C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line...are my guts ruined forever ?

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@losthope

I will never forget the smell of cdiff. I actually work in a hospital and you sometimes smell it and gag. I nevertheless thought I would talk about my BM to anyone. I just am glad I have people to talk to it is scared and it is so life changing. I pray for everyone who has this disease and I think clindamycin should be taken off the market

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@lost hope I agree. Clindamycin needs to be taken off the market. It has almost killed me with 3 relapses of Cdiff

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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I call it the devil’s antibiotic. I never knew a week’s course of antibiotics could cause so much devastation for so long. It took me three months of diarrhea, losing 20 pounds, two other rounds with other antibiotics and finally following a strict diet to finally see some improvement.

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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@guthealth…….. most everyone say they got cdiff from antibiotics but that wasn't the case with me. Have no idea where or how I got it but I did. I might of gotten it the second time from the antibiotics I got on for the first round. Had three rounds of it one after another and then I was done and this has been three or four years ago...….. Good luck to you all...…..

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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I have just posted VERY LOW FRUCTOSE, LOW FODMAPS, AND GLUTEN FREE RECIPES AND DIET in the Fructose Malabsorption discussion section. This might be a help to the C-Diff group. I had a very severe case of viral food poisoning that left me with fructose malabsorption, etc. Take a look - you might find it helpful.

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@ngarriso

I have been through this for 2 years. Praying for it to be over soon

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Finally found a specialist and I am excited to see what he will do. First step is the lab work to verify if it’s CDiff again. Then we’ll go from there. I am feeling good about this doctor

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@ngarriso

Finally found a specialist and I am excited to see what he will do. First step is the lab work to verify if it’s CDiff again. Then we’ll go from there. I am feeling good about this doctor

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@ngarriso Yes, the key is getting a good diagnosis. You have to know what you're fighting. And C.diff spores are the most difficult to kill. They last for months on the surface of things. It's key to use Clorox or some type of bleach on everything around your bathroom. I even wiped down the spray cans and light switches. And hand washing for at least 20 seconds. The nurse practitioner at my GI office told me to sing "happy birthday" every time I was my hands. 🙂 I continue to take Florastor every day as suggested by my gastroenterologist. Please keep us updated how you're doing.

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@pines

@ngarriso Yes, the key is getting a good diagnosis. You have to know what you're fighting. And C.diff spores are the most difficult to kill. They last for months on the surface of things. It's key to use Clorox or some type of bleach on everything around your bathroom. I even wiped down the spray cans and light switches. And hand washing for at least 20 seconds. The nurse practitioner at my GI office told me to sing "happy birthday" every time I was my hands. 🙂 I continue to take Florastor every day as suggested by my gastroenterologist. Please keep us updated how you're doing.

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Yes I am realizing now my Gp just wasn’t able to get this cured. I feel like I am on the way to heal. Thank you for sharing your information and I will use it❤️

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@ngarriso

Yes I am realizing now my Gp just wasn’t able to get this cured. I feel like I am on the way to heal. Thank you for sharing your information and I will use it❤️

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It is one big battle but we can win. I pray everyday🙏🏻

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@ngarriso

Yes I am realizing now my Gp just wasn’t able to get this cured. I feel like I am on the way to heal. Thank you for sharing your information and I will use it❤️

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Does anyone else have a good day where they eat and the next day go to the bathroom all day. Not diarrhea just bowel movements which irritation for hour after. I am thinking it’s something other than the cdiff. Diverticulitis or colitis or irritable bowel. Any thoughts

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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Could be all you mentioned but also what you ate day before. Helpful to keep food diary of trigger foods

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