← Return to HCM-ers: Introduce yourself or just say hi

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Profile picture for Debra, Volunteer Mentor @karukgirl

Hello Danny, @dconner, and welcome to Mayo Clinic Connect.
This is a great place to come to both share your story and learn from others going through the HCM journey.
HOCM certainly does cause fatigue. It can be debilitating for some. Have you had a chance to check out the Camzyos Group? They are the best group for sharing how Camzyos has or has not helped them and all the symptoms along the way.
Here's a handy link to those posts:
https://connect.mayoclinic.org/discussion/camzyos-mavacamten-prescription/
I know is may be inconvenient to travel, especially with the price of gas these days (ouch!) but this is your health and your life, so though it may be annoying, you are worth it!
You started just a day ago, and things may change rapidly. Some people report near miracles in their symptoms going away, and others take longer. Some just can't handle the drug.

You know you better than anyone else, so you will know if the Camzyos is helping or not.

Check out that Camzyos link and read what so many others have shared.
Connect does just what it says...Connects people with similar conditions, which is wonderful because you are not alone.

When is your next echo?

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Replies to "Hello Danny, @dconner, and welcome to Mayo Clinic Connect. This is a great place to come..."

@karukgirl
Hi Debra, I have checked out the Camzyos group. Very enlightening. Not sure about my echo appointment, but I’m sure it’s about 1 month away. Thank you for all of your help!
Danny