Pulmonary hypertension

Posted by freefromdrug1 @freefromdrug1, Apr 21, 2017

I have a friend suffering from pulminary hypertension. Trying to connect him with a group on connect. Any suggestions?

@contentandwell It is so good when you find exceptional professionals. There is one cardiac tech the hospital I go to who does great Echo-cardiograms. She really approaches her job differently than others, so I always request her. Our parting comment is always, “see you next year.” Teresa

@hopeful33250

@contentandwell Hi JK, I hope that your appointment goes well on Tuesday. We will be looking forward to hearing from you and learning more about this. Teresa

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My cardiologist says less than 60 is moderate anymore than that is moderate/severe. The numbers objective and the level is subjective

@hopeful33250

@contentandwell It is so good when you find exceptional professionals. There is one cardiac tech the hospital I go to who does great Echo-cardiograms. She really approaches her job differently than others, so I always request her. Our parting comment is always, “see you next year.” Teresa

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@hopeful33250 It really is helpful. I have been very happy with almost all of my current health care team until relatively recently when I became very disenchanted with my PCP. I have to see him in May and am dreading it. I just feel like he doesn’t like me anymore. Initially he was very good and very supportive. I figure either he resents that I have questioned a few things, or that he feels uncomfortable that it took a hospitalist to put my symptoms together and order the ammonia test. He had known those symptoms for a long time, almost a year at that point.
JK

@hopeful33250

@contentandwell Hi JK, I hope that your appointment goes well on Tuesday. We will be looking forward to hearing from you and learning more about this. Teresa

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@ronbee Sorry Ron, but I am having trouble putting your message within the train of messages and am not sure what the 60 is to which you are referring. Is that an ECHO result?
Thanks.
JK

@contentandwell Yes, it is hard to know why doctors change in their responses to patients. I try to give them the benefit of the doubt when I can. Perhaps he has some personal problems which make him less than agreeable. However, a change can be a good thing. If you feel “dread” as you say, it might be a good idea to shop around for a new PCP. That is a hard call to make, though, when you are established with a doctor over a number of years. Teresa

@hopeful33250

@contentandwell Hi JK, I hope that your appointment goes well on Tuesday. We will be looking forward to hearing from you and learning more about this. Teresa

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60 is the measure of hypertension that my cardiologist uses, as have other cardiologists. It is objective but there is one value in the 60 that needs to be estimated and in my case it has been 8 to 10

@hopeful33250

@contentandwell Hi JK, I hope that your appointment goes well on Tuesday. We will be looking forward to hearing from you and learning more about this. Teresa

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Yes, it was directed at you. How are you doing with it?
 

@hopeful33250

@contentandwell It is so good when you find exceptional professionals. There is one cardiac tech the hospital I go to who does great Echo-cardiograms. She really approaches her job differently than others, so I always request her. Our parting comment is always, “see you next year.” Teresa

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Yeah, you may have bruised his ego a bit.
 

@hopeful33250 It is a hard call to make. I have been researching other Internists in the area but the ones I would like to have are not accepting new patients, as is the one I have! I would love to go to the MGH satellite in Danvers but that’s a good hour away, a bit too far. I am outside of Manchester so I plant to check out Nashua and Concord also, each @ a half hour away.
As my mother used to say though, “the devil you know can be better than the devil you don’t know”.

JK

@hopeful33250

@contentandwell Hi JK, I hope that your appointment goes well on Tuesday. We will be looking forward to hearing from you and learning more about this. Teresa

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@ronbee, I have discovered that different facilities state some things differently. I think that my number for that may be 41, but I am not sure. That number is listed as RVSP, right ventricular systolic pressure. Mine is just about within range for my age.
JK

@hopeful33250

@contentandwell Hi JK, I hope that your appointment goes well on Tuesday. We will be looking forward to hearing from you and learning more about this. Teresa

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@windwalker Hi Windwalker, thanks for asking. I really am doing great. No one can believe the difference in me in such a short amount of time or how quickly I was back to the old normal me. I just have a bit more fatigue but that may be because the immunosuppressants cause “night sweats” (mine happen during the day too) which wake me at night, plus some incontinence which also makes me get up at night a lot. I was thinking this morning as I lay in bed prior to gettint up, the whole journey seems surreal.
JK

@hopeful33250

@contentandwell It is so good when you find exceptional professionals. There is one cardiac tech the hospital I go to who does great Echo-cardiograms. She really approaches her job differently than others, so I always request her. Our parting comment is always, “see you next year.” Teresa

Jump to this post

@windwalker Yes, that is true, I may have bruised his ego. The funny thing about that is that on my first appointment with him in July of 2014 he was very affable, even bringing me into his office and showing me family pictures, and said not to be afraid to say anything, that he is not thin-skinned. I responded that I figured he couldn’t be because he’s an ex-marine.
JK

@hopeful33250

@contentandwell It is so good when you find exceptional professionals. There is one cardiac tech the hospital I go to who does great Echo-cardiograms. She really approaches her job differently than others, so I always request her. Our parting comment is always, “see you next year.” Teresa

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Oh well…..
 

@hopeful33250

@contentandwell Hi JK, I hope that your appointment goes well on Tuesday. We will be looking forward to hearing from you and learning more about this. Teresa

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So glad that you got a new lease on life. Guess the fatigue and sweats are
a small price to pay when you look at the big picture. I have daily fatigue from
MAC and multiple lung diseases and sweats from menopause; so I def can
sympathize with those annoyances. I get it about feeling ‘surreal’. I felt
that way just going through the pre-qaul tests for a double lung transplant. I
hope it never comes to that…….was put on the deferred list for now.
 

@contentandwell

@hopeful33250 It is a hard call to make. I have been researching other Internists in the area but the ones I would like to have are not accepting new patients, as is the one I have! I would love to go to the MGH satellite in Danvers but that’s a good hour away, a bit too far. I am outside of Manchester so I plant to check out Nashua and Concord also, each @ a half hour away.
As my mother used to say though, “the devil you know can be better than the devil you don’t know”.

JK

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Ha! Your mom was correct.
 

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