Any experiences with Kevzara (sarilumab)?

Posted by catherine71655 @catherine71655, Jun 18, 2025

My doc wants me to start Kevzara. What should I expect? What have you experienced?

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I was on Kevzara for 8 months last year. It did help my symptoms and seemed to prevent flare-ups but it did not allow me to get below 5 mg of prednisone. There were side effects that showed up in labs: high cholesterol and white cells below the normal range. My primary doctor did not think my cholesterol was bad enough to need treatment and the white cells were only slightly low. I had to get off the drug due to cost. About a month after stopping I had a pretty bad flare-up so it had been helping me. Now I'm on Actemra which my insurance is hopefully going to cover!

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@linda7 Just joined group so late response to your post. If you are not on medicare yet, the company that makes kevzara will assist you with the cost of med. Hope all is well!

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