Dizzy still after my liver transplant

Thanks

Hi Livertrex,
I had my transplant on August 18, 2017 and for the first few months i had to concentrate when climbing stairs especially after exercise. Occasionally while walking/running i had to catch myself from falling as it seemed things just didn't work like they did before. I was worried that i would never get my strength and balance back, and be able to do the things I did before the transplant. Over time i noticed that things really started to change. I was very active prior to the transplant and pushed myself afterwards but not to extremes. I set myself personal to keep me focused. A transplant is a major physical event and our bodies will recover as we challenge ourselves. I am wishing you good fortune and health as you continue your journey. Best regards

Thanks, that's exactly what I needed to hear. I need to push myself not to the extreme but to get out and work and walk I'm just afraid that I might fall. I'll carry my walking stick.

Thank you very much. I had the same things happen after transplant. Like,I began to get better at everything. Somewhere around 3 yrs post,my body started to rapidly deteriorate. My mind,my body started to betray me. I believe I have perm. damage to my brain from the 2yrs. of HE..Best of luck to u.

I'm sorry Rowdy. I'm thinking about you and I just pray that you will come out of this problem with your brain. Thank you for responding Rex

@rowdyramsey I am sorry that you are having so many difficulties but if they started 3 years after transplant I doubt they are connected to the HE episodes before. If your current doctors will not address these problems and try to find a cause then please change doctors. You deserve better treatment than that.
By the way, I have not seen my hepatologist since my transplant. I think that once you have a new liver there is generally no need to. I know that if I need her or if I have any questions for her that she is there for me but I only sent her a couple of questions one time, through the portal.
JK

@contentandwell Directly after transplant surgery I was visited by my hepatologist daily. Then weekly, then once a month and now every three months. I still have blood tests done every 2 weeks. I expect when I reach my 1 year mark in late November he will ask to see me every 6 months. I'm not sure when the yearly visits start after that.

@gaylea1 That’s different from my care, after transplant I was seen very regularly by the transplant department but after my hospital discharge I no longer saw my hepatologist. My hepatologist did visit me while I was in the hospital.
I’m not sure why a patient would continue to need to be seen by a hepatologist after transplant. What is the reason for that?
JK

@contentandwell I think they follow up with my blood tests to make sure my levels are all correct. Then they discuss it with me and take a look at my medication. Other than that I'm not sure why.

@gaylea1 I’ve found that different transplant centers have different protocols. I have my blood tests very regularly, down to every two months now, but my transplant team are the ones who monitor all of that.
They will not get involved with areas that fall to your PCP though. I think they feel that if you have a good PCP he or she is better equipped to handle other things, plus they do not want to step on the toes of the PCPs. That last is my own supposition.
JK