Educating others on autoimmune diseases
I am a patient with MS, Lupus, Sarcoidosis, Psoriasis, Erethema Nodosum, Scleritis, Blferitis, optic Neuritis, Gastroparesis and many more.
There are over 100 autoimmune related diseases that so many people are unaware of and need ro educate themselves as well as their Doctor's so that no one will have to wait 35 yrs for a true diagnosis like I did.
Autoimmune diseases are the number one killer especially to women and children.
Please visit aarda.org to learn more about autoimmune and how it can be related to your chronic illness. I promise you wont be sorry that you did. I am just an advocate for everyone here who is looking for answers and seeking help.
Thank you for listening. xoxo
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
No I actually have a ton of auto immune disorders, AH is the lastest. I am hoping that it will not progress and so far it seems to be. If it does go further in the future, then I will be a liver transplant patient. What are they doing for you? are you on meds??
For all the autoimmune disorders, I have tried Plaquanel and Methotrexate, but neither seemed to be doing any good. I only take 5 mgs of prednisone. I just began using oxygen when I do any cardio.
I too have tried those meds and nothing seemed to work for me, however when I do receive the steroid infusions, I seem to get more relief and my Psoriasis also clear up as though I have never had them. My optic Neuritis clears up as well. I just wish the steroids of any kind did not come with any side effects because I find that it is a temporary cure. Hope you feel better KimPf. xoxo
You may have been active with your Lupus and didnt know it , but the heat of the tanning bed brought out the symptoms. Feel better. xo
I have Hasimoto's thyroiditis. Its autoimmune. Just wondering if anyon ehere has or knows about the problems with this disease?
Hi Kim,
I'm sorry you are suffering with Pulmonary Fibrosis.
I just got diagnosed with MCTD, and in the past was misdiagnosed with asthma. (Was taking immunotherapy and subsequently had pulmonary complications and took Prednisone.)
I had a mini stroke at work I think. Please tell me more about your experiences with this illness, and how your appt. at Mayo went.
Camille
I also have MCTD and an interstitial lung disease called BOOP which has caused pulmonary fibrosis. I have Sjogrens Syndrome also. I have been on prednisone nonstop for 8 years now along with numerous other meds. My bones are beginning to fracture thanks to all the steroids not to mention the weight gain and mood swings. Anybody else on steroids indefinitely?
My husband has cold hemolytic anemia. He's been treated with folic acid, B-12, Prednisone, and Rituxin (Chemo) -also had Neuprogen shots for low white counts. Nothing has worked for him. He also has Lupus and recently conrtacted Hepatitis A and lilver failure. If anyone knows of any research or treatments, please let us know. Thanks!
I have had sarcoidosis since 1999. I have been in remission but every morning I have a very phlegmie cough. It lasts a few hours. Would that be from sarcoid possibly? It's very irritating.
I was diagnosed last December with AH. I'm off the prednisone, now taking the azathioprine...per the biopsy, they caught it before my liver was damaged. I'm frightened, period. Appreciate anything anyone would be willing to share.