Pulmonary hypertension

Posted by freefromdrug1 @freefromdrug1, Apr 21, 2017

I have a friend suffering from pulminary hypertension. Trying to connect him with a group on connect. Any suggestions?

Interested in more discussions like this? Go to the Lung Health Support Group.

@ronbee

@contentandwell I have had PH o about 60 for ten years. It's due to a compromised lung function. I'm on the treadmill 4x a week. Garden and walk dogs normally.

Jump to this post

@ronbee Thanks Ron. Hopefully if I am now classified as having PH it will not be serious enough to impact my lifestyle. I do pool exercises about 4 or 5 times a week, ride my recumbent bike, and occasionally get up the guts to go the gym at my club. I hate the gym, I am ridiculously intimidated by the equipment.
JK

REPLY

@contentandwell I understand what you mean about being intimidated by the equipment. I find it very hard to adjust the equipment to deal with the fact that I'm 5 feet tall and everything seems to be set up for the 6 foot guys who try to lift 50 plus pounds. In a pool all of those problems are gone! Teresa

REPLY
@dave2455

Hello my name is Dave I'm new here so bare with me. I was diagnosed with Pulmonary Hypertension on Feb 17,2017 I have had a lot of heart health issues since birth. (oh by the way I'm 62 years young) I'm just looking for someone to I can relate to. Thanks

Jump to this post

Hi Dave, welcome to the group. Such a great source of information. My borderline pulmonary hypertension was found doing an echo. I was told I also have sleep apnea and I must wear a mask at night to keep the PH from getting worse. The sleep study showed my heart had to work too hard when my oxygen went down.

REPLY

@hopeful33250 Of course the equipment is adjustable -- if you can figure out how to adjust it. There are two gyms at my club, the upstairs one where I go does not really have lifting equipment. When my son is visiting and I bring him he goes downstairs and I go upstairs.
I did go to the gym section of my club yesterday but felt so inadequate. The only things I am comfortable with there are the treadmills and ellipticals. My PT said he might come to help me transition from the equipment at the PT place where his to this equipment but so far he has not followed on it.
JK

REPLY
@contentandwell

@hopeful33250 Of course the equipment is adjustable -- if you can figure out how to adjust it. There are two gyms at my club, the upstairs one where I go does not really have lifting equipment. When my son is visiting and I bring him he goes downstairs and I go upstairs.
I did go to the gym section of my club yesterday but felt so inadequate. The only things I am comfortable with there are the treadmills and ellipticals. My PT said he might come to help me transition from the equipment at the PT place where his to this equipment but so far he has not followed on it.
JK

Jump to this post

<br><br><br><br><br>I don't do well with the equipment either. It has become too technical now. <br>I go to Silver Sneakers class three times a week. It is an hour and ten minutes <br>with the best teacher. She keeps our cardio going with sitting and standing <br>exercises, lots of muscle building too along with exercises that help the brain <br>as well.<br> <br><br>

REPLY
@contentandwell

@hopeful33250 Of course the equipment is adjustable -- if you can figure out how to adjust it. There are two gyms at my club, the upstairs one where I go does not really have lifting equipment. When my son is visiting and I bring him he goes downstairs and I go upstairs.
I did go to the gym section of my club yesterday but felt so inadequate. The only things I am comfortable with there are the treadmills and ellipticals. My PT said he might come to help me transition from the equipment at the PT place where his to this equipment but so far he has not followed on it.
JK

Jump to this post

@contentandwell That sounds like a great idea, perhaps you need to jog his memory! Teresa

REPLY
@contentandwell

@hopeful33250 Of course the equipment is adjustable -- if you can figure out how to adjust it. There are two gyms at my club, the upstairs one where I go does not really have lifting equipment. When my son is visiting and I bring him he goes downstairs and I go upstairs.
I did go to the gym section of my club yesterday but felt so inadequate. The only things I am comfortable with there are the treadmills and ellipticals. My PT said he might come to help me transition from the equipment at the PT place where his to this equipment but so far he has not followed on it.
JK

Jump to this post

@windwalker What a great suggestion. I have heard of these classes before! Teresa

REPLY
@dave2455

Hello my name is Dave I'm new here so bare with me. I was diagnosed with Pulmonary Hypertension on Feb 17,2017 I have had a lot of heart health issues since birth. (oh by the way I'm 62 years young) I'm just looking for someone to I can relate to. Thanks

Jump to this post

Well as far as heart issues it started when in 1961 that my mitral valve was not working properly. In 1966 I had open heart surgery at Henry Ford Hospital in Detroit, MI (I was 11 years old) After that I was able to do just about anything for 41 years. Then things went the other way in 2007 I had a heart attack they put 5 stents in. Between then and 2015 I had 3-5 bouts of Atrial Fibrillation and then on May 25,2015 I had another heart attack which lead to by pass surgery in Sept. 2015. It was after that around Nov. 2015 I became shorter and shorter of breath. Well as we all with PH how long it takes to finally get diagnosed with PH it was Feb.17,2017 for me. I have had all the test you can think of from heart to lungs but it wasn't until I had the right heart cath that they found out I had PH. I also have sleep apnea on top of all that. I have oxygen hooked to my cpap machine and I also have portable oxygen. I hope this wasn't to long, I'm looking forward to hear from other folks. Thank You Dave

REPLY
@dave2455

Hello my name is Dave I'm new here so bare with me. I was diagnosed with Pulmonary Hypertension on Feb 17,2017 I have had a lot of heart health issues since birth. (oh by the way I'm 62 years young) I'm just looking for someone to I can relate to. Thanks

Jump to this post

<br><br><br><br><br>Hi Dave, I too have mild mitral valve prolapse due to having Rheumatic <br>fever as a child, and suffered with SVT since age 20. COPD since age <br>30. (never smoked) I swear, I must be the poster-child for ALL things <br>cardio-pulmonary illness. I have had or do have just about everything that has <br>been mentioned on this blog. No, I am not kidding! Was put through <br>pre-qualifying tests for a double lung transplant last Dec. because my docs are <br>worried about my steadily declining lung function. Discovered I have the <br>beginning of PH, probably due to my MANY co-morbid diseases. I had been sick as <br>a dog for years and sure I wouldn't live to see 2017. I am doing great now, and <br>don't even feel unwell anymore. I owe this to my dr at Mayo putting me on <br>Tobramycin. It totally changed my world. I strictly follow my doctor's <br>orders, take all meds on a schedule. (and exercise) I think that all <br>accounts for my feeling so good these days. -Terri M.<br> <br><br>

REPLY
@dave2455

Hello my name is Dave I'm new here so bare with me. I was diagnosed with Pulmonary Hypertension on Feb 17,2017 I have had a lot of heart health issues since birth. (oh by the way I'm 62 years young) I'm just looking for someone to I can relate to. Thanks

Jump to this post

@windwalker Congratulations on finding help for your health problems. I am glad to hear that you are doing so much better! Thanks for sharing your story with us at Mayo Connect. Teresa

REPLY
Please sign in or register to post a reply.