Any experiences with Kevzara (sarilumab)?

Posted by catherine71655 @catherine71655, Jun 18, 2025

My doc wants me to start Kevzara. What should I expect? What have you experienced?

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Profile picture for howardgm @howardgm

@mech I have been on Kevzara for two years. It is a wonder drug for me. No apparent side effects except for my white blood cell count is pretty low but not alarming to my doctors, but could have the effect of lowering immunity.

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@howardgm I’m starting to see improvement

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Profile picture for caroljeand @caroljeand

I’m on Kevzara and so grateful to be rid of prednisone!
I don’t feel any side effects from the injections, thankfully.
Just had cataract surgery because the prednisone accelerated the need. Now I can see more clearly! 😀

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@caroljeand I’m down to 4mg methylprednisolone from 32mg. I am so happy. I’ve had many side effects from the steroids, most recently AVN ( Avascular necrosis) of my knee.

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Profile picture for stonewheel @stonewheel

Is anybody off Kevzara?

After tapering off of Prednisone, how long were you on Kevzara before stopping Kevzara?

Was getting off Kevzara a “cold turkey” event or was it a “taper” off event?

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@stonewheel
Started Kevzara March 2025 @ abt 8 mg prednisone.
Off all prednisone by 7/15/2025
11/5/2025 chged Kevzara to every 3 weeks because of low WBC.
Jan 2026, blood work normal, stayed at Kevzara 3 week intervals.
Last Kevzara shot 2/22/2026…….stopped cold and no side effects.
Note: I was not, and am not, on any other medications for any other conditions .

I am now 2 months since last shot, blood work shows elevated CRP (10.8). I am not feeling it, 🤞, Dr wants me to restart Kevzara, I’m asking to retest in another 2 months. Wait and see, if a problem reach out to him. Note, I have not heard back yet. 🤞

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Wow! Thank you so much. I hope you dont need to go back on anything!

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Profile picture for tweetypie13 @tweetypie13

@stonewheel
Started Kevzara March 2025 @ abt 8 mg prednisone.
Off all prednisone by 7/15/2025
11/5/2025 chged Kevzara to every 3 weeks because of low WBC.
Jan 2026, blood work normal, stayed at Kevzara 3 week intervals.
Last Kevzara shot 2/22/2026…….stopped cold and no side effects.
Note: I was not, and am not, on any other medications for any other conditions .

I am now 2 months since last shot, blood work shows elevated CRP (10.8). I am not feeling it, 🤞, Dr wants me to restart Kevzara, I’m asking to retest in another 2 months. Wait and see, if a problem reach out to him. Note, I have not heard back yet. 🤞

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@tweetypie13 I pray it’s all good.

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Profile picture for tweetypie13 @tweetypie13

@stonewheel
Started Kevzara March 2025 @ abt 8 mg prednisone.
Off all prednisone by 7/15/2025
11/5/2025 chged Kevzara to every 3 weeks because of low WBC.
Jan 2026, blood work normal, stayed at Kevzara 3 week intervals.
Last Kevzara shot 2/22/2026…….stopped cold and no side effects.
Note: I was not, and am not, on any other medications for any other conditions .

I am now 2 months since last shot, blood work shows elevated CRP (10.8). I am not feeling it, 🤞, Dr wants me to restart Kevzara, I’m asking to retest in another 2 months. Wait and see, if a problem reach out to him. Note, I have not heard back yet. 🤞

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@tweetypie13
I wish I could say I’m not on any other meds! You are truly lucky.
Hope you don’t have to return to the injections. I’m looking ahead and hoping to be injection free.

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