I'm Disappearing

Posted by judimahoney @judimahoney, Jul 19 10:07pm

The way my husband speaks now completely dismisses me, as if I don't exist.
Today he referred back to a concert that we went to together, saying "I went to his concert." I immediately followed with, "WE went to that concert together." I always try to get myself back in his world where I belong.
Sorry for the grammar talk, but he's most often using the first person tense, talking just about himself when the events included or include both of us.
I know the reason he is self-focused, however it is heart-wrenching nonetheless.
We share so much history together, now so much is lost.
Next month we'll celebrate our 40th anniversary. I no longer expect gifts, cards or any effort whatsoever (having learned over the years it's not on his radar screen).
I strive to remain relevant in my husband's life (and not just from a caregiver point of view), I just must.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

Profile picture for kmliste @kmliste

@tsch
Truly I am sorry I hurt you. You are correct. I was very angry at you.

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@kmliste
You have a right to be angry but not at me. I did not intend to diagnose anything. I tried to say you need to take care of yourself. Your road is a tough one. (I am a social worker speaking from my experiences.)

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@2me
Every person caring for someone with dementia should be recognized as a hero of a sort.. There is no happy outcome, just managing as best one can. The risk to health is definitely higher for the caregiver. The caregiver should utilize outside support and make time for themselves. This is critical for both the caregiver and the person they assist. Also, caregivers need to explore any state programs that may help them. They vary depending on where person lives but it is a tough road-no question about it. Good luck to you and I hope you live where you can get some assistance as needed.

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@tsch You are right about this, for sure. One day at a time. Take good care!

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Profile picture for tsch @tsch

@kmliste
You have a right to be angry but not at me. I did not intend to diagnose anything. I tried to say you need to take care of yourself. Your road is a tough one. (I am a social worker speaking from my experiences.)

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@tsch
We can argue infinitum. I talked with a my counselor and showed the context and your statements. She said it was okay to call you out because of the site parameters and boundaries. I respect that you are a social worker. I am a newly retired physician.

I do hope you will accept my apology for hurting your feelings. I think you meant well.

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@kmliste
I am not arguing. Sorry if you feel we are. You do not need to apologize and I understand where you are coming from. (My feelings are not easily hurt.) My comments were only to be helpful to you and others. Whether we are social workers or physicians, in the end we are just people trying to do the best we can with life’s challenges. I did mean well. Sorry if I offended you.

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@gratia Beautiful plant! Are you a gardener? I am! It is so wonderful! Please as you are up to it show us your plants!
I surely understood your statement, “as much as I try to be light-hearted, it hurts.”
Lots of hugs.

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@kmliste Hi there, I’m not a gardener but I love taking photos when I get the time to be outside! Gets my mind off things and seeing natural beauty is healing ❤️‍🩹

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Profile picture for Gratia @gratia

@kmliste Hi there, I’m not a gardener but I love taking photos when I get the time to be outside! Gets my mind off things and seeing natural beauty is healing ❤️‍🩹

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@gratia
I agree! Loved your photo of the echinacea. Here is one for you! These smell so good and just in case you are not familiar with this plant, they bloom at night.

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@gratia The other day I watched a bird fledge. Momma bird was close by all the way!

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Profile picture for tsch @tsch

@kmliste
I am not arguing. Sorry if you feel we are. You do not need to apologize and I understand where you are coming from. (My feelings are not easily hurt.) My comments were only to be helpful to you and others. Whether we are social workers or physicians, in the end we are just people trying to do the best we can with life’s challenges. I did mean well. Sorry if I offended you.

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@tsch We’re good. Thank you. I just did not understand the bad marriage part or the not clear about dementia.

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Profile picture for kmliste @kmliste

@gratia
I agree! Loved your photo of the echinacea. Here is one for you! These smell so good and just in case you are not familiar with this plant, they bloom at night.

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@kmliste Thank you for sharing - that is gorgeous. It reminds me of a gardenia. Is it a tropical flower? I’ve never seen one of those before. ✨

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Profile picture for kmliste @kmliste

@gratia The other day I watched a bird fledge. Momma bird was close by all the way!

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@kmliste Thats such a special sighting! I love watching baby birds learning. I saw a tiny sparrow baby who was watching a big grackle drinking water out of a bird bath. The tiny sparrow flew up and copied the other bird. It’s really amazing to see things happening in nature. It puts things into perspective quickly for us.❤️✨

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