Kevzara has been a huge help for me. I actually had a much stronger response to Kevzara than Prednisone - maybe because Kevzara targets a different inflammation pathway. Im down to 2.5 mg Prednisone daily and holding here because I have been able to return to exercising and this doing let's me continue to build my Pilates and weight and walking program with mild to moderate, transient, stiffness and pain which I manage with extra strength Tylenol and Turmeric, about 3 weeks out of the month. Kevzara is a miracle to me.
@aussiedogmom Hi, and thanks for the share. I was taking turmeric for osteoarthritis before PMR, then stopped all supplements and OTC’s after being diagnosed.
Did you first talk with your doctor before taking Turmeric? Or, did your doctor suggest it?
Look for my previous posts. 79 yo woman, PMR diagnosed April 2024.
I was stuck at 8 mg prednisone.
Love Kevzara……28 wks into it. No side effects. 11 wks off prednisone. Overdue the adrenal suppression, back to most activities and sports. Walk golf, bike hike etc.
I do occasionally take Tylenol for Arthritis as an OTC back up with the humid weather, or excessive exercise. 2 at bfast.
Good luck
I have been on a combination of prednisone and methotrexate for PMR and because of relapses when I get to 5 mg. of prednisone plus methotrexate side effects (fatigue, hair loss), I am being started on Kevzara with the goal of tapering off the other drugs. I'd be interested in others' experiences with Kevzara.
Marge
I have been on a combination of prednisone and methotrexate for PMR and because of relapses when I get to 5 mg. of prednisone plus methotrexate side effects (fatigue, hair loss), I am being started on Kevzara with the goal of tapering off the other drugs. I'd be interested in others' experiences with Kevzara.
Marge
Another update. I’m now taking 1/2 mg Prednisone every other day and will get off it completely starting March 1. No PMR backlash. At the next rheumy visit, we’ll discuss if the Kevzara can be spaced out further than 2 weeks apart.
Another update. I’m now taking 1/2 mg Prednisone every other day and will get off it completely starting March 1. No PMR backlash. At the next rheumy visit, we’ll discuss if the Kevzara can be spaced out further than 2 weeks apart.
I have been on a combination of prednisone and methotrexate for PMR and because of relapses when I get to 5 mg. of prednisone plus methotrexate side effects (fatigue, hair loss), I am being started on Kevzara with the goal of tapering off the other drugs. I'd be interested in others' experiences with Kevzara.
Marge
I was diagnosed in June 2025, as a complication from a medication. My highest prednisone does was 30 mg. I started Kevzara injections in August and was off prednisone by October. In January I went to ER with acute diverticulitis, and was advised to stop Kevzara. It has been 6 weeks since my last injection. I do not have pmr symptoms, but my muscles seem to fatigue and are just not as strong. I am trying to regain the strength but at times want to give up. My rheumatologist indicates that remission is trickly and fleeting...
"There is no time period for remission. Overall the data suggests that you have your best chance at long term remission if you had 1 year of treatment and then taper off. Some people need less time, but in general the faster it comes under control the more likely it is to stay in remission. Right now you are a high risk for recurrence over the next 3-6 months, after that the risk goes down, but only time will tell. Even with good remission, overall there is a 20% recurrence rate. Unfortunately we just won't know until time has passed and there is no test to tell me."
I started Kevzara for my Cogan’s syndrome. I have a tremendous amount of tinnitus if I drop below 10mg of Prednisone. I’m also on azothiropine (Imuran) How long after starting Kevzara was it until you could decrease steroids? This question is for any one on Kevzara not just CS patients.
Thank you in advance.
Laura
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@aussiedogmom Hi, and thanks for the share. I was taking turmeric for osteoarthritis before PMR, then stopped all supplements and OTC’s after being diagnosed.
Did you first talk with your doctor before taking Turmeric? Or, did your doctor suggest it?
@tweetypie13 you are such an inspiration to me, Thank you for your shares.
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1 ReactionMy friend with Psoriatic Arthritis and my PT told me about it before I got to the rheumatologist. Dr Rheum supports it.
Another update. I’m now taking 1/2 mg Prednisone every other day and will get off it completely starting March 1. No PMR backlash. At the next rheumy visit, we’ll discuss if the Kevzara can be spaced out further than 2 weeks apart.
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1 Reaction@richardab
I was 3 months off prednisone when I went to every 3 wks Kevzara.
Good luck
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2 ReactionsI was diagnosed in June 2025, as a complication from a medication. My highest prednisone does was 30 mg. I started Kevzara injections in August and was off prednisone by October. In January I went to ER with acute diverticulitis, and was advised to stop Kevzara. It has been 6 weeks since my last injection. I do not have pmr symptoms, but my muscles seem to fatigue and are just not as strong. I am trying to regain the strength but at times want to give up. My rheumatologist indicates that remission is trickly and fleeting...
"There is no time period for remission. Overall the data suggests that you have your best chance at long term remission if you had 1 year of treatment and then taper off. Some people need less time, but in general the faster it comes under control the more likely it is to stay in remission. Right now you are a high risk for recurrence over the next 3-6 months, after that the risk goes down, but only time will tell. Even with good remission, overall there is a 20% recurrence rate. Unfortunately we just won't know until time has passed and there is no test to tell me."
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4 ReactionsI have Cogans, Autoimmune Hepatitis and primary biliary cholangitis. They are going to start Kevzara. Was wondering anyone’s experience with it.
Lots of people on the Polymyalgia Rheumatica thread.
Thank you. I’ll check that out.
I started Kevzara for my Cogan’s syndrome. I have a tremendous amount of tinnitus if I drop below 10mg of Prednisone. I’m also on azothiropine (Imuran) How long after starting Kevzara was it until you could decrease steroids? This question is for any one on Kevzara not just CS patients.
Thank you in advance.
Laura