C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

@sandyabbey

I’m 26 days post Dificid. So far no relapse, but I had a scare lady night. I had a watery stool once , but I haven’t had any like that. I’ve had cramping during this time also. I see my GI Tuesday Unless get worse before then. I’m sure anxious. I’m going to ask for a retest. I hope you do well @pines

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@sandyabbey Thank you so much for the update. I'm 3 months today post Dificid. And like you, I still worry every time I have any cramping or a loose BM. I'm finding a lot depends on what I eat. Green salads and lots of veggies can give me a scare. (The things that are good for us.) 🙂 I still take Florastor daily and have also found another one that's is about 1/2 the price but still has 440 mg of S Boulardii. I order it from Swansons Vitamins on line. I plan to take S Boulardii for the rest of my life. Our situations are very parallel. We both contacted this from Clindamycin. We both have had 4 bouts of Cdiff. We both took Flagyl, Vancomycin and finally Dificid. We are both on social security. Let's hope and pray we are now Cdiff free. I think posting on this site is also helpful to those who have gone through our situations. Especially if we can stay healthy. And I'm in hopes that the price of Dificid (fidaxamicin) will come down so that more and more patients can get it after a second relapse. People should not have to go through 4 bouts of Cdiff. I wouldn't wish the 6 months of 2018 that I went through on my worst enemy. Stay well and please update us after you see your GI.

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@losthope

Sorry to hear that. My stomach is so sensitive. I don’t like being sick. I am always nervous when j eat anything.

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@losthope How are you doing since finishing Vanco? I went for three weeks after finishing the Vanco taper before I relapsed. I was then prescribed the Dificid. Hopefully, the Vanco will work for you.

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@pines

@sandyabbey Thank you so much for the update. I'm 3 months today post Dificid. And like you, I still worry every time I have any cramping or a loose BM. I'm finding a lot depends on what I eat. Green salads and lots of veggies can give me a scare. (The things that are good for us.) 🙂 I still take Florastor daily and have also found another one that's is about 1/2 the price but still has 440 mg of S Boulardii. I order it from Swansons Vitamins on line. I plan to take S Boulardii for the rest of my life. Our situations are very parallel. We both contacted this from Clindamycin. We both have had 4 bouts of Cdiff. We both took Flagyl, Vancomycin and finally Dificid. We are both on social security. Let's hope and pray we are now Cdiff free. I think posting on this site is also helpful to those who have gone through our situations. Especially if we can stay healthy. And I'm in hopes that the price of Dificid (fidaxamicin) will come down so that more and more patients can get it after a second relapse. People should not have to go through 4 bouts of Cdiff. I wouldn't wish the 6 months of 2018 that I went through on my worst enemy. Stay well and please update us after you see your GI.

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@pines. I had my gall bladder out maybe 20 or so years ago and haven’t really had normal bowel movements since. A few years ago I had three bouts of cdiff. And had not had it since. No idea where I got it as I was not on antibiotics when I first got it. Since then I deal a lot with diarrhea and that is no fun. But you deal with it. Now my concern is copd and lung cancer so to meI put on my depends and hope I dont have an accident and enjoy the day I have. Some of these things are not easy to go thru and that’s when we find out how strong we are. Keep the faith do what you have to and always have someone to talk to and rely on More power to all of you.

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@sakota

@pines. I had my gall bladder out maybe 20 or so years ago and haven’t really had normal bowel movements since. A few years ago I had three bouts of cdiff. And had not had it since. No idea where I got it as I was not on antibiotics when I first got it. Since then I deal a lot with diarrhea and that is no fun. But you deal with it. Now my concern is copd and lung cancer so to meI put on my depends and hope I dont have an accident and enjoy the day I have. Some of these things are not easy to go thru and that’s when we find out how strong we are. Keep the faith do what you have to and always have someone to talk to and rely on More power to all of you.

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@sakota Cdiff spores can live for months on things. You could have picked it up in a doctors office, nursing home or hospital while visiting someone. It's hard to tell. It is not airborne though. Hand washing is key to an infected person. I'm happy to hear that you have not relapsed. Stay well and yes, keep the faith as you battle lung cancer.

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@pines

@losthope How are you doing since finishing Vanco? I went for three weeks after finishing the Vanco taper before I relapsed. I was then prescribed the Dificid. Hopefully, the Vanco will work for you.

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Felt ok for a bit but getting a bit nervous my stomach has been spasming a lot But thank you and god bless

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@losthope

Felt ok for a bit but getting a bit nervous my stomach has been spasming a lot But thank you and god bless

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@losthope How many days has it been since you finished the Vancomycin? Thinking of you & God Bless.

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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Just a couple days. I know it’s coming back I feel under the weather and going to the bathroom a lot. Everything I eat upsets my stomach. Not sleeping well. It’s a battle. Thanks for asking. How are you doing ?

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@losthope

Just a couple days. I know it’s coming back I feel under the weather and going to the bathroom a lot. Everything I eat upsets my stomach. Not sleeping well. It’s a battle. Thanks for asking. How are you doing ?

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@losthope I'm out 3 months since finishing the Dificid (fidaxamicin). I still have days when I have a loose BM but I only go once or twice a day. If you test positive again for Cdiff, you might want to consider taking Dificid. I have also decided if I ever do relapse, I will do the fecal transplant and ask for the pill form from Open Biome. The cost is $635 for 30 capsules and I will be happy to pay for it personally if my insurance didn't cover it. It would be so much less invasive. Although I still need to schedule a colonoscopy this spring.

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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2 days off of vancomycin and already having symptoms not sure if it’s just my body trying to work the right way

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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I’m 2 days after vancomycin and already feeling ill this is crazy

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@terridrag

I’m 2 days after vancomycin and already feeling ill this is crazy

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@terridrag I believe you said this was your first bout with Cdiff and that you were on Vanco for 14 days. When I took Vanco for 10 days, I relapsed after just 5 days. If you test positive again for Cdiff, you might want to ask your doctor for an RX for 10 days of Dificid. It's terribly expensive, even after insurance. But so far, I'm 3 months out since I finished taking it. And I have a friend who is almost 3 years since her 2nd Cdiff relapse. Another person on this site said they were 26 days since they finished Dificid (fidaxamicin). My heart goes out to you. I know first hand what you're going through.

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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I’m in the process of moving from Florida to New Jersey leaving tomorrow for 15 hour ride which means finding new drs I hate this I’m so over it and want desperately to feel normal

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