1. < Hypertrophic Cardiomyopathy (HCM)
Profile picture for Colleen Young, Connect Director
Moderator

HCM-ers: Introduce yourself or just say hi

Posted by Colleen Young, Connect Director @colleenyoung, Oct 25, 2016

Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.

I invite you to follow the group. Simply click the follow icon image-f6386d0357e2 on the group landing page. 

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.

Why not start by introducing yourself here?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

Profile picture for mikemelling
mikemelling | @mikemelling | 2 days ago
In reply to @karukgirl "Hello @mikemelling , and welcome to Mayo Clinic Connect. I'm so glad you found the Hypertrophic..." + (show)
Profile picture for Debra, Volunteer Mentor @karukgirl

Hello @mikemelling , and welcome to Mayo Clinic Connect.
I'm so glad you found the Hypertrophic Cardiomyopathy group, and also that you have been referred to Mayo Clinic...you could not be in better hands!
Is your video evaluation scheduled yet?
Do you have your list of questions ready?
Being prepared in advance with a list will help you keep on track as you meet virtually.
There is a lot to take in after learning you have this condition, and the Mayo Clinic is a world leader in HCM and complicated cases.
Here is a link to HCM on the Mayo Clinic website:
https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198
It sounds like you have become somewhat symptomatic, so it's good you are finding out now what you have going on.
Are you otherwise healthy and active?

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@karukgirl
My video evaluation is May 4.
No list of questions just yet. Building them over the next month as I come up with them.
I would like to know if this would be anyway related to the Pericardectomy I had in 1996.
I do have some symptoms but they aren't overly pronounced most of the time.

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newtosohcm | @newtosohcm | 1 day ago

71 y/o female with HCM taking Camzyos. Need to also find effective treatment for neuropathy/increasingly numb soles of feet affecting ambulation. Considering a supplement called Amla.

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Profile picture for Debra, Volunteer Mentor
Mentor
Debra, Volunteer Mentor | @karukgirl | 1 day ago
In reply to @mikemelling "@karukgirl My video evaluation is May 4. No list of questions just yet. Building them over..." + (show)
Profile picture for mikemelling @mikemelling

@karukgirl
My video evaluation is May 4.
No list of questions just yet. Building them over the next month as I come up with them.
I would like to know if this would be anyway related to the Pericardectomy I had in 1996.
I do have some symptoms but they aren't overly pronounced most of the time.

Jump to this post

@mikemelling , well there you have it...your first question to put on your list!
May 4 is coming up fast, though it may seem like a long ways off when you are concerned about this new condition.
Do take some time to get familiar with as much as you can take in about this condition. It can be overwhelming at first, so go at your own pace.
Learning as much as you can will help you help the medical team, as you can be educated about things too and you can help make decisions based on your input.
And remember, the Mayo Clinic is the world leader in HCM, you are so blessed to be referred there.

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