makes! I've also used Sarna and Gold Bond powder, both versions that contain menthol….they help for a short period. I'm going to get some of the Tea Tree Oil creme to try….let you know how that works out. The reason I stopped the Acitretin is that on my blood work last week my thyroid TSH level has dropped to scary low levels and it may be the cause along with the Clobetasol creme….just don't know……this is getting old!!!!! I'll keep you posted and continue to follow all your suggestions.

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Aveno has a restorative skin and itch cream that works, I have also been taking Vit A and D along with a cilantro pill and a cilantro smoothie every day, has kept it at bay for weeks now. I use dr Bronners baby soap in the shower, cool shower, stay away from hot water.

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@pitbuell

Aveno has a restorative skin and itch cream that works, I have also been taking Vit A and D along with a cilantro pill and a cilantro smoothie every day, has kept it at bay for weeks now. I use dr Bronners baby soap in the shower, cool shower, stay away from hot water.

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Thanks for the tips! I'm drinking my cilanrro smoothie at this very moment! I'll add your other suggestions…..can't hurt! Yes, I agree with the cool showers….staying cool in Florida this time of year is a challenge.

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I also always have a spray bottle with water at hand that I use to hydrate my skin whenever I get heated, it seems to keep to itching down.

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Cilantro smoothies didn't work for me, however I may not have stayed with it long enough. Creams with high % menthol (like Ben Gay) worked better than the strongest steroid creams.
Warm showers and even sweating didn't seem to make things worse. Walking or running 4 miles a day, even in Summer, was a million times better than sitting in an armchair watching TV! For me, it was all about "occlusion" or the lack of breathability. Breathable shirts, wicking fabric, or even shiftlessness, really helped. Using a heavy towel or a non-foam pillow between my back and the leather armchair was a tremendous help. Sleeping on anything breathable, getting the body as far away as possible from foam or plastic in the mattress, improved things. Better yet was sleeping in a Mayan or Yucatan style hammock, which provided instant relief. And Claritin helped a lot. My case is in remission but I still sleep in the hammock, limit time in the recliner, and take the Claritin.

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I don't have this condition but do have allergies and a stronger reaction to bug bites and such than friends get. And sensitive skin that is slow to fade mosquito and insect bites. I got bitten by something when on vacation in the Caribbean and was itchy and shaky enough to get worried. The ER doctor suspected spider bites, and I was given an antihistamine injection. I still had the bite marks weeks later, despite taking oral antihistamines, and a pharmacist back home suggested topical Caladryl. Calgary contains Benadryl and calamine lotion. There's a clear version that is invisible on the skin.

It worked fast and has been the only thing that worked on other occasions. For those of you benefitting from oral antihistamines, consider trying a direct topical approach.

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@pitbuell

I also always have a spray bottle with water at hand that I use to hydrate my skin whenever I get heated, it seems to keep to itching down.

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Great idea….I'll add it to my repertoire!

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I have had slow progress with zinc oxide, such as Desitin. Took the itch away immediately.
Using twice a day I’m showing daily improvement.

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@potts

You might try putting on the cream , gently message in, wait a bit ,then cover with the Zinc Oxide if you think you will be sweating. Cool showers and PAT dry on the affected area (No rubbing) Store your Cilantro in a container of fresh water covered with a plastic bag( Cut some holes in the bag) keep in the Refrigerator . Add some berries , protean powder and juice (Or whatever) to your Smoothie (EVERY DAY, half a bunch) and you won't even Taste the Cilantro. Google Cilantro for more health benefits (If you're Diabetic and on medication. check with your Doctor. Cilantro can lower blood sugar) I've taken the time to do this because people on here did it for me and I'm SO grateful. I hope it works as well for you as it did for me. Give it a month and please let me know.

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Hi- do you use the zinc oxide only when it’s a itch flare up, or just cosmetically to help the red dots go away?

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Has anyone tried any sort of laser treatments to help? I’m lucky and don’t suffer from the itching- it’s purely a cosmetic concern from the red dots.

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@pwhitney801

Hi- do you use the zinc oxide only when it’s a itch flare up, or just cosmetically to help the red dots go away?

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I’ve been using for almost 2 weeks now and red dots are slowly going away. I’m gonna keep it up till they are hopefully gone. In 10 yrs I’ve never been “dot free” so we’ll see. This has been the only remedy that has helped me..

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@suel222

I’ve been using for almost 2 weeks now and red dots are slowly going away. I’m gonna keep it up till they are hopefully gone. In 10 yrs I’ve never been “dot free” so we’ll see. This has been the only remedy that has helped me..

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Have you found a zinc oxide product that is less visible? I have been using Beaudreax's Butt Paste extra strength on my legs to stop the intense itching and it works, but I can't leave the house covered in white paste and it's messy!

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@sophiep

Have you found a zinc oxide product that is less visible? I have been using Beaudreax's Butt Paste extra strength on my legs to stop the intense itching and it works, but I can't leave the house covered in white paste and it's messy!

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Unfortunately no, I’ve only seen the thick white paste.

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