Educating others on autoimmune diseases

Mayo has a pots clinic I believ

i have 30+ auto immune related disorders. I waited many years for a diagnosis, but now one knows how to treat me. I have been living on steroids and narcotics, Mayo is taking my narcotics away. Non narcotic pain meds and immunosuppressent meds have not helped me in the past. I am worried about losing my functionality. Anyone use methadone maintenance?

I have been diagnosed with mctd and fibromyalgia. Diagnosed 6 yrs but I think it started 15 yrs ago (based on everything I read). I have never heard of strokes being a problem. My rhuemy is not been very forthcoming with info on my mctd and would appreciate any info of strokes because of mctd. I try and read eveverything I can but any info would be helpful.

Why does autoimmune disorders seem to come in multiples. Is this the norm?

How do I get this book?

Sebley12 thanks for your post . I also have several autoimmune diseases. Lichen sclerosis, otosclerosis, restless legs, peripheral neuropathy, blefaritis, and now just diagnosed with gout. Unbelievable because I don't eat any of the things that bring it on. I didn't drink enough water though but I sure am now. Once you get a autoimmune disease it seems your exposed to others.

I have Hashimoto's thyroiditis too, along with Sjogren's Syndrome, Fibromyalgia, and other diseases. I'm on L-Thyroxin for Hashimoto's, so it has been staying at good levels. I have gained weight and know if not treated, that happens, but I wonder if it happens anyway? Also, fatigue goes along with that and my other auto immune diseases, and I believe hair loss may be a factor, which I also have. I'll be interested to see what others have to say.

I have Sjogren's Syndrome, and overwhelming tiredness seems to come along with that at times.  I hope you feel better.  Dry eyes is a major problem for me because of Sjogren's.                                                                Janet<br>

I've had Hashimoto's for 30 years. The best treatment ever received was Diflucan. It's an antifungal. But apparently you can't stay on Diflucan forever. I take 60 mg of Armour Thyroid it takes the brain fog away helps me keep my weight tolerable. My doctor has suggested that I follow a nondairy gluten-free diet. I think I do lose weight when I follow it - but its - slow so very slow. I've also learned to take a good digestive enzyme supplement. I feel fine about 75% of the time. I do believe all the autoimmune disorders are connected to antibiotic use. The antibiotic use is connected to gut health or the lack there of. I believe that there's a whole new science emerging that will address these autoimmune disorders through gut health - and the balance of flora and fauna and enzymes. Until then we're really on her own with the help of good doctors. In today's fast schedule of work and life I find it almost impossible to avoid gluten or dairy - in some tiny form. If all I had to do was carefully prepare my meals each day it's attainable. Since my doctor won't prescribe Diflucan on a regular basis (and I have yet to understand why but I do trust him) - I take my own antifungal's like olive leaf extract. It helps but it's a BB's worth of ammunition compared to the cannonball Diflucan.

Hi @ambrose. Welcome to Connect! Thanks for sharing your story and insights with our community. It sounds like you have certainly done your research which is so important as we seek to be our own health advocates. And, i'm glad to hear you have a doctor you trust! You said you feel fine about 75% of the time... what are some of the symptoms you experience the other 25%?

Also, I just wanted to let you know I removed your phone number from your post for your protection and privacy. We encourage people not to share that kind of personal information and instead connect by private message if they want to chat offline.