Oral lichen Planus: What home remedies or medications help you?

Posted by lovebug61 @lovebug61, Apr 4, 2019

Anyone in the group suffer from Oral Lichen Planus. I am at my wits end with all these erosive sores in my mouth. I've had two biopsies , one in the inside cheek and one under the side of my tongue. The spot under the tongue is extremely sore to touch and has been for over a year. It scares me because the soreness never goes away, sometimes it isn't as sore but nothing helps. Any home remedies for this dreadful condition?

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

artist01 | @artist01 | Sep 7, 2021

In reply to @loribmt "Hi @chari9 I found the comments Laurie is referring to. She’d replied to @fdixon63 @bustrbrwn22 regarding..." + (show)

@loribmt Hi Lori. Thankyou for that. I think I'd forget my own name some days! 😔

Lori, Volunteer Mentor | @loribmt | Sep 7, 2021

In reply to @artist01 "@loribmt Hi Lori. Thankyou for that. I think I'd forget my own name some days! 😔" + (show)

I’ve got your back. Laurie! 😘. Plus, there’s an easy way to check! If you click on your little profile picture, you’ll see the drop down menu for Profile & Settings. Click that, it will take you to another menu under your bio that says, Discussions, Comments, Likes, Bookmarks. Click on Comments and you’ll see all the comments you’ve ever made in order! So basically, I cheated! LOL.

artist01 | @artist01 | Sep 7, 2021

In reply to @loribmt "I’ve got your back. Laurie! 😘. Plus, there’s an easy way to check! If you click..." + (show)

@loribmt. OH Lori, you're just so !%$#**!! SMART!! 😆 🤣 😂 At least I'm on the ball enough tonight to take a Screen Shot of your excellent directions so I'll know for next time!
Today has been one of those baddies. Blah. Tomorrow will be better. Promise!! Hugs, Laurie

chari9 | @chari9 | Sep 7, 2021

In reply to @becsbuddy "Hello @chari9 you must be quite miserable with both LP and shingles. The combination must be..." + (show)

None of my doctors seem to be concerned about the LP. They are blaming everything on Shingles.

chari9 | @chari9 | Sep 7, 2021

In reply to @chari9 "None of my doctors seem to be concerned about the LP. They are blaming everything on..." + (show)

Thank you for checking with your doctor for me. I appreciate all of the help I can get.

bustrbrwn22 | @bustrbrwn22 | Sep 9, 2021

In reply to @chari9 "None of my doctors seem to be concerned about the LP. They are blaming everything on..." + (show)

@chari9. I would disagree. LP is no joke. Started on my skin, then my mouth, next my eyes. Started on high taper prednisone to get my mouth under control which I believe caused pre-diabetes condition. I have started and briefly stopped hydroxychloroquine because the inflammations never stop but it caused great ringing in my ears and vertigo. My dr said to start again in a couple days to see if I tolerate better. Be vigilant of any mucous membranes and get a treatment plan ASAP before it worsens. Clobetasol worked for a while in my mouth and skin but the lesions became ulcers and more aggressive treatment is needed. You need to find a dermatologist that takes LP seriously. Just my opinion.

rashida | @rashida | Sep 10, 2021

In reply to @lichenplanussufferer "I have had Lichen Planus for over 2 years on my gums with extreme bleeding. A..." + (show)

Is Valtrex on prescription, or over the counter? I think some OTCs in the States are on prescription in Canada, and some OTCs in Canada are only available on prescription. Are you in the States?

SusanEllen66 | @SusanEllen66 | Nov 14, 2021

Oh my gosh thank you! I thought that I was the only one with this…it took an oral surgeon to diagnose mine. He prescribed a cortisol cream which I used in my mouth despite the warnings on the package. It worked so I don’t know…

Becky, Volunteer Mentor | @becsbuddy | Nov 15, 2021

@mskatrina12 Have you also seen this discussion on oral lichen planus?
https://connect.mayoclinic.org/discussion/oral-lichen-planus-3/
Maybe @susanellis and others can answer some of your questions.

davemeister | @davemeister | Feb 1, 2022

In reply to @johnbishop "Hello @microgirl, Welcome to Mayo Clinic Connect. I read a post earlier in this discussion where..." + (show)

Hello, @microgirl

I have had oral lichen planus for years. I undertook an exhaustive search for a toothpaste that did not hurt, and finally found one. I use Kids Crest, specifically the Sparkle Fun flavor. It comes in a 4.6 oz. tube. Hopefully you can calmly exhale after brushing!

Davemeister