C. difficile – Are your guts ever normal again?
Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line...are my guts ruined forever ?
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Yes. Same for me. And a discharge 😢
Just don’t know what to eat anymore and weight or lack of is becoming an issue. I too have a discharge and always feel like leaking rectally. Can never wipe enoughand them become irritated. So weird talking about this. Taking probiotics during danactiv kiefer and eating well but just not stoping. Very discouraged
My go won’t order it without a relapse even though I’m not getting better. Very disappointed
With diverticulitis I always have pain in the left side of the groin area. I’ve had c diff No suggestions as to what it could be. If it keeps on go to the dr. Best of luck. @losthope
I have had both as well.
I agree it is embarrassing to talk about all of this but with all of you I feel like you understand
It’s hard to go through this and not get down 😢
@pines. I’ve been finished with my Dificid for 7 days now. I’m so praying that I’m going to make it this time. I have had 3 relapses. 2 from Flagyl & the last one from vancomycin. I went 10 days off the vancomycin & thought I was ok, then I relapsed I was so sick I was taken to the hospital in am ambulance bevause I was so weak I couldn’t stand of lift my arms. I felt better after the IV’s, but was still too weak to even go anywhere within help for over a month. They put me on Dificid then. I’m 7 days finished it & my stomach still doesn’t feel right. I’m praying that it’s just part of the healing process. I haven’t had diarrhea t all. I did have 3 normal stools at first & now it seems like I have to go & it takes forever. I do go but it’s not very much & it’s small. I hope that’s not a bad sign. If I relapse again I’ll have to have the FMT transplant. I’m nervous because I’m down to 85 pounds. I was tiny to begin with. I’ve lost 25 pou in 2 mknths of this awful thing. The drug companies should be ashamed for chatgimg people thus astronomical amount for Dificid. It was 4400.00. My insurance paid it all but 1300.00. That’s horrible. I had to have it though. We are on social security & had to dip into our savings to get it. I just pray I’m ok now. I go to my GI on Friday. I hope I don’t relapse before then.
Prayers 🙏🏻🙏🏻
Prayers for you, none of this is easy and glad we have this forum to turn to when we feel hopeless...hugs~~