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Kimberly
@sebley12

Posts: 85
Joined: Aug 02, 2011

"How many people have autoimmune diseases or even know what they are?

Posted by @sebley12, Aug 17, 2011

I am a patient with MS, Lupus, Sarcoidosis, Psoriasis, Erethema Nodosum, Scleritis, Blferitis, optic Neuritis, Gastroparesis and many more.
There are over 100 autoimmune related diseases that so many people are unaware of and need ro educate themselves as well as their Doctor’s so that no one will have to wait 35 yrs for a true diagnosis like I did.
Autoimmune diseases are the number one killer especially to women and children.
Please visit aarda.org to learn more about autoimmune and how it can be related to your chronic illness. I promise you wont be sorry that you did. I am just an advocate for everyone here who is looking for answers and seeking help.
Thank you for listening. xoxo

REPLY

I was tanning for wedding in may this year got itchy rash and diagnosed with lupus

Liked by Kimberly

My wife has it. It was found about 5 years ago in her eyes. She has since had 2 ritcert implants and cataract surgery but is now suffering from 8 strokes. Uvitis in her eyes and possibly vasculitis caused strokes. Please say a prayer for her and I’ll do the same for you.

@8times

My wife has it. It was found about 5 years ago in her eyes. She has since had 2 ritcert implants and cataract surgery but is now suffering from 8 strokes. Uvitis in her eyes and possibly vasculitis caused strokes. Please say a prayer for her and I’ll do the same for you.

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Funny ..I had strokes too, TIA’s and I have MS. MS also mimics strokes and they over look optic neuritis a lot. I hope she is seeing a Neuropthamologist as they can see behind the retina and give a better diagnosis. I am so sorry to hear this about your wife, please keep me posted as to how she is doing and if I can be of help to you both. Take care of you’s! xoxoxo

Liked by Kimberly, ms.parking

@roysbaby

I was tanning for wedding in may this year got itchy rash and diagnosed with lupus

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The sun has a tendency to bring out the autoimmune culprits as did mine when I was a very young girl at 13 yrs old. I had sunburn real bad all over and it brought out the Psoriasis rash and itch..and the when I was 19, I couldnt walk because I went to the beach with my school friends and got burnt again..they thought I had polio or rumatic fever. Please visit AARDA.org to see all of the autoimune diseases. I hope this helps and keep me posted, ok? Hope all turns out well. Did u get an ANA blood test yet? This is the test you need for an active autoimmune system. xoxo

Liked by KimPF

@roysbaby

I was tanning for wedding in may this year got itchy rash and diagnosed with lupus

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Yes twice I have lupus sle and lichen planeaus Im taking plaqenol. now I have bronchitis. I just wanting to prevent myself from getting more

Liked by aimeenc

@roysbaby

I was tanning for wedding in may this year got itchy rash and diagnosed with lupus

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I am so glad you are taking care of yourself, and doing better. Have they said what the strokes were from? How many autoimmune diseases do you have? I hope not a lot. xo

Hi, I was diagnosed with several different autoimmune diseases about 6 years ago. I started out with PAD and after a Bi=femoral bilatteral aortic by-pass I was diagnosed with Lupus, fibromyalgia (the list goes on and on) I have been on Plaguenil for five years as well as other medications. Nothing changes and pain remains a constant. I like your suggestion to visit aarda.org. I will do that.

Liked by Kimberly

@breni

Hi, I was diagnosed with several different autoimmune diseases about 6 years ago. I started out with PAD and after a Bi=femoral bilatteral aortic by-pass I was diagnosed with Lupus, fibromyalgia (the list goes on and on) I have been on Plaguenil for five years as well as other medications. Nothing changes and pain remains a constant. I like your suggestion to visit aarda.org. I will do that.

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I am so happy Breni that you are going to aarda.org as you will find so much information there. They have a book that they sell, I call it the Patients Bible because Doctors know nothing about it and it is full of information on all of the Autoimmune diseases as well as tests to have done for answers to these diseases. The book is called “THE AUTOIMMUNE CONNECTION” you can order the book from aarda.org. I love this book and I sell a lot of them for the association. Its empowerment to the patient and also information that the Docs don’t know about as well. Do yourself a kind favor and get the book, you will NOT be sorry. Best of health to you my friend and please spread the word about Autoimmune Diseases. xoxoxo Talk soon.

Liked by KimPF

Have you had your sub-catogories of IgG tested and alpha-1 tested?

Liked by hayleesmom2005

Thank you Peace keeper as i always give Jesus the upper hand in everything I do. I always say, if you want to make God laugh..make a plan! Because it is so true, he has it all planned out for us anyways. I am happy that he came into your life & touched you the way he did, I never doubt him and I continue to let him control my life as well. Good for you and may he continue to bless you with his love & peace.

Oral lichen planus is getting worse and it is very painful to eat. Has anybody else overcome this?

Liked by KimPF

I have auto immune hymolitic anemia with both warm and cold antibodies. Usually life threatening for most people because of not knowing where to go. Thanks! What else can we do?

I have had Lupus for twenty years, RA, Sjogrens Syndrome and I have recently been diognosed with Autoimmune Hepatitis. Has anyone delt with AH, it is frightening and mine has gone into Cirrhosis.

Liked by KimPF, RamonaB

I have had Psoriasis for several years, and was diagnosed with pustular 6 years ago. Now my doctor suspects I may have MS. Does anyone know if the Psoriasis causes MS? My symptom is numbness inside and out of left side of face as well as the chin.

@klisa24

I have had Lupus for twenty years, RA, Sjogrens Syndrome and I have recently been diognosed with Autoimmune Hepatitis. Has anyone delt with AH, it is frightening and mine has gone into Cirrhosis.

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I’ve had Lupus/MCTD for 18 years. I have recently been diagnosed with Pulmonary Fibrosis, pretty much a death sentence, unless I can get a lung transplant. I can understand your fear. Have ‘they’ talked to you about a liver transplant?

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