Pulmonary hypertension

Posted by freefromdrug1 @freefromdrug1, Apr 21, 2017

I have a friend suffering from pulminary hypertension. Trying to connect him with a group on connect. Any suggestions?

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@hopeful33250

@contentandwell Hi JK, I hope that your appointment goes well on Tuesday. We will be looking forward to hearing from you and learning more about this. Teresa

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@windwalker Hi Windwalker, thanks for asking. I really am doing great. No one can believe the difference in me in such a short amount of time or how quickly I was back to the old normal me. I just have a bit more fatigue but that may be because the immunosuppressants cause "night sweats" (mine happen during the day too) which wake me at night, plus some incontinence which also makes me get up at night a lot. I was thinking this morning as I lay in bed prior to gettint up, the whole journey seems surreal.
JK

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@hopeful33250

@contentandwell It is so good when you find exceptional professionals. There is one cardiac tech the hospital I go to who does great Echo-cardiograms. She really approaches her job differently than others, so I always request her. Our parting comment is always, "see you next year." Teresa

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@windwalker Yes, that is true, I may have bruised his ego. The funny thing about that is that on my first appointment with him in July of 2014 he was very affable, even bringing me into his office and showing me family pictures, and said not to be afraid to say anything, that he is not thin-skinned. I responded that I figured he couldn't be because he's an ex-marine.
JK

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@hopeful33250

@contentandwell It is so good when you find exceptional professionals. There is one cardiac tech the hospital I go to who does great Echo-cardiograms. She really approaches her job differently than others, so I always request her. Our parting comment is always, "see you next year." Teresa

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<br><br><br><br><br>Oh well.....<br> <br><br>

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@hopeful33250

@contentandwell Hi JK, I hope that your appointment goes well on Tuesday. We will be looking forward to hearing from you and learning more about this. Teresa

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<br><br><br><br><br>So glad that you got a new lease on life. Guess the fatigue and sweats are <br>a small price to pay when you look at the big picture. I have daily fatigue from <br>MAC and multiple lung diseases and sweats from menopause; so I def can <br>sympathize with those annoyances. I get it about feeling 'surreal'. I felt <br>that way just going through the pre-qaul tests for a double lung transplant. I <br>hope it never comes to that.......was put on the deferred list for now.<br> <br><br>

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@contentandwell

@hopeful33250 It is a hard call to make. I have been researching other Internists in the area but the ones I would like to have are not accepting new patients, as is the one I have! I would love to go to the MGH satellite in Danvers but that's a good hour away, a bit too far. I am outside of Manchester so I plant to check out Nashua and Concord also, each @ a half hour away.
As my mother used to say though, "the devil you know can be better than the devil you don't know".

JK

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<br><br><br><br><br>Ha! Your mom was correct.<br> <br><br>

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@contentandwell Thanks for the smile for the day! Your mom was quite the philosopher. Teresa

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@hopeful33250

@contentandwell Hi JK, I hope that your appointment goes well on Tuesday. We will be looking forward to hearing from you and learning more about this. Teresa

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@windwalker Thanks, I agree, it is a small price to pay. I am pretty darned happy almost all of the time except when I get awakened multiple times a night and have to throw the covers off. Even though I tell myself to consider the alternatives.
JK

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@hopeful33250

@contentandwell I understand what you mean about being intimidated by the equipment. I find it very hard to adjust the equipment to deal with the fact that I'm 5 feet tall and everything seems to be set up for the 6 foot guys who try to lift 50 plus pounds. In a pool all of those problems are gone! Teresa

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@hopeful33250 Since a good part of the day was taken up by going to Boston I didn't get to the club earlier so I went tonight. UGH. I hopefully will do the pool tomorrow if I can get myself up for the 8:30 class. So tonight I did go to the gym and did the treadmill, tried to do the advised equipment, and did a tiny bit of elliptical then I remembered I had to get home to take my immunosuppressants so that cut it short a bit, which I wasn't really unhappy about.
Off to bed now. I hope these miserable sweats and bathroom runs let me get some sleep.
JK

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@hopeful33250

@contentandwell Hi JK, I hope that your appointment goes well on Tuesday. We will be looking forward to hearing from you and learning more about this. Teresa

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<br><br><br><br><br>Yep, that is how my nights are too.<br> <br><br>

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@hopeful33250

@contentandwell I understand what you mean about being intimidated by the equipment. I find it very hard to adjust the equipment to deal with the fact that I'm 5 feet tall and everything seems to be set up for the 6 foot guys who try to lift 50 plus pounds. In a pool all of those problems are gone! Teresa

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@contentandwell Are the sweats a result of the immunosuppressants? Teresa

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