Living with Neuropathy - Welcome to the group

What sort of exercise program works well with idiopathic neuropathy. Does exercising numb and weak body parts extend their usefulness or slow down progression? It is very hard to balance.

Hello @fumi, Welcome to Mayo Clinic Connect. I have idiopathic small fiber peripheral neuropathy and walking is a little difficult for me. I have an exercise bike that I use several times a day and I also try to do a little walking (emphasis on little for me due to back pain). I'm not sure exercise will slow down the progression but I think it helps you keep up your strength and flexibility so that you are able to keep moving. Balance is also another issue I have so I make sure I get up slowly and wait a few seconds before starting to walk. There are a couple of other discussions you might find helpful.

- Neuropathy & Exercise: https://connect.mayoclinic.org/discussion/neuropathy-exercise/
- Having trouble keeping your balance?: https://connect.mayoclinic.org/discussion/having-trouble-keeping-your-balance/

Do you enjoy walking?

Hi @fumi I would also like to welcome you. I agree with John. I have neuropathy and balance issues. Exercise is a benefit for me. It improves circulation and can help with nerve regeneration. It is a slow process but I think exercise can be helpful for neuropathy. Ask your provider if exercise is OK for you.

@greeneyes55 You mentioned CBD oil for neuropathy. Below I have linked a previous discussion regarding CBD oil and neuropathy. You may want to scroll through the comments.

- CBD oil for Neuropathy https://connect.mayoclinic.org/discussion/cbd-oil-for-neuropathy/

I'm wondering what if any kind of direction providers are giving regarding the use of CBD oil for neuropathy?

Hello I've just been diagnosed with anti-MAG peripheral neuropathy. My Neurologist and internet searches say that it is extremely rare. He is talking about getting approval for starting IVIg treatments. Has anyone had experience with this type of neuropathy and or the treatment?

@faithwalker007
What type of seizures do you have? Do you have Epilepsy?
Take care,
Jake

I have epilepsy and I’ve had seizure activity since I was 14 although my neurologist then never told my parents. I discovered it when I started professional pharmacy school (the first year when I was a junior at university at Laramie). I had my first grand mal seizure in our kitchen and my 4 year old son found me after hearing my head hit the counter and my land on the floor and begin seizing. He then ran to my husband and he called 911.
I barely passed pharmacy school after that because of all the experimentation and reactions to seizure medications over the course of the next two years. But I did it!

Hello @larrymc, Welcome to Mayo Clinic Connect. I'm hoping that there are others with Anti-MAG Peripheral Neuropathy who will be able to share their experience. There is another discussion on IVIG Infusions that you may find helpful.

- IVIG Infusions: https://connect.mayoclinic.org/discussion/ivig-infusions/

In case you haven't seen these, the Foundation for Peripheral Neuropathy and the GBS/CIDP Foundation both have information on Anti-MAG Peripheral Neuropathy here:
- Anti-MAG: https://www.foundationforpn.org/what-is-peripheral-neuropathy/causes/autoimmune-disease/anti-mag/
- Anti-MAG Peripheral Neuropathy: https://www.gbs-cidp.org/variants/anti-mag/
- Immunotherapy for IgM anti‐myelin‐associated glycoprotein paraprotein‐associated peripheral neuropathies: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6457998/

Are you able to share a little more about your symptoms with your anti-MAG peripheral neuropathy?

@faithwalker007 you are amazing!!

Uh... why?