1. < Polymyalgia Rheumatica (PMR)
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Any experiences with Kevzara (sarilumab)?

Posted by catherine71655 @catherine71655, Jun 18, 2025

My doc wants me to start Kevzara. What should I expect? What have you experienced?

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tweetypie13 | @tweetypie13 | Mar 17 7:59am
In reply to @lmpa65 "I started Kevzara for my Cogan’s syndrome. I have a tremendous amount of tinnitus if I..." + (show)
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I started Kevzara for my Cogan’s syndrome. I have a tremendous amount of tinnitus if I drop below 10mg of Prednisone. I’m also on azothiropine (Imuran) How long after starting Kevzara was it until you could decrease steroids? This question is for any one on Kevzara not just CS patients.
Thank you in advance.
Laura

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Good luck….Kevzara takes 60-90 days….the Kevzara website is pretty good for info.

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lmpa65 | @lmpa65 | Mar 17 9:01am
In reply to @lmpa65 "I started Kevzara for my Cogan’s syndrome. I have a tremendous amount of tinnitus if I..." + (show)
Profile picture for lmpa65 @lmpa65

I started Kevzara for my Cogan’s syndrome. I have a tremendous amount of tinnitus if I drop below 10mg of Prednisone. I’m also on azothiropine (Imuran) How long after starting Kevzara was it until you could decrease steroids? This question is for any one on Kevzara not just CS patients.
Thank you in advance.
Laura

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Thank you I just had my 3rd shot today.

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mech | @mech | Apr 22 10:08pm

I go to my rheumatologist tomorrow. I want to talk to him about adding Kevzara. I cant get below 14.5mg without more pain. Has anyone had a negative experience with Kevzara? Would you try methotrexate first? Ill talk to my Dr. Tomorrow, but I want to hear from people who have tried these meds. Thanks!

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5 replies
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tweetypie13 | @tweetypie13 | Apr 22 10:56pm
In reply to @mech "I go to my rheumatologist tomorrow. I want to talk to him about adding Kevzara. I..." + (show)
Profile picture for mech @mech

I go to my rheumatologist tomorrow. I want to talk to him about adding Kevzara. I cant get below 14.5mg without more pain. Has anyone had a negative experience with Kevzara? Would you try methotrexate first? Ill talk to my Dr. Tomorrow, but I want to hear from people who have tried these meds. Thanks!

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All good with Kevzara…..do a search for it in this blog. Lots of good words.

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mech | @mech | Apr 23 5:29am
In reply to @mech "I go to my rheumatologist tomorrow. I want to talk to him about adding Kevzara. I..." + (show)
Profile picture for mech @mech

I go to my rheumatologist tomorrow. I want to talk to him about adding Kevzara. I cant get below 14.5mg without more pain. Has anyone had a negative experience with Kevzara? Would you try methotrexate first? Ill talk to my Dr. Tomorrow, but I want to hear from people who have tried these meds. Thanks!

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Thank you!

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jds2123 | @jds2123 | Apr 23 8:00am
In reply to @mech "I go to my rheumatologist tomorrow. I want to talk to him about adding Kevzara. I..." + (show)
Profile picture for mech @mech

I go to my rheumatologist tomorrow. I want to talk to him about adding Kevzara. I cant get below 14.5mg without more pain. Has anyone had a negative experience with Kevzara? Would you try methotrexate first? Ill talk to my Dr. Tomorrow, but I want to hear from people who have tried these meds. Thanks!

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I tried methotrexate and had bad response. I’ve been on Kevzara for 3 years and have had no relapses of PMR 🤞

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aussiedogmom | @aussiedogmom | Apr 23 8:14am
In reply to @mech "I go to my rheumatologist tomorrow. I want to talk to him about adding Kevzara. I..." + (show)
Profile picture for mech @mech

I go to my rheumatologist tomorrow. I want to talk to him about adding Kevzara. I cant get below 14.5mg without more pain. Has anyone had a negative experience with Kevzara? Would you try methotrexate first? Ill talk to my Dr. Tomorrow, but I want to hear from people who have tried these meds. Thanks!

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I'm going on my 3rd year with Kevzara. No problems at all.

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linnead | @linnead | Apr 23 9:23am
In reply to @aussiedogmom "I'm going on my 3rd year with Kevzara. No problems at all." + (show)
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I'm going on my 3rd year with Kevzara. No problems at all.

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@aussiedogmom I am six weeks in with Kevzara. No pain, no problems.

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mech | @mech | Apr 23 9:52am
In reply to @aussiedogmom "I'm going on my 3rd year with Kevzara. No problems at all." + (show)
Profile picture for aussiedogmom @aussiedogmom

I'm going on my 3rd year with Kevzara. No problems at all.

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@aussiedogmom awesome!

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