HCM-ers: Introduce yourself or just say hi

@karukgirl
My video evaluation is May 4.
No list of questions just yet. Building them over the next month as I come up with them.
I would like to know if this would be anyway related to the Pericardectomy I had in 1996.
I do have some symptoms but they aren't overly pronounced most of the time.

71 y/o female with HCM taking Camzyos. Need to also find effective treatment for neuropathy/increasingly numb soles of feet affecting ambulation. Considering a supplement called Amla.

@mikemelling , well there you have it...your first question to put on your list!
May 4 is coming up fast, though it may seem like a long ways off when you are concerned about this new condition.
Do take some time to get familiar with as much as you can take in about this condition. It can be overwhelming at first, so go at your own pace.
Learning as much as you can will help you help the medical team, as you can be educated about things too and you can help make decisions based on your input.
And remember, the Mayo Clinic is the world leader in HCM, you are so blessed to be referred there.

Reaching out pretty over whelmed, options on care,

Hello. Danny here, 65 year old man with oHCM. Was diagnosed in late December after 7 months of pain last year. Have tried 2 different metoprolol medications after no help. Started on 5 mg of Camzyos yesterday after making 2 trips of over 4 hours round trip to my cardiologist in Atlanta. Not looking forward to the monthly trips for the echos unless the medication works. A little overwhelmed by the fatigue I have before I even start on Camzyos. Looking forward to any help I might get here.

Greetings @janetsuewright, and welcome to Mayo Clinic Connect. I see you have found the HCM group, which will be of great comfort to you. You will find here other people, just like you, who share this condition. Many, dare I say most of us, were overwhelmed when first learning of this diagnosis.
I can share that for me, I was both relieved (at last I finally knew what I had!) and terrified (am I going to die?), so I totally understand feeling overwhelmed.
Have you had a chance to read the numerous posts here on Connect?
There are many.
Have you had a chance to educate yourself on what is living inside your heart?
Here's a post from the Mayo Clinic regarding HCM:
https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198
May I suggest that you learn as much as you possibly can about this condition. This will help you understand your symptoms, and you will also be better able to share in the decision process along with your cardiologist.
There are treatment options, as you mentioned, and you need to know what they are, and which ones would be best for you.
Right now you are overwhelmed and rightly so. The more you learn, the less you will fear.
When do you see your doctor next?

Hello Danny, @dconner, and welcome to Mayo Clinic Connect.
This is a great place to come to both share your story and learn from others going through the HCM journey.
HOCM certainly does cause fatigue. It can be debilitating for some. Have you had a chance to check out the Camzyos Group? They are the best group for sharing how Camzyos has or has not helped them and all the symptoms along the way.
Here's a handy link to those posts:
https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/
I know is may be inconvenient to travel, especially with the price of gas these days (ouch!) but this is your health and your life, so though it may be annoying, you are worth it!
You started just a day ago, and things may change rapidly. Some people report near miracles in their symptoms going away, and others take longer. Some just can't handle the drug.

You know you better than anyone else, so you will know if the Camzyos is helping or not.

Check out that Camzyos link and read what so many others have shared.
Connect does just what it says...Connects people with similar conditions, which is wonderful because you are not alone.

When is your next echo?

@janetsuewright Welcome to the HCM blog on Connect, I see that this is your first post, I am assuming you are newly diagnosed with HCM, we are glad you joined us, the big-hearted people crew. Overwhelmed is probably an understatement, you have come to the right place because we have all been in your shoes. It will take a while to organize your thoughts with everything that is overwhelming you at this point, so do be patient with yourself and you will get a handle on "options on care." The first and second things many of us suggest are to become associated with a COE (you will learn too many acronyms, this one is Center of Excellence), such as Mayo Clinic where people have been treated for HCM for decades. The other suggested step is to learn as much about HCM for your own knowledge and to formulate your questions to your doctor. May I suggest as a starting point https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198. Besides Connect, I belong to an organization Hypertrophic Cardiomyopathy Association (4HCM.org) which helps people with finding a COE, has Zoom discussion groups and many additional resources. Please do contact them for an intake interview. Together, in different ways, 4HCM and Connect give much information and support. How did you find out that you have HCM? Have other family members been diagnosed (HCM is inherited). How is HCM affecting you? Again, welcome and we look forward to hearing from you. (As soon as I posted this, I saw that my fellow mentor, Debra, responded to you, too! She writes such helpful posts.)

@dconner Danny, I join Debra @karukgirl in welcoming you to Connect! We are all so different in how HCM can affect us and the specific treatments that help us lead our best lives. I am glad to read that you are trying Camzyos, it was still in test stages when my HCM needed mote intervention, I am also glad Debra suggested that you look at https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/. It's worth the travel to receive the best care. Have others in your family been diagnosed or have past generations exhibited heart issues? This is an inherited disease, please be sure that your blood relatives are screened. My HCM journey started with a heart murmur in my mid-late 50's, have you had other symptoms before you experienced months of pain? We love to encourage others and share our experiences, but please do be aware that we do not give medical advice. Do keep us posted!

@karukgirl
Hi Debra, I have checked out the Camzyos group. Very enlightening. Not sure about my echo appointment, but I’m sure it’s about 1 month away. Thank you for all of your help!
Danny