C. difficile – Are your guts ever normal again?

Posted by sue6408 @sue6408, Jan 27, 2019

Does anyone know any body that has recovered from c.diff (guts back to pre-c.diff status ) . I have been negative for a year and still have bloating every time I eat anything and sporadic diarrhea. I need maternity clothing to eat and be comfortable. I have 0 appetite since I was initially infected.I am on creon 36,000 . this helps some what with bloating,I take papya&pineapple enzymes not helping, and floraster 2xday not sure about that.I have tried the FODMAP diet, I avoid many foods on that diet. I am seeing an RD, just finished an elimination diet with her. If I eat I bloat there for I am. Bottom line…are my guts ruined forever ?

@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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I agree it’s horrible I trust no doctors anymore

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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From what I've been reading, more and more doctors are no longer prescribing Flagyl for the first episode of Cdiff. They're using Vancomycin. I hope more doctors will prescribe Dificid (fidaxamicin) if there is a relapse. Cliff is so hard on our bodies. And it takes months after an episode for the colon and intestinal tract to get back to normal. And it's not only a physical challenge, but also a mental one. Whenever I have diarrhea, for even ONE day, I fear Cdiff is back and my emotions run rampant. I thought I did everything right, yet I went through FOUR episodes of Cdiff in 2018. And with every episode, my chances of a reoccurrence went higher. I did the bleach, the wipes, the hand washing, you name it. We were very careful and none of my family members were infected. But I also lived with that fear. My heart goes out to all of you who are fighting this battle. It's something I'd never even heard of until I took Clindamycin and a couple weeks later, became so sick. I now feel like a "Cdiff expert." 🙂 I wish you all well in 2019.

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@pines

From what I've been reading, more and more doctors are no longer prescribing Flagyl for the first episode of Cdiff. They're using Vancomycin. I hope more doctors will prescribe Dificid (fidaxamicin) if there is a relapse. Cliff is so hard on our bodies. And it takes months after an episode for the colon and intestinal tract to get back to normal. And it's not only a physical challenge, but also a mental one. Whenever I have diarrhea, for even ONE day, I fear Cdiff is back and my emotions run rampant. I thought I did everything right, yet I went through FOUR episodes of Cdiff in 2018. And with every episode, my chances of a reoccurrence went higher. I did the bleach, the wipes, the hand washing, you name it. We were very careful and none of my family members were infected. But I also lived with that fear. My heart goes out to all of you who are fighting this battle. It's something I'd never even heard of until I took Clindamycin and a couple weeks later, became so sick. I now feel like a "Cdiff expert." 🙂 I wish you all well in 2019.

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You are feeling better now I’m on my 10th day of vancomycin is it normal to still have D and stomach ache

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@terridrag

You are feeling better now I’m on my 10th day of vancomycin is it normal to still have D and stomach ache

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@terridrag Is this your first episode of Cdiff? Unfortunately, some of the things you're going through may be caused by the Vanco and not Cdiff. Vancomycin is a strong drug and also used on MRSA patients. If this isn't your first episode, you might want to ask your doctor about Dificid (fidaxamicin) if you have a relapse. I had less side affects with it and it only kills the Cdiff spores and leaves your good bacteria alone which help to fight off the Cdiff. Are you doing the Vanco taper or just taking it for 10 days?

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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It’s my first time on anything for cDiff I’m on it for 14 days total I just want to be able to eat again I’m very limited no gluten dairy can only eat sweet potatoes gluten free toast and crackers and soup and that’s a good day

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@terridrag

It’s my first time on anything for cDiff I’m on it for 14 days total I just want to be able to eat again I’m very limited no gluten dairy can only eat sweet potatoes gluten free toast and crackers and soup and that’s a good day

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@terridrag My heart goes out to you. With my last (4th) episode, last October, I lost 10 pounds the first two weeks. I put it all back on over the holidays. Try to stay positive and hopefully you'll feel better as soon as you can get off the Vanco. And take Florastor daily. Please keep us updated how you're doing.

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@pines

@terridrag My heart goes out to you. With my last (4th) episode, last October, I lost 10 pounds the first two weeks. I put it all back on over the holidays. Try to stay positive and hopefully you'll feel better as soon as you can get off the Vanco. And take Florastor daily. Please keep us updated how you're doing.

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I will thank you

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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I have had 3 episodes and finishing Vanco. I take Florastor twice daily and I too am lactose intolerant. I have days when I can eat some foods but if I eat something wrong I know the next day. I feel that my colon can not absorb my food so I empty out the next day. I then have hunger issues and the cycle of disappointment repeats itself. I am glad there are those of you that are fortunate enough to beat this. I hope I will be one soon to the person who has just be diagnosed do the Florastor if you are able and be your own advocate and get the dificid if you can. I have read many of these posts and it seems that is the best treatment. I know it’s expensive but I would pay every dime I have to be healthy again. When I am better I will be addressing the clindamycin issue by writing a detailed letter to the FDA This should not happen to anyone else .. prayers to all fighting this battle🙏🏻

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@losthope

I have had 3 episodes and finishing Vanco. I take Florastor twice daily and I too am lactose intolerant. I have days when I can eat some foods but if I eat something wrong I know the next day. I feel that my colon can not absorb my food so I empty out the next day. I then have hunger issues and the cycle of disappointment repeats itself. I am glad there are those of you that are fortunate enough to beat this. I hope I will be one soon to the person who has just be diagnosed do the Florastor if you are able and be your own advocate and get the dificid if you can. I have read many of these posts and it seems that is the best treatment. I know it’s expensive but I would pay every dime I have to be healthy again. When I am better I will be addressing the clindamycin issue by writing a detailed letter to the FDA This should not happen to anyone else .. prayers to all fighting this battle🙏🏻

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@losthope I read a study that was done in 2011 regarding vancomycin vs fidaxamicin (Dificid). The major difference is that Vanco also kills your good bacteria. The Dificid only attacks the Cdiff spores. Without that good bacteria the Cdiff spores just continue to flourish. I had people wonder why I kept having relapses after taking Flagyl and Vanco twice (once for 10 days and once doing the Vanco taper). I felt like they didn't think I was cleaning the bathroom or washing my hands enough. People don't realize that Cdiff is hard to kill and except for Dificid, the other treatments are also killing your good bacteria along with Cdiff spores. There's also two different strains of Cdiff. You could also have a different strain than the original infection. This week, on the 26th, it will be three months since my 4th bout with Cdiff. Prior to taking Dificid, three weeks was the longest I had gone without relapsing. I wish you well in 2019.

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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Thanks for the info. I am going to share

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@pines

@sandyabbey I was in hopes you would give us an update after finishing the Dificid. I agree with you regarding the cost. I could have taken it after my first bout of Cdiff when the Flagyl didn't work. But I decided, because of the cost, to go with Vancomycin. And after doing 10 days on Vanco and then another relapse and doing the Vanco taper, I finally said enough and I'll pay the Dificid high price. Our insurance paid all but about $1,000. Terrible. But they say it's because it's a new drug and is only used for C.diff. I finished the Dificid on Oct. 26th and have not had a relapse. I knock on wood every time I say that. I now need to make an appointment for a colonoscopy. I'm worried about doing the cleaning and going through the process. And like you, if I have another relapse, I'll do the FMT. 2018 is a year I'm happy to put behind me. 🙂

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I’m 26 days post Dificid. So far no relapse, but I had a scare lady night. I had a watery stool once , but I haven’t had any like that. I’ve had cramping during this time also. I see my GI Tuesday Unless get worse before then. I’m sure anxious. I’m going to ask for a retest. I hope you do well @pines

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@bluebanana

I'm suffered for 7 days with what I thought was a bad case of the stomach flu until I went to my family doctor and they requested a stool sample and found from that that I had c-diff I believe this is the sickest I've ever been in my entire life

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Sorry to hear that. My stomach is so sensitive. I don’t like being sick. I am always nervous when j eat anything.

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