Might it be temporary sadness? How to make him feel better?
Hello,
I am feeling apologetic for posting, as many of you have far bigger things to worry about…but I’m wondering if my husband’s recent sadness/depression might be temporary, and hoping you’ll reassure me.
On Tuesday, he had Moh’s surgery for a spot on his scalp, which turned into a much larger area than we had thought. That was 2 days ago…it hurts, tho the Advil/Tylenol and icing regimen they suggested seems to help.
I believe, more than the actual procedure or pain, he is bothered by having more and more medical appointments. He is usually pretty easygoing, but with every other week Leqembi infusions (Tomorrow will be #4) he sees this as “the rest of my life” (he’s 80.). MRI on Monday…etc…
Dare I hope that once the pain and pressure on his head ease, his personality will right itself? He has gotten much more confused and less able to do things for himself just in the last few days…cognition seems to have changed and not for the better.
As I said, so many of you are dealing with other diseases/hospitizations, etc along with dementia, I hesitated even writing, but I guess all of our concerns are valid, for wherever we are on this horrible journey.
(He is on Lexapro, 10 mg.
We’ll get out of the house and do something fun soon-once he’s feeling better.
I just don’t know how to help him feel better. Thank you.
Interested in more discussions like this? Go to the Caregivers: Mild Cognitive Impairment (MCI) & Dementia Support Group.
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@2me PS, again. I served my husband lunch the other day, and on top of it, I playfully put a blue rubber standup fish (that I had used a while back on a holiday cake). My husband used to fish a lot, now of course he doesn't even take the boat out. Yet, when he saw that fish, he started talking about the 900-pound tuna he caught on Cape Cod years back before the memory loss. We "normalize" what we can and bring back the memories hoping they will remember. I think that creates hope for both of us.
Best, Karla
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3 ReactionsI@kjc48 Hi Karla, thanks for this nice note!! That is so very cool, that you had a good discussion with your husband! And if I remember correctly, you are in Florida, so the card with contact info is “a thing” down there, and how nice of that person!. (We wintered in FL for several years)
As I think I mentioned, I visit the hospital and infusion room with my therapy dog (whose name is perfect (Magic)) so the nurses are used to seeing me around (tho sometimes I’m not recognized without the dog)😊I will take your suggestion and ask if they could facilitate conversation. I wish this was a room dedicated to Leqembi/Kisunla infusions, so there would be more of a chance of common ground, but people are in there for various other reasons, like Iron infusions etc.
Leqembi is giving us all hope! (And meanwhile, as I tell my husband, scientists are at work to find the next new thing to help!). Best wishes.
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5 Reactions@kjc48 Karla, that is awesome! Yes, the “normal” conversations and pleasant memories are so very important—for the patients and those who love them!! 😊
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4 Reactions@kjc48
That is wonderful!! I’m not sure the “AD” diagnosis is recognized by my husband, tho his sister passed from it. I’m gradually trying to get medical facilities (and other places we do business) changed over to calling my phone also, and my husband is in full support of that. Thank you again, for your great thoughts and the support!
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4 Reactions@2me Tell him that he's your care partner, too. You're both helping each other. When my husband told me that HE was MY care partner, I almost fell over. Out of the mouth of babes, WOW. But I think, if we approach it that way - care partners for each other - and tell them how we feel, it makes it more palatable, especially when they are resisting something, that later might register in their brain. I just remember having a dialogue with my husband about using a water pik, as I was detecting, off and on "not so good breath." he was so resistant at first, but when I came at it, that because we're care partners for each other, trying to help each other not have additional medical or dental problems, one night and since then, I've been hearing the water pik. I didn't mention it to him because he's using it. Let him think it's his idea.
Maybe one or two nights, he forgets, but he's doing it.
Best, Karla
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6 Reactions@2me I sometimes think as women, we overthink. I've been doing that a lot lately in this remodel since I've been in a rental for a year and desperately need to finish this house and sell. Love the name Magic for a dog. Perfect name and I bet that dog works magic for both you and your husband. Don't worry about a dedicated Lequembe/Kinsula room, because my husband is coming home telling me about all the various infusions taking place, and I think it's perked his interest, at least on that day. What we think, sometimes doesn't even register with them. All we want is people in that room - regardless of what they are taking infusions for - so he can engage. And I promise, he will over time. It took my husband a bit. I love the dog, coming in, do they let the dog in the infusion room with him? As that could be an initial people magnet too for discussion in the chairs! Enjoy the back and forth this morning. Thank you for your share/responses. Best, Karla
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4 Reactions@2me PS you have a great memory. You remembered I was in Florida!
Best, Karla
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2 Reactions@kjc48 Karla, Your house situation must have been a lot to handle in addition to everything else going on in your life! Mold, then rental…and moving again? Good point, on different reasons for infusions making for interesting conversations! Magic was my sister’s dog and we adopted him when she passed. When he was a puppy and she told me the name, I thought “well, that’s different”…but it is perfect for him! In fact, I had stickers made to give out to people that say “I believe in Magic”. Yes, we do go in the infusion room to chat with people, and our hospital has 25 therapy dog teams, which opens up lots of conversation, and the dogs help staff and patients alike (along with family members who are visiting). It is so therapeutic to me, to have the privilege of visiting! Have a great day, and thank you for the great conversation! To be continued….😊
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4 Reactions@2me I also do volunteer work with a therapy dog program. My pup, Maggie, loves to go to the hospital and other various places to spread some love and cheer. We go into the infusion areas as well. The pups provide a wonderful distraction to those who are there receiving treatments.
I visit when my husband is at Respite. I love the time I get to spend with her doing that. 😊
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7 ReactionsI very much connect with what you’ve said. My husband has faced a variety of illnesses in the past 2 years: prostate cancer, radiation, severe low back pain withradiculopathy from spinal,stenosis, bilateral, two-level laminectomies and foraminotomies, pneumonia with sepsis, mild dementia . Recently he had a UTI after his urologist performed a cystoscopy, and the last month he has deteriorated both physically and mentally. He often doesn’t know if it’s day or night, says bizarre things not connected to reality, and is increasingly needy, lonely and sad. Very difficult to watch and live through
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