Husband has forgotten my name
We are on year 3 and this has been really hard first with the diagnosis after a year of analysis, then getting in high gear to understand the reality, then trying EVERYTHING to change the diagnosis or at least slow it down. Today my husband asked me what my name was..my insides and heart fell apart in secret as I calmly told him and repeated it throughout the day. I am not sure I am going to able to do this😭. And I don’t really know where to go from here as it all seems so useless and the fact that I am really going to lose the rest of the man I love dearly is just unbearable. I know you have all been here, I am just venting what I lied to myself over the last three years. No one is coming to save either of us.
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I am so extremely sorry to hear that. It would devastate anyone. Two weeks ago, my mom forgot my husband's name. We've been married 35 years and her forgetting his name, gutted me. I know it is a matter of time before she forgets mine. Hugs!🫂
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7 ReactionsSo sorry. You are not alone. It's a shock when it first happens. I remind myself that my Mom still knows it's me. I know this, too, might not remain. Glad you are on here, the support is helpful. Hugs
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6 ReactionsMy husband with PD and LBD has forgotten my name. He doesn't recognize me as his wife of 52 years. He continues to ask me to call his darling wife to come get him. I believe he is searching for the 22 year old he married. I settled for the fact that even though he doesn't know who I am, he knows I take good care of him and I love him. God bless ~
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4 ReactionsIt seems to me that the people who are caregivers for people with dementia need better information of what is likely to happen in the dementia process and perhaps would be better able to understand what seem like awful insults and dismissals. The people writing on this forum are suffering greatly, I understand, but maybe if they understood better that things said and done by the person with dementia are just symptoms of their disease not personal attacks. The similarities reported by caregivers is evidence that unpleasant behaviors are the norm unfortunately, not the exception.
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2 ReactionsIt broke my heart too when I realized my husband did not know my name the first time or who I was. I would just tell him what it was and go on. But there have been other times that out of the blue he says my name so if that happens with you and your husband it will be a pleasant surprise.
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4 Reactionsboppi, there is no one who can "save" you. However, there are many who can assist and guide you, through this extremely rough patch. You've done the right thing by sharing your situation on this site. There are so many who post here on a daily basis, who are currently in the same situation as you, and they all have experience, some many years, that is shared with those in need of advice. You may also want to contact the Alzheimer's Association, speak to one of their agents, get their hot line number and use their wealth of experience to help guide you. Please, do not feel that you are alone, we are all, either currently going through the same life changing events, or have been there in the recent past. You arre not losing the man you love, you are moving into a new phase of how you will express your love for him. And please, show him as much love and attention, as you can muster, He needs it and you will benefit from the results. as well. Although it may be somewhat repetitious to those who come here regularly, but I have to tell you what I did when my wife did not recognize me, which was frequently. I would just accept the fact, and play whatever role I was assigned. If she called me "dad" I became dad as long as necessary. Don't attempt to force him to recognize you as who you actually are, it won't work, and may cause him to be upset, as well as upsetting yourself. Be strong, talk to family & friends, contact a local agency that may be able to direct you to support groups nearby. Don't lose faith, he's still in there, just depending on you, now probably more than ever.
Best to you and the man you love so much. Take care of yourself, so that you can take care of him.