husband with off again, on again cognitive impairment, stressful

Posted by cloudydaysue @cloudydaysue, Jun 9 4:54pm

My husband is getting worse with his cognitive issues. He will not give up his phone and has daily problems with it. He now thinks the remote is his phone and vice versa. He wants to change the TV stations with his iphone and gets angry that he needs to use two devices, one for his phone , one for the TV. Now he wants to get utube on his phone which will open up another round of confusion. He is also making appointments with doctors, and others without my knowledge, then he forgets about them or I have to catch up and and either cancel them or go to them, although they aren't needed. He is getting angry with me and thinks I am too controlling. I'm so stressed, I can't keep up with his activity. Thanks for listening I just needed to vent. I feel I'm not doing things correctly.
Cloudydaysue

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Profile picture for cloudydaysue @cloudydaysue

@shmerdloff Yes, I do it for love, how can you do otherwise when you've been with someone for 48 years. Finding time for myself is sometimes difficult but so far I'm paying attention to my needs too.
Thank you for the reinforcement and reminder.

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@cloudydaysue
😄stay with connect👌

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Profile picture for Fred @fred1

I cannot imagine what you are going through. My wife, who passed away six months ago, while suffering with a form of dementia for six years, was never into social media. She, and I, both had/have cell phones - but not smartphones. So...I never had to deal with the problems of internet and social media interactions while caregiving for those six years. Maybe, if at all possible, you could confiscate your husbands phones, trade them for a simple cell phone without all of the high tech. options. Come up with some excuse as to why they are no longer able to access the internet - (Supplier no long provides it or some such nonsense.) Might cause a temporary problem, depending on the level of husband's illness, but may just solve the problem.
Good luck, hopefully you are able to resolve this problem quickly - but is you are not able to resolve it - However, be patient, it will pass - and a completely different phase will have to be faced. Stay strong, provide a lot of love and attention, you will never regret it.

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@fred1
I am the one who deleted my husband's Facebook app on his phone last week. Surprisingly he has not said one word about it; I was ready for the pushback but none has come. Crisis averted so far. 😬

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Profile picture for judimahoney @judimahoney

Hi, I am in the same boat as you. My husband was scheduling appointments for unnecessary services (home inspections, twice), and getting just a ton of spam and potential scam on his phone. He doesn't remember doing it, so it's embarrassing when folks show up at our home for no reason.
So, I deleted his Facebook app on his phone, because that is how he was communicating with vendors (even though I monitor his email, texts and voice-mail, and ask him to put any call he receives on speaker (I had to deal with dental insurance call this morning that he'd requested, and we already have insurance).
It's a nightmare, and I can read the writing on the wall; someday we'll have to give up his phone because of problems it's causing. I hate to set us up for fraud, so scary.
Good luck to you! 🪷

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@judimahoney I'm sure you've done this Judy, but just freeze your credit with the three credit bureaus, and put on fraud alerts. I had to do it, my husband had so much scam on his phone and PC and was clicking here and there. I mentioned it awhile back on this site, but he was hacked into in 2024. They got into our bank accounts, credited card accounts, were setting up payments to a fictious bank called "green bank" and tried to draw from our bank accounts. Whoever, got access to his PC, was changing the outlook commands, to where he wasn't getting any email on his phone, as they took over his PC. I can't even begin to tell you how nervewracking that was, so I froze everything with the three credit bureaus. We had to cancel everything and get new accounts, new credit cards, etc.
I'm sure you know this, but it's worth sharing again. Because when the PC guy showed up for a month, he could see on the server all the sign ons from someone or a group of people that had hacked in. They showed different sign on location from all over, but as the PC guy said, it could have been the same person. I worry every day, when I see my husband on the PC and the phone, which he's on all the time. Mine isn't on Facebook, but he's up there clicking on everything else anyway. Best, Karla

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Profile picture for kjc48 @kjc48

@judimahoney I'm sure you've done this Judy, but just freeze your credit with the three credit bureaus, and put on fraud alerts. I had to do it, my husband had so much scam on his phone and PC and was clicking here and there. I mentioned it awhile back on this site, but he was hacked into in 2024. They got into our bank accounts, credited card accounts, were setting up payments to a fictious bank called "green bank" and tried to draw from our bank accounts. Whoever, got access to his PC, was changing the outlook commands, to where he wasn't getting any email on his phone, as they took over his PC. I can't even begin to tell you how nervewracking that was, so I froze everything with the three credit bureaus. We had to cancel everything and get new accounts, new credit cards, etc.
I'm sure you know this, but it's worth sharing again. Because when the PC guy showed up for a month, he could see on the server all the sign ons from someone or a group of people that had hacked in. They showed different sign on location from all over, but as the PC guy said, it could have been the same person. I worry every day, when I see my husband on the PC and the phone, which he's on all the time. Mine isn't on Facebook, but he's up there clicking on everything else anyway. Best, Karla

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@kjc48
Great idea. What a hassle, and so sorry that happened.

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Profile picture for judimahoney @judimahoney

@kjc48
Great idea. What a hassle, and so sorry that happened.

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@judimahoney It's scary stuff Judy. I couldn't believe how long it took us to get everything straightened out. He clicked on something, got into some link and ended up, with hackers. They changed his PC multiple times, and we knew it, because it wasn't downloading to his phone. I had to go back into Experiean, Transunion and Equifax and recently do the fraud alert and freeze the credit for a year. Even with that, I'm nervous over what he's doing up there. Now, he did something that he tapped into, and his entire screen is too large and way off to the right. Gosh, I can handle a lot of things, but the technology stuff drives me nuts, because I can't fix it. I'm into our accounts tracking them, but I can't do that 24 x 7. Oh well...another day, tomorrow. Best, Karla

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Hi:
One difference is that my husband only looks at the internet on his phone, not our laptop, so... he to date hasn't accessed any dangerous sites.
Currently he scrolls the internet on his phone and watches clips from old TV shows and music videos. Right now it's ok, till it isn't, right?
What a mess you had though, and probably complicated to sort out. Hugs to you.🌻

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In reading everything- and thanks to everybody for all the tips and wisdom and sharing!- I feel like this time of inconsistent behavior is almost the hardest! My husband, too, has all kinds of (self-imposed mostly!) tech problems and is constantly losing and changing passwords. He's made some very radical stock moves based on what turned out to be an AI podcast, BUT he's still alert enough that most of the protective suggestions won't work. I'm scared of waiting until something catastrophic happens to use the power of attorney. Is that how it has happened for folks in this thread? If you were able to proactively freeze accounts, take away phones, prevent driving, etc BEFORE something happened- and while your spouse was still aware enough to protest.... how did you go about it?

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Profile picture for judimahoney @judimahoney

@fred1
I am the one who deleted my husband's Facebook app on his phone last week. Surprisingly he has not said one word about it; I was ready for the pushback but none has come. Crisis averted so far. 😬

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@judimahoney
Maybe it's acceptable to gaslight another under the proper circumstances.

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Profile picture for shmerdloff @shmerdloff

@judimahoney
Maybe it's acceptable to gaslight another under the proper circumstances.

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@shmerdloff
Gaslight = protection

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Profile picture for theglobalnomad1 @theglobalnomad1

In reading everything- and thanks to everybody for all the tips and wisdom and sharing!- I feel like this time of inconsistent behavior is almost the hardest! My husband, too, has all kinds of (self-imposed mostly!) tech problems and is constantly losing and changing passwords. He's made some very radical stock moves based on what turned out to be an AI podcast, BUT he's still alert enough that most of the protective suggestions won't work. I'm scared of waiting until something catastrophic happens to use the power of attorney. Is that how it has happened for folks in this thread? If you were able to proactively freeze accounts, take away phones, prevent driving, etc BEFORE something happened- and while your spouse was still aware enough to protest.... how did you go about it?

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@theglobalnomad1
For me, taking away my husband's debit and credit cards, and getting him to 'voluntarily' surrender his driver's license, was a screaming episode on my part with tears and yelling and an absolute insistence that this was the way things had to be because his brain was not giving him correct info and we need to be safe on the road and keep others safe (he has anosognosia, so has no awareness of his issues, which makes all this exponentially harder).
He didn't yell during this process, he just gave his usual flat affect facial expression and probably wondered why his wife was screaming and crying. Nearly getting killed by a demented driver is awful, I nearly threw up. Financial abuse is also scary; he still reports that his debit and credit cards are missing.
So, this process of taking away his independence has been heartbreaking but necessary, and I HATE making every decision by myself. It's very lonely.

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