Living with Neuropathy - Welcome to the group

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@jakedduck1

@sunnyflower
”I'm trying to get off sugar”
What a terrifying thought!!!!

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Amen! 😢

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@jimhd

@jakedduck1 I've never asked about fentanyl. I'll put it in my list of things to discuss with the doctors.

Starting today, I'm taking 30mg in the morning and 30mg at bedtime, the same as several other meds. That will be less complicated. If I think of it, I'll take the mscontin a couple of hours before bedtime so it will have had some time to kick in.

Jim

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Hi Guys, I 'm sure you probably already know, but just in case, Fentanyl is 80-100 times stronger than morphine. One practically has to be on their death bed for a doctor to prescribe it. I so hope that you get the relief you deserve!! @jakedduck1 🙏😟

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Has anyone tried a good grade of CBD oil?

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@greeneyes55

Has anyone tried a good grade of CBD oil?

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I order from Lazarus Naturals and if you provide them certification of disability they offer a significant discount. It only mildly works for me but my husband swears by it for his knee pain and lower back pain. We use CBD balm 1200 MG of CBD (my husband says this works better) and CBD massage oil 1600 MG full spectrum. The oil is good for giving a massage. Worth a try. Excellent customer service!

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@greeneyes55

Has anyone tried a good grade of CBD oil?

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You have to get cannabis CBD for it to work. I look for 18:1 or 20:1 CBD - that means 18 or 20 parts of CBD to 1 part THC. The THC is absolutely necessary to activate the CBD, but it is such a small amount, you probably won't feel it. If you do feel it - keep taking the CBD daily and in no time at all, you will not feel the THC. I have been using CBD for pain for about three or four years now, Brand names don't seem to make much difference, but you just won't get relief using hemp CBD - make sure it is cannabis CBD.

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@greeneyes55

Has anyone tried a good grade of CBD oil?

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Yes. I tried one in the past that didn’t help me and actually gave me headaches and then with my doctor’s permission, tried again.
I consulted my pharmacist and am now using one that is Pharmacist grade and made, every batch third party tested for strength and quality.
It’s made by zova and information can be found at zovacbd.com

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@faithwalker007

Yes. I tried one in the past that didn’t help me and actually gave me headaches and then with my doctor’s permission, tried again.
I consulted my pharmacist and am now using one that is Pharmacist grade and made, every batch third party tested for strength and quality.
It’s made by zova and information can be found at zovacbd.com

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They even have veterinarian products.

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@faithwalker007

Yes. I tried one in the past that didn’t help me and actually gave me headaches and then with my doctor’s permission, tried again.
I consulted my pharmacist and am now using one that is Pharmacist grade and made, every batch third party tested for strength and quality.
It’s made by zova and information can be found at zovacbd.com

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Thank you for the info, I'll research the site.

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@greeneyes55

Thank you for the info, I'll research the site.

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Tablets, creams and balms will reduce your absorption rate. Tablets at second highest at 10%, oil at highest under the tongue at around 20% but no matter the absorption rate, you must have a uniform, verified elixir to make sure your dose is the same when you take it.
I can trust what I am taking with zova because each batch is tested. It comes in a glass bottle with a glass measured dropper.
I suggest titrating your dose up. Zova cbd oil has absolutely no thc in it.
I’ve been on it about 2 weeks and so far it has served as a muscle relaxant for the extremely tight muscles and cramps which are a direct result from my CRPS. I’m not saying it works all the time but it helps with them and my Sleep and I only take 25mg SL three times a day.

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@parrotqueen

You have to get cannabis CBD for it to work. I look for 18:1 or 20:1 CBD - that means 18 or 20 parts of CBD to 1 part THC. The THC is absolutely necessary to activate the CBD, but it is such a small amount, you probably won't feel it. If you do feel it - keep taking the CBD daily and in no time at all, you will not feel the THC. I have been using CBD for pain for about three or four years now, Brand names don't seem to make much difference, but you just won't get relief using hemp CBD - make sure it is cannabis CBD.

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I’m sorry, I don’t agree with this assessment. The key with cbd is NOT to feel the effects of THC.
The relaxant effects of cbd is possible WITHOUT the cognitive impact of THC.
This is the experience I have found productive. I already have too much cognitive impact with CRPS and don’t need any more from THC. In fact the product you are recommending interfered with my seizures and migraines and gave me severe headaches.
PLEASE be careful recommending THC containing products to anyone.
CBD oil and CBD/THC oil are not the same thing.

But then you did mention the THC in the product so cudos to you.

As a pharmacist, I do not recommend THC products due to the interaction with opioids and disease states.

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