Dizzy still after my liver transplant

@livertrex
Congrats on the transplant!!! How great is life when you can finally set down the burden of waiting for a solid organ transplant! Yay you! I had a kidney transplant but also felt very dizzy post transplant. I guess my body needed time to adjust to being healthy...high class problem, right? It would be worth a call to your team or a maybe portal message. They will absolutely ask you standard questions like, what is you blood pressure running, are you hydrated, are you taking your meds on time, is it all of the time or when going from sitting to standing, etc. The better prepared you are with accurate answers the better the can hone in on your problem. I was able to get back on track with changes in diet and by giving my body time to adjust. Good luck and keep us posted.

Thanks, I will keep you posted, I will talk to the doctors and be prepared.

@livertrex I am 9 months post transplant and I get dizzy all the time. If I'm out and about the dizziness starts within 15 mins. I sometimes get dizzy walking up and down my stairs at home. I get dizzy in the shower sometimes too. I just keep hoping that it will pass.

Hope it gets better. I guess this is what has disappointed me the most.

@livertrex I honestly do not remember if I was dizzy initially, but if I was it didn’t last for long. It does take a while for your body to heal and many of us are surprisingly very fatigued for a long time as our bodies do the hard work of healing and adapting, so I don’t think dizziness for a while is very surprising.
I am now 3 years post transplant and definitely have no dizziness now.
I wish I had kept a journal of the whole journey, from when we first realized I had a serious problem, through the transplant and recovery. I bought a book to bring to the hospital to record everything and I forgot to bring it. Of course I thought I would remember everything and record it afterward but the drugs made the whole time a rather surreal blur.
JK

Just a quick piece of advice, if you are feeling dizzy sit down or get your head low. I am very tall so I've learned over the year's if I feel dizzy or off balance it is best to just sit down, even if it's on the floor. If you do end up passing out it will prevent you from getting seriously injured.

I'm short, and never thought of that. Thanks, Jolinda!

@jolinda I too am short and I always find a place to sit when feeling dizzy. Most grocery stores here in London ON have chairs or benches near the doors. I always make sure I know where they are as i tire easily (still) maybe more exercise is what I'm needing. Working on that!

. I guess the best way to explain my be like getting out of bed in the
morning and bumping into everything because you can't quite get your
balance and everything is kind of moving around you. I know when I ride in
the car with my wife and she's driving everything's going to by me at
hundred miles an hour is frustrating.

I went through the same thing several months ago. It left and came back again, but for a shorter period. I had no idea that it’s happened with other transplant patients. No problems with it for quite awhile. 🤞